Idiopathic Pulmonary Fibrosis

[Wolverton]

Been on Perfenidone for three and a half years no real deterioration as such. At the beginning had to stop due to the 'red rash' restarted and hardly bothered with sun cream. Suddenly now back to the rash and having to stop, hopefully temporarily anyone else in same condition or can give any tips?

[sibkev]

i had it best thing is walk walk walk to open lungs and keeps you fit for transplant

[Wolverton in reply to sibkev]

I think I'll just do the walking thanks

[LozzieC]

My step dad had that and found it was something in some sun creams that caused it! Probably made worse by the perfenidone. He got seen by a dermatologist. There is another drug you can go on called nintedanib

[Wolverton]

thank you