anybody know of any chat rooms for pe... - Lung Conditions C...
anybody know of any chat rooms for people and families living with emphysema?
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is that not covered in this chat room, I thought it all come under the umbrella of c-o-p-d
This is a discussion community and some would call it chat too 
There are communities with chat on Facebook which you may be interested in, you may want to search for COPD as well as emphysema as emphysema does come under the banner of COPD (chronic obstructive pulmonary disease)
There are specific live chat rooms on international sites which you may be interested in, but keep in mind, there you will get international information, so if you live in UK some of the things will not be the same. If you are in the US you may find it more useful.
COPD international have discussion boards which they call 'message boards' (they are similar to what we have here) and they have dedicated live chat too. COPD International is a site you can easily get lost on, but there are many more people contributing. It may be a too large for what you want, but here is the link if you want to check it out:
good morning ,i have emphysema, and i do live alone ,i stop smoking ,i don't go out that much risk of lung infection ,doctor give me antibiotic for three months to take one week yes and one week no,look after your self
there is COPD on face book which is quite good,
Hi grace, don't think you can get much better than this site. I do look on facebook but find it a bit clicky with just the few chatting as if they have been friends for many years (and they might have been) I find people on here much friendlier.
polly xx
Yes this site is the best. Richard.
I am looking for the same thing somebody to chat to today i had the hospital for lung tests again and I do have copd I am 57 try and stay active but the last few months it does seem worse and to be honest it scares me espeically when I read about it, all I want is somebody to talk to who understands
Hi Nanaknights, this is a very supportive site where people come to share experiences and information. If you put up a question or post you will very soon receive a reply - as you have to this last reply of yours, from me!
There are often folks awake during the night but the majority stick to UK bedtimes (anything between 9pm and 1am). I (and several others I believe) are much less afraid since discovering this site, have learnt so much to help my self so that I'm no longer a victim of it. Knowledge is the key as well as exercise, taking your meds properly (easy to take inhalers wrongly if you've not been taught), knowing yourself & symptoms & when to go to the GP.
Have you heard of PR? It's the best thing in the world for us.
We DO understand when often our families dont. Peeg - ps dont be reading any US websites now
Hi nanaknights, I too am scared, I was diagnosed 10 years ago but this last 3 years I have just gone down hill. I am on the waiting list for a lung transplant and have been for 14months, just praying it comes soon. You don't say what stage you are at. I am now classed as severe and use oxygen as and when needed. The best advise I can give you is to go to pulmonary rehab and keep yourself as fit as possible, love to chat anytime. Are you on facebook. Sue E.
Hi Seyre, Oh bless you I feel bad now I was saying to my daughter earlier I know there are people worse of than me, I was diagnosed only about 8 months ago but had been feeling unwell for so long and nobody at my gps listened to me I have had a terrible cough for about 2 years I was getting down and depressed and my daughter then spoke to a doctor at my surgery who finally took me seriously , they then did a load of tests and diagnosed me, today I am just having a bad day had the hospital which reminds me of what I have, waiting to hear what the consultant has to say is bothering me as I feel it has got worse (and i know it has) and I know I have done this to my self I really hope you get your lung transplant soon i really do it would be so good to stay in touch with you , I am on facebook Sue Knights thank you for replying to me as my daughter said I do need to speak to people who have this as they will understand
Hi, Please don't feel bad, there are always people worse than you and even me but that doesn't help we need to stick together and discuss problems to get the best we can out of an illness. Seems smoking affects some but not others, my consultant says it is not just smoking that just adds to an underlying factor. However we have to make the most of it so I will keep in touch with you on facebook. Sounds like you have a daughter you can talk to like me. Good luck with your results.Sue Eyre.
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