why did I get ALPHA 1 AND COPD and ne... - Lung Conditions C...
why did I get ALPHA 1 AND COPD and never smokes
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Alpha 1 antitrypsin deficiency is genetic in origin, and smoking isn't the only risk factor for COPD - about 22% of people with COPD are never-smokers.
Ive never smoked and I have COPD it just happens to some
have u got ALPHA 1
I would like to thank the people who have reply to my messages it so nice to know I not the only one thanks all x
No one has ever said ive got that, only that i have COPD x
i did not know i had alpha 1 till my sister died of it that was 2 years ago 6 weeks ago hospital said i had COPD but alpha 1 they says if some got COPD they could have ALPHA 1 vut i got this first i have the main one ZZ i am not a carry carry as one Z with something else so part of me say i going to be ok but the other does not want to get like my sister that i still cannot believe she as gone she was only 52 a year older then me alli do is cry because things i always could do cannot any more and that hurt sat here now pains in my legs and doctors here do not know why but ny nephew who mam died said she was the same dont want to end up like that dont know what to do been on sick for 18 months on lots of pills and things and still have to pay which is wrong things that u have to take for rest of ny life should be free
I have had COPD all my life, also never smoked.
When I was told that I had "severe" emphysema some 15 years ago, the consultant made a sort of "throw away" comment that I also had the Alpha-1 antitrypsin deficiency. He didn't explain what it meant, because the knowledge was in its infancy... It's hereditary and is just something with which we live. Just do what you need to do, to keep healthy! Make sure that you don't ruminate on the unfairness, and end up with depression!!!
thanks so much for your comment xx
I would have thought if you are not working you could get some help to pay for your medication. Why not ring The BLF Benefits team. They may be able to help. I may be wrong but it is worth a try. By the way I'm sorry you have your illness.
thanks for your reply I have try they said I have to pay till my sick run out thats march xx
Did you ring The BLF. There may be something else.
You're not the only one at all. I too have Alpha-1 and COPD and I never smoked. I've just been diagnosed PiZZ so I'm still finding out all I can about it. It explains a lot about my family's traditionally "weak lungs." I thought it very strange that although I was active doing lots of exercise I never got very fit and had lots of lung infections. Now I'm having to come to terms with all the things I can't ever do again, and lead a different life altogether. Trying to keep healthy and be happy, that's what is keeping me busy right now. I'm so sorry about your sister.
thanks so very sorry you have got it how long have u had it I know a lot about it that all I do reading new things all the time t=I think both my mam & dad had it both always had bad chest because I am ZZ my daughters the doctor said they will have one Z they maybe carries x
For u to have zz both your parent will of had it I got refrrred to a genetist alpha 1 is like a break on a car it ment to stop the infections we get from damaging the good parts of our lungs but because we either have none or a little we dont have that protection so u dont have to be a smoker cos there is loads of things that can cause us problems like dust , flumes , airasols, cleaning products etc
If u want to chat inbox me x
Thanks so much Nik37 xx
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