For the last two months I’ve been using trimbow after my last stay in hospital. Whilst my routine activity oxygen levels are slightly higher I am more short of breath now than I was prior to my hospitalisation. This could be down to loss of two stone in weight and general decline in physical activity.
Any thoughts would be appreciated especially if trimbow is not the best inhaler for my lungs.
Hope everyone stays as healthy as possible.
Hi Mike,
I don’t know about your inhaler, but it sounds like it’s worth ringing your GP or hospital doctor to talk to them.
Whatever the cause, your worsening shortness of breath needs to be flagged to them.
Sorry I’m not more help!
Dee
The lack of physical activity will definitely be a big factor - I got 'deconditioned' during lockdown as I didn't go for any walks in the first few months, and my breathing definitely suffered a lot (even though I was still exercising at home). After a couple of months walking every other day my breathing felt a lot better again. Don't know about the Trimbow, but good luck with your recovery Mike.
Thank you. Even I’ve forsaken exercise due to a catheter being fitted. In a position to exercise now so I need to slowly build up.
Don't rush things, but you'll soon build up your strength, breathing etc. All the best Mike.
I had to come off Trimbow after 15 days, because it made my breathing significantly worse. As soon as I went back on my previous inhalers, I was OK. Of course, everyone's different, I know it works really well for some people. But not me. You should definitely ask your GP about it.
Not sure how all the other factors you mentioned contribute to your breathing difficulties but I was put on Trimbow and though I stuck with it for 2 months my breathing deteriorated so badly I had to return to my previous inhalers. After doing that, all manner of the different medical professionals told me it didn’t work for everyone... tho no one said that whilst I was struggling and positively encouraged me to stick with it! Go with your gut and discuss this with your GP/Respiratory Nurse and don’t be fobbed off! Good Luck xx
I was switched to Trimbow instead of Trellegy Elipta. I lasted for about a week and changed straight back. My Breathing was worse and Sputem became very thick which caused me to choke. If you haven't tried anything else I'd see your GP as soon as.
Good luck.
Hi Mike
Please listen to Dee's advice and get yourself to a doctor - easier said than done, I suppose.
As for inhalers I was on Symbicort, tiotropium (Spiriva) and Bricanyl reliever for many years. After seeing a consultant he changed all to Trelegy. Unfortunately I had a very bad reaction to it and my GP advised that I stop and go back to the old medications. After a visit by the Acute Care Team they changed my inhalers to Trimbow and Salbutomal with Carbocistiene and the difference was amazing.
So, I suppose, one man's meat is another man's poison.
See your GP and I wish you every good luck.
Regards
Kevin
Trim Bow didn't suit me, got very breathless. When I looked at it it had less steroid in it than my usual Sirdupla.
I have been on Trimbow for 9 months now with no problems except a very dry skin, but at one time I was given Fostair which gave me terrible palpitations, and only lasted a week with it. Not every inhaler suits everyone so you should speak to your doctor ASAP.
Muscle tone and strength can vanish very rapidly. I changed onto Trimbow just as lockdown started having previously being using Anora Ellipta. Lockdown inactivity probably had more negative effects than anything as a one bedroom flat 3 floors up with Covid positive folk below became a prison. I also have heart issues and can end up with serious heart rhythm issues when active or asleep. The pulse rate can vary from <40 to >200 with a usual resting rate of around 48-52 or 58-64 after food.
The main issue for me with Trimbow is knowing if it's contributing to more frequent/serious heart rhythm problems and if the slight swelling in my feet/ankles is heart or inhaler. I've managed to get out and about round the block once a day for the last few weeks unless it's windy but first time out ended up in A&E and suffered a full blown cardiac arrest as they wheeled me in.
It's always hard to balance the side effects as I'm on meds for the lungs and the heart though the rescue aspirin dose with Trimbow tends to make me work the lungs harder than Ellipta ever did. Again though is that due to the deteriorating heart or the inhaler/aspirin combination?
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