maggie

[nannymag63]

hi how is everyone im Maggie i have emphysema an wondered how you all cope with your problems diagnosed 2 months ago. have awful coughing fits anyone know how to deal with these as they wear me out

[cofdrop-UK]

A very warm welcome to you Maggie. cx

[nannymag63 in reply to cofdrop-UK]

well cheers cofdrop love the name how u doing all new to me this find out howcto get round the site soon i hope.

[Puffthemagicdragon]

Hello and welcome Maggie. I have very severe emphysema so I hope you're not that bad.

[nannymag63 in reply to Puffthemagicdragon]

hi puff love the name at the moment i have it mild prob had it for years giving up smoking bought it all to a head .hope your day has been well.

[Puffthemagicdragon in reply to nannymag63]

i got diagnosed about 4 years ago. i gave up smoking as I was diagnosed with angina and blamed the fags so I gave up there and then. A few weeks later I was gasping for breathe and was diagnosed. Before that I could do all the things that " normal " people do, mowing lawns, chopping wood, even a bit of amateur surfing with my daughters. Frustrating is too mild a word to use !

[nannymag63 in reply to Puffthemagicdragon]

know what u mean had to give up job that i loved working with old people get bit bored now on a good day but get very tired is this normal to feel so tired that u can't do anything.

[Hidden in reply to nannymag63]

Feeling tired all the time does affect me. I try to space myself out and take naps if I need them. I make myself go out most days for some exercise. Your health is more importment than a spotless house. Wishing you well. Joyce

[nannymag63 in reply to Hidden]

hi joyce thanks for your comment i dont worry about house work anymore gets done when im in the mood your right health comes first

[gramsgg]

Dr. Gave me the liquid form to put in my nebulizer. I also take the capzul form u can buy on line or heath food store

Its amino acid, it thins the sticly stuf

Its called N-Acetyl-L-Cysteine. I really helped me

Be well, it takes time, don't give up. Gramsgg

[nannymag63 in reply to gramsgg]

hi gramsgg hope your day has been breatheasy and enjoyable thanks for the message .

[gramsgg in reply to gramsgg]

If u decide to try it, its smells like someones bad gas. It has helped me a great deal. The brand name is Thorne (Cysteplus) hope it helps. Gramsgg

[nannymag63 in reply to gramsgg]

ohh nooo think i will give that a miss lol

[gramsgg in reply to nannymag63]

Its up to you, each of us have different systems

Glad your on the site. Keep us posted on how your doing. Grams hi

[nannymag63]

Thanks gramsgg not sure what u do on here at the moment i seem to be doing ok i think any help or hints would be good .

[Hidden]

Welcome Maggie, hope we can all help with any questions or support U need xx sonia xx

[nannymag63 in reply to Hidden]

ahh thank you so much sonia may need a bit here an there an help getting around the site xx

[Jadelew2]

My huband has got it and has had it for 3y he canot do a lot now like he use to he loves his garden so he spaces it out and rest in between he his finding it hard to cope with this illness and I feel so helpless I can under stand how u feel like I say to my hubby take one day at the time and do try not to let it get u down x

[nannymag63 in reply to Jadelew2]

u sound a nice lady yeah its not nice up job with the elderly that i really loved just found it hard to get round my work bit by bit is best way say hi to your hubby an to breath easy x

[Sheilab123]

Hi Maggie just wanted to say welcome to our amazing site, where i'm sure you will find answers to your questions, i know i have been so much support since i joined. xx

[nannymag63 in reply to Sheilab123]

@thank u sheliab im sure i will be fine i sense you all get good support i like that talk soon

[rubyred777]

Hi Maggie me again. I just realized I never welcomed you to the site. You will be amazed how much you will learn. Was wondering what stage of copd you have. Do you know your fev1. It always makes it easier to help someone if we know more about their diagnosis. I have moderate copd. Fev1 of 60. Still working so far. No inhalers as of yet.

Rubyxx 😊 😊

[nannymag63 in reply to rubyred777]

Hi told mine is mild the the moment on a powder inhaler also mucus thinning pills not sure on other levels at mo also have lung consolidation which i belive is pnenomia can't spell today another X ray for that to check how its going on the 20th then back to see consultant ib june so not bad at the moment gave work up as a domestic in a care home as was struggleing to get round my work miss the old folk so much how about you .

[Cyberpunk]

Ask your doctor for uniphyllin it's a tablet you take twice a day I've got severe emphseyma and I'm on oxygen but since taking this tablet I've hardly used my oxygen it's done wonders for me helps the breathing before I was gasping for breath now it's a lot calmer and I can get out now before I couldn't cos my breathing was so bad