Sharing information: My daughter sent... - Lung Conditions C...

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Sharing information

Kirkysnan profile image
6 Replies

My daughter sent me this. Really useful to see what affects others and what medications are most effective

stuffthatworks.health/copd

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Kirkysnan profile image
Kirkysnan
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6 Replies
MoyB profile image
MoyB

I haven't come across this site before. It's interesting, isn't it? Thanks for posting. xx Moy

Blackcat99 profile image
Blackcat99

Looks interesting, although they only have a limited number of conditions as yet - not bronchiectasis, unfortunately. I was going to register an interest, but it seems as if you can only do so by using Facebook? (which I avoid as much as possible!)

Kirkysnan profile image
Kirkysnan in reply to Blackcat99

You can just use your phone number. Lots of people don't have/use Facebook but it looks like to do that you'll have to use another condition that's already there or wait until bronchiectasis is up and running. Looks like they only use FB to notify you when it is

Blackcat99 profile image
Blackcat99 in reply to Kirkysnan

Ah! - I got into a different page this time I tried and, you're right, it did give a phone number option, and it worked! Thank you.

(previous page wouldn't let me do anything else if I didn't give it FB details)

Kirkysnan profile image
Kirkysnan in reply to Blackcat99

😊

Blackcat99 profile image
Blackcat99 in reply to Kirkysnan

For anyone else with bronchiectasis, they are trying to start up a specific forum for this, need a few more members to be able to start up? Go to - stuff.health/s/2uBvysrq

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