The world is against me and it's doing a good job. As you all know l had appointment with new Dr on Monday afternoon. Sats dripped over wken phoned Dr mon to say cancel appointment give it to someone else. 5 min later Dr on phone give me an hour l am coming out to you.Nearly had heart failure along with everything else. She arrived with Nurse from NHS direct which is in same building. Unfortunately IV needed however NHS nurse said they coul administer x2 daily if l came to unit. So off l toddle feeling calmer. Was told in A&E yes no problem keep me in for 2 days to make sure l don't have a bad reaction to antibiotics then the rest in healthcentre. Next day disaster different Dr wanted to trial 2 different antibiotics at the same time but one was x3 daily so not possible at surgery however said it could be done over 7 days so big pants well and truly pulled up and l said go for it. How stupid am l different Dr again this am all change again and 14 days in hospital wants me to go back on prednisolone that l have just weened my self off. Told him in no uncertain terms l have had enough have seen 3 different Dr all telling me conflicting treatments that they need to get their communication sorted and contact my respiratory team. He put the icing on the cake by asking me if l knew l had Asthma REALLY. Sorry for long text really needed to vent before l just blow up and take myself home. To make matters worse they left me off meals last night put it right then no breakfast or lunch today to say l was unhappy is putting it mildly
Best Laid plans : The world is against... - Lung Conditions C...
Best Laid plans
What an absolute c##k up Delamere! Not good to have you messed about like that. I do hope they all have their heads banged together and sort things out properly. Thinking of you and hope you get something to eat. Xxx
No wonder you need to rant. What a rediculous state of affairs. I do hope that they have listened to you and got their act together. You went to get treatment not to be treated as a guinea pig. Rediculous too that there were no spare meals for you to have. Sending you a hug and hoping that things work out for the better soon xx
What a nightmare. So sorry. But thank you for coming on a having a rant. It is what we are here for.
I really thought after the problems on my last admission which my GP surgery lodged a complaint about things would have improved !!
What a shame, it was all looking so good. 🙁 You need that little doggie now to put a smile back on your face.
I really do ! Thanks for replying
So sorry Delamere, that is an awful experience. Say you want to stick with the first doctors recommendation, get me food and drinks until I am discharged and arrange patient transport for journey home.
Hope you can soon be in the comfort of your own home.
Feel better soon.
The song l predict a riot comes to mind ! Now they are changing antibiotics again and my veins are protesting. Feel so frustrated. Can't do a lot of the things that keep me safe like exercise eating properly and getting fresh air won't even allow physio to take me downstairs to front door.Worrying l am loosing the will to fight my corner. Thankyou so much for replying
So doggy yo hear how you have been treated - or should I say mistreated. Hope it all gets sorted.
We will all be thinking of you. You need something more to rely on and you not getting it . Quite the opposite . Not getting a meal is disgraceful . I can understand they have not catered for you but they should give you something , Used to be the ward would find something if only snack. I missed my lunch yesterday and got 2 cups of hot chocolate and biscuits yesterday in A&E to keep me going until i got home.
Thankyou so much . They knew l was here l had filled in 3 menu sheets and ward nurse said she passed them on it is another nobody taking responsibility for mistakes case. Which is a pity because it means you can't stop it happening again. Like you l was treated better I A&E
☹️ This all sounds awful. What a mess up. I feel like I want to send you a food parcel. But I’ll send you lots of sheepy hugs instead 🐑🐑🐑🐑🐑🐑
Thankyou for my Sheepy hugs x
Wow. How are you supposed to cope with three different doctors with conflicting treatment? Don't they read patient notes?? And they should be communicating with each other and you as a team. I don't blame you at all for feeling upset. I hope you are feeling a bit better now. Please let us know how things go. Thinking of you Delamere.
Cas xx 🌿🌼🌱🌻🌿🌼
Thankyou so much Cas. It really helps knowing there are people out there who understand the difficulties of managing not only on going health conditions but a mixture of health professionals as well. Round 2 today when l push for home IV and to see the results of my tests and xrays which they have not deemed to share with me yet. Time for the big girl pants x
I am not surprised you are unhappy. Sadly I don't think yours is a unique experience. Sometimes we survive despite them and not because of them. Hope you start to feel better soon.
Sending you huge hugs and hope that your respiratory team sort this out.Really asking you if you know you have asthma.
Most docs are very good but sometimes a cuckoo pops up and causes havoc.Can remember a very pompous one asking me the same thing(I was on Xolair at time and had had several respiratory arrests) luckily my respiratory consultant stepped in .
Do hope that you are feeling better ,we are all routing for you.
Just awful the way you have been treated. There must be a consultant that these doctors report to. Seems like one upmanship between them which is when you become just a number. I’ve had the food problem when I’ve been in hospital, again with no one taking responsibility.I really hope you get better and home very soon. Sending positive vibes. Jax🐶x
Thankyou jax l am usually able to laugh things off but don't feel up for it this time as l have lost faith in consulting team x
I can imagine that. You get to the stage where you just want to scream. Truly hope your back home soon and put all this behind you. I feel more complaints needed, if you have the energy !Jax🐶x
I understand these feelings so well. I too worry that I'm no longer capable of doing the things that keep me healthy. I haven't the energy to walk far let alone exercise. Re the prednisolone, my consultant is weaning me off this after two years.If he then suggests I go back on it,I would react just as you have done. Hope things improve soon.
Thankyou for your understanding Pednsilosone always gives such a false high and is so hard to wean yourself off. Also Dr have conflicting views about it some are really reluctant to give it others give it out like smarties. I usually use my own judgement x
Beggars belief that these medics can be so inept! No wonder you feel so exasperated. I would be ready to explode. Hope that they get their act together soon & at least ensure you get meals at the right time. It does make me despair. Good luck!
I really sympathize. I've come across so many different doctors whose modes of treatment differ widely and I don't think they appreciate what affect all the conflicting ideas of treatment have on their patients. They all think they are right and the patient objections are rarely considered. Anyone would be frustrated and upset. I know I would. As for you not being fed! Well that's unforgivable. No wonder you're upset.
Not surprised you are upset , it’s confusing when their is such a marked conflict of advice, but you are managing it , I had the same on a recent hospital stay. Hope things improve for you and you start to feel better soon. Good luck! 🙏
I wish you strength and courage to get what you need!! You’re in such an impossible position. Hope they come to an agreement and you start feeling a little better soon!!! 😘💜😘💜
No the World is not against you x
Oh. How dreadful for you when it was all looking so promising. You are absolutely right and you are the most knowledgeable person about your well-being and you are sounding in control despite the cock ups. I hope that you have a resolution and some food
My very best wishes.
Grace
After that experience I am not surprised you needed to have a rant, well you rant away people on this site are always ready to listen. I do hope that things get sorted for you a.s.a.p. Best wishes. xxx
This sounds terrible, no wonder you are angry. I have spent years saying I DO NOT HAVE ASTHMA and paying a premium for it on insurances. I too am sick of being swopped from one consultant to another. My Azithromycin was cancelled for a summer break and i broke my 16 month shielding to immediately get a really serious infection. Tried amoxycillin as all I have at home, no better.According to:my surgery my last x ray( which was lumber not chest) showed no signs of Bronch but i know well it only shows on a CAT scan. I do hope you are by now getting meals, what was all that about? I hope you are, or soon will be sent on to the comfort of you own home, drugs sorted and some peace of mind. debacle comes to mind.
Dreadful! 😡😡😡👿Do medics want to make Delamere iller? 🤞🤞its sorted PDQ.
Good! Go, go, go!
This is really pathetic. Hope someone can get this sorted for you soon x
Oh dear things can only get better hopefully 🤞🙄
I can understand your frustrations at not being able to keep yourself fit whilst in hospital and would be much happier with going along twice a day for the infusion. Nothing worse than sitting all day with no exercise or fresh air, happened to me last month , have to start from the beginning once home!! I only hope you will soon get your treatment and that you have at least been given a sandwich !! Thinking of you and sending lots of warm wishes. 🤗
Thankyou can not tell you how much strength l have gained hearing from people who have been therecand done that. Having all your choices and control of managing your condition really destroys your confidence
What an unconscionable way to be treated! Feeling as if you have no control and being pulled in different directions causes so much anxiety. Best wishes for a return home soon.
Oh! my word, how pathetic. I do not suffer fools glady and would have had a meltdown there and then. Either do your job or get out would have been my motto and believe me somebody would have found some food for me. My mum used to suffer in silence and was walked all over, until i arrived on the ward. You really should put in an official complaint, otherwise it wont change. I really feel for you, you are probably too poorly to do this for yourself, do you have family that could take up your cause. I hope things look different tomorrow x
What a mess! Hope you finally get a treatment sorted out properly.
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