IPF - Colin's story

[Biddy_ALUK]

Another inspiring story about living with IPF, this time from Colin.

Watch his video, or read the transcript, here.

blf.org.uk/your-stories/living-with-ipf-colins-story

Thanks,

Biddy

[mrsmummy]

blf.org.uk/your-stories/liv...

[hufferpuffer]

Colin is such a brave, stalwart man, Bless him and everyone living with IPF.

huff xxx

[sarcoid1234]

Why oh why do websites keep saying about pulmonary fibrosis words similar to the website quoted:

"There is no cure, and just half will live for more than 3 years after their diagnosis." That is very scary for people newly diagnosed.

I have had sarcoidosis, which is a kind of pulmonary fibrosis, for 37 years, and have had very scarred lungs for 12+ years. I am still going strong and am happy. Yes, I have been on oxygen for 3 years, but that is not too bad.

[Biddy_ALUK Partner British Lung Foundation in reply to sarcoid1234]

Hello, and thanks for your message.

I know there are lots of unpleasant things posted about IPF and other lung conditions on our website, and the facts are often hard to read. We try to cover every aspect of living with a lung condition which sometimes means sharing statistics and stories that are shocking or sad. The stories we shared during IPF week were all very different and inspiring in various ways, from Joyce awaiting a lung transplant, to David coming to terms with the end of his life, and Ron tackling a triathlon!

We're always looking to share stories from different perspectives with a personal touch, so we can get across the realities of living with a lung condition.

It's great to hear you're 'still going strong' and are happy and sounding so positive. In the words of Colin, the best thing to do is 'carry on as normal'.

I wish you all the best, you know where we are if you have any questions (03000 030 555).

Best wishes,

Biddy.

[jane5]

Colin is very brave and he is very inspiring god bless him