Reactions

[Pokermon]

Just wondering if others suffer from the looks other people give you when out and about. I am young teenager that has to use electric wheelchair when to tired to walk. I walk as long as I can while mum usually pushes chair and use it when I have to. But the looks and remarks like well she doesn't need a chair. Jnothing wrong with her she looks normal. Upsets mum but just makes me smile as just because we look normal we still have our illness. As the saying says never judge a book by its cover lol

[Toby14]

Yes i know how you feel about nasty looks.When i had my lung out i found it difficult to carry heavy shopping. So i was given a disabled badge.Even though i’m a pensioner i still get dirty looks in the disabled bay because they can’t see my disability.So annoying.

[sassy59]

People are very judgemental Pokermon but it’s great you don’t let it bother you. Xxxx

[skischool]

Pokermon,you must develop some strategy whereby your lovely mum doesn't get upset by these people.not sure how you would go about doing that but you sound like the sort of person who could work something out,maybe leap out of the chair in front of these ignorant people and pretend to be pushing mum and you would probably be amazed how quickly their attitude changes.

[SparkySW123 in reply to skischool]

Pokerman, I agree with skischool about developing a strategy so as your mum doesn't get upset by ignorant people. It's not easy I know. I have a blue badge and some years ago when I parked in a disabled bay and walked to my flat, I had disgusting notes and I means 'disgusting' notes left on my windscreen. At that time I could walk further - can't now - and obviously someone saw me and assumed I was completely fit. Then a while later I had my car completely vandalised to the point it was a write-off. It was so stressful, not least costly financially. The police never caught the culprit(s). As you say Pokerman, never judge a book by its cover. Bless you x

[Damon1864 Volunteer]

So very true, I get funny looks when I have to stop and get my breath. Have a good night and stay safe 😊 Bernadette xx xx 🌈

[Pokermon in reply to Damon1864]

Makes me laugh when I have to ask both my nans to slow down when walking. Lol

[Hidden]

Put the remarks down to their ignorance and lack of maturity!

[Corin1950]

People can be so foolish and also unaware of disability but often I think people who stare are sometimes just being nosy. Don’t let it bother you or your mum or you could try Skis idea and push her!

You are obviously a remarkable young man with a very loving mum. Take care of each other

X

[Pokermon in reply to Corin1950]

Girl lol

[Corin1950 in reply to Pokermon]

Even better

Lol

[Spacecat1]

Hi. Pokeman you do get used to it. When I first turned up at church the first Sunday when I came out of hospital I felt as though I was being locked at. One lady came up to me and said in a voice enough for everyone to hear, she said you get used to being looked at just turn round with your lovely smile and say hello. and while out just once again just smile after A while you do start to notice people smiling back at you. Take care and smile and feel good about yourself

[Adirock]

I've had quite nasty accusatory comments from supposedly so called friends when I'm feeling good and feeling energetic or push myself that little bit further in public because I don't want to make people feel awkward about me having to stop or show my breathlessness. Comments like "I thought you were ill" but not in a nice way, as if I've made my condition up. Tired of explaining myself now though, so I just smile and carry on 😁💪 xxx

[Caspiana]

Ugh!! 😠 Yes, I know what it's like Pokermon . I am not young, but I look a bit younger than I am. And like you, no one can see what's wrong. I used to wish I could have a cast of something on my leg, just so that people would think I had a leg injury to stop the looks. They looked more once I got my oxygen too. 😐 I think I just got used to it. I know it's easy to say don't let it bother you. But it does, I know. May be you and your mum can have a chat about this and come up with something short and concise to say when some busy body makes an assumption.

I'm sorry it's so difficult.

Take care.

Cas xx 🍀🐞

[judes]

It is unfortunate that there are a lot of ignorant people out there especially with unseen disabilities.

It can be tough but remember you are tougher you have to live with it all. It’s not worth you or your mum getting upset about it all.

As I always say don’t get mad get even, a big smile and a good morning stops them every time as people really don’t know what to do!

J

[Nik5769]

Yes it's true I get severe asthma and have severe copd. I do gave disability a blue badge. It happens a lot I can try and shop and get out of breath end up on floor throthing from mouth coughing. When I know it's not to good I use the shop electric c scooter. Once I couldn't reach an item on the shelf it was only a few steps so I got out walked over put it in trolly. Oh my word the looks I got was like the whole shop stopped. I know I need it and stuff them. I also tried not to use it once and peservere ended up on the floor not being able to breath and several people offering to call emergency service. You use what you need and don't worry about the looks your safety and life matters more than what they think. We know we are true.

[ostiad]

Yeah it's sad isn't it, we don't wear a label on our heads to inform others that we have a disability, or say, 'today I'm having a good day' 🤭xx

[Ergendl]

Yes, it can be heart breaking if you listen to them. I used to care for a severely disabled young woman who liked to be pushed out and about in a push chair. People would come up expecting to see a child, and were horrified to see her battered face (she self-harmed a lot). I learned to ignore others' reactions as she did not understand them and just loved to be out and about in her favourite push chair.

[corriena]

I always think of it as a compliment. i would hate to think i look as bad as i feel. I can understand how it makes your mum feel. But thear is nothing you can do about other people's opinions so best ignore ignorant people .

[watergazer]

It's so sad when people judge if they can't see a disability . Try to rise above them . x Anita

[lKeith]

Pokermon

Hi,

I feel the same when I get my electric scooter out of the car in the only disabled bay n the car parking lo.We should have a sign or a cap that makes it clear that all disabled are not always visible. I run out of puff as soon as I use any effort whatsoever, especially at the hospital of all places. You have my sympathy and support.

IKeith

[Pokermon]

Same here run out of puff start of good lol

[Ilovebunnies]

Too true. I have had lots of comments when I park in the disabled parking area & get told ' you do realise this is for disabled people only ', then mouth hangs open when I get out with oxygen cylinder & go to boot for rotator (I had already displayed my blue badge). Chris

[Mishycake]

I get looks when I get out of my car like a turtle, learning to ignore

[Tilly2402]

Hi Pokermon, your mum shouldn't get upset, the people who pass nasty remarks should be ashamed of themselves. Take care and stay safe. 😀

[Sammieshep20]

Yes know the feeling very well if they cant see the disability then you havent got one apparently complete bull #**t il. I have copd and lupus both illness you cant see so I know the looks xx

[Maureenpearl]

I am diagnosed with Lupus which has damaged my lungs (Pulmonary Fibrosis) and I have a disabled badge.

I am on oxygen therapy 6 litres per minute and had to go to the Respiratory clinic and parked my car in a disabled space only to have a man shouting at me reminding me that I'm parked in a disabled space and I need a badge. I kept on pointing to my badge but he kept on shouting at me so I just walked off.

Obviously he didn't notice the oxygen or if he did he must have thought I wasn't old enough to have one.

Take care everyone.

God bless xx