Has anyone else got "floppy airways"?

[EmberDog]

My specialist has diagnosed me as having floppy airways and referred me on to a specialist in fixed airflow obstruction and Floppy Airways at a Wythenshawe hospital. I'm struggling to get any info on it. I understand the basis of the condition and know that treatment can be using a Cpap machine. It came from nowhere. One month I could walk up a hill next month I'm struggling on small slopes.

I'm 41 years old, happily married mum to three labradors. Unfortunately I'm now unable to work as a special needs nursery nurse and am claiming benefits. I also have depression, fibromyalgia, disc degeneration disease and raynards syndrome. I used to be able to walk my dogs easily but now a slow 10 minutes in the field twice a day knackers me out. I get breathless just getting my coat on to go out.

It's all really getting me down.

If anyone has floppy airways I'd love to chat to you.

Hugs

H xxx

Ps photo is hubby and 2 of my three kids xx

[Hidden]

Have you looked at anything about sleep apnoea? I think I have heard floppy airways mentioned in connection with that. Someone here will have a proper answer for you.

[Ergendl]

Hope the new specialist is able to prescribe some treatments that will make you feel more like your old self.

[peege]

Hi, commiserations, that's a lot to handle. I e been on the forum for over five years and not read anything on floppy airways a,though I know it exists.

I suggest you give the BLF help line a call, they'll hopefully get some information for you. 03000 030555, uk office hours. They've got expert advice on lung health, benefits and also counselling.

Best, Peege

[Northern-soul]

Hi,

My consultant suspected that I had a floppy airway, he did a bronchoscopy which confirmed that I had Tracheomalacia and that I needed CPAP. I’ve now been on CPAP for three years. If you want to chat about it please feel free to pm me. C xx

[Caspiana]

Hi EmberDog .

Very sorry to report I have never heard of floppy airways. I know what you mean about walking the dogs. I have one and it really is hard to keep up with him. I also have Raynaud's, Sjogren's and RA. It really is such a heap on your plate, but I am so happy you have support by way of your husband and your very beautiful dogs.

Hoping to hear how things go.

Sending warm wishes,

Cas xx 🙋🐕

[megshafer]

Sorry, don't know a thing about floppy airways. But, your labs are so beautiful.

Take good care,

Meg

[Wile-e]

So sorry to hear of your condition , I have never heard of it. I do wish you well and take care. Enjoy your lovely Labs. x