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Is it normal???? πŸ€”

β€’12 Replies

OK so I'm coming up to my 2 year lungaversary! I had a single lung transplant and my other lung completely removed.

I am suffering extreme pain in both sides today to the point it has brought tears to my eyes. I want to know if this sort of pain is normal so long after a transplant?

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12 Replies
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sassy59 profile image
sassy59

I would contact a doctor just to be on the safe side. It’s best to ask a medical professional I feel.

Do let us know how things go please. Xxxx

Katinka46 profile image
Katinka46

You must have a team of doctors and specialist nurses? Can you not contact them?

There are a few here with transplanted lungs but not many.

I hope you get some answers

Kate

β€’ in reply toKatinka46

Yes I have a fantastic team at Newcastle who I see every four months I think I will be ringing the transplant team tomorrow if I am still in pain. Thankyou for your replies.

Hacienda profile image
Haciendaβ€’ in reply to

Hi Hun, You must contact your Transplant Team at Freeman ( A Great Hospital), I am on the QE Birmingham Trx List, My 2 Friends had their Double Trx at Freeman plus another at QE., Lisa had hers 2 years ago also at freeman. Best you call them as soon as you can. My Very Best Wishes to you Hun. Please keep us Updated. Carolina XXXXX

β€’ in reply toHacienda

Thank you for your reply.

How long have you been on the transplant list if you don't mind me asking? X

Emma

Hacienda profile image
Haciendaβ€’ in reply to

Hi Emma, 2 years and 4 months. Never had a Call. I had Lung Reduction in June with 4 Valves inserted. Trying to keep as Fit & Positive as possible whilst waiting, I'm on Oxygen 16 hours a Day. Hope you get sorted Hun. xxxx

β€’ in reply toHacienda

Wow! That's a long time to be waiting Ill pray you get the call soon!! X

Hacienda profile image
Haciendaβ€’ in reply to

Thank You Emma, I have been contacted by a Freeman patient recently he had waited 4 1/2 Years, I don't want to be waiting much longer Hun, Time is not on my side. You must get that pain sorted, Your Daughter and Little one's are your inspiration, Like mine are. Just had my Granddaughter here for a Holiday last week. They are Spanish. I wish to be there with them. I await my call every day. Lots of Love and Hugs . XXXX

Caspiana profile image
Caspiana

Hi Emma,

As everyone has said, please call your team ASAP. I hope it gets better very soon. xx πŸ™‹

Izb1 profile image
Izb1

Hope you made that call ejbid and that you are ok, please let us know. X

soulsaver profile image
soulsaver

If you're in the UK, ring 111 the nhs helpline for advice.. I suspect they'll call an ambulance.

Best wishes

katieoxo60 profile image
katieoxo60

If you have not already done so , contact a doctor or 111 for advice. Or attend a walk in clinic if you have one near. If it gets worse call an ambulance

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