I survived a pulmanary embolism in 20... - Lung Conditions C...

Lung Conditions Community Forum

55,270 members66,033 posts

I survived a pulmanary embolism in 2011. I am wondering what the statistics of life span is for survivors?

isurviveddidu profile image
16 Replies
Written by
isurviveddidu profile image
isurviveddidu
To view profiles and participate in discussions please or .
16 Replies
Toci profile image
Toci

I suggest you try Google. :)

judges profile image
judges

had this 35 years ago and have been fine ever since. am 71 now.

isurviveddidu profile image
isurviveddidu in reply to judges

Thank you so much for sharing with me. I am feeling ok. Once in awhile a pain in the lung makes me worry. I have a green screen in the aorta for protection and 7 stings in the major arteries of the legs. No major clots for a year now. Walking and driving again. ....and making plans for early retirement and it just occured to me I should maybe ask others. Thanks.

Bevvy profile image
Bevvy

My dad had this twice so now on warfarin for life. He 77 and going strong. Travelling all over world seeing on hols!

isurviveddidu profile image
isurviveddidu in reply to Bevvy

Thanks so much for sharing this with me. I am also on warafin for life. They want to switch me to a drug that requires no weekly check in...but I can't afford it yet. Thanks again!

peege profile image
peege

There you go, some great answers :) you could also ring the BLF helpline on Monday for reassurance. All the very best to you, peeg

isurviveddidu profile image
isurviveddidu

Thanks to all of you who responded to my question. Great news to hear! I am 61 and considering early retirement in May. None of the men on dads side lived past 74. I have to work at least part time somewhere til i die...but knowing there are success stories maybe i won't be so quick to slow down now. Thanks again. John Rappold

Mavary profile image
Mavary

My husband had two blood clots the beginning of the year and went on Warfarin for eight months. They told him if he has it again he will be on Warfarin for life.

frank65 profile image
frank65

just the same as anyone else one day at a time

in reply to frank65

that's all we ask ,nice 1 frank65,bernice

Ozzysmom profile image
Ozzysmom

Oh please just live enjoy, friends ,family, work if you can... They made me take early retirement... I would give my right arm to walk through those doors again. Before you retire make sure you have something to be involved in when you are feeling well enough. I mean if you drive a truck or sit in one position all day and endanger your life. Do what the Dr.'s tell you. But!!!! Please find something to do that feeds your soul!!!before you go home to stay.

I was told there was a machine available to measure your blood levels if you are on Coumadin, at home. Sort of like the machine I use to monitor my blood sugar. I don't know if they are available or how much they cost. I live in USA and have been on Coumadin ... Now on the other one ... My insurance pays 75% on drugs and this stuff costs me 40.00$ U S dollars over that.

When all that happened to me---- I sat in a chair like a petrified rabbit... After a few weeks of that... Thought I might walk out there and get hit by a truck today or drop like a stone. Got my dog... Got up and one day at a time .... Still, am a chicken when it comes to the Sleep thing mask on my face. I keep going over to Stich's site and looking at those darn masks.

Sorry cannot sleep tonight... Filling up your lives with my tales.

in reply to Ozzysmom

never think that,one day at a time,is all we ask,

isurviveddidu profile image
isurviveddidu in reply to

One day at at time isn't how I think. I am a business minded person . Knowing what others have experienced is information I need to consider at this time in my life. 2014 is a great year of change for me....and I'm just wanting to have as many facts as possible before I make a personal decision. And as far as asking....i was brought up to believe that we should have anything we are willing to work for. I ask God for lots of things. I daily feel his blessing. But still...he gave me a brain to use..and for common sense decisions..it is important to have the facts....even if based on others experience. Your reply though, makes me think of a song "remind who I am." Thanks.

in reply to isurviveddidu

I have asked many times of god,i also have a brain,1 day at a time sweet jesus is the song,and roll on 2014,this year as been hard for lots of folks,those I have lost and those what are fighting there illnesses daily,i belive we should reap our hard worked for rewards,but if the reward was for my health back id settle for that,

isurviveddidu profile image
isurviveddidu

well....my PA was i guess a little different. Im sure everyones experience with it was. Around the time I had mine some music artist that I can't call his name...had one also. I have not heard anything lately on the news about his concerts and wondered how he was doing. I was unable to walk for a couple years after mine with all the blood clots. My legs would not stop making them. THey say sugar and all that contributes to the clots...maybe it does...but if that is so.....why do they not know Why Dvt's exist in the deepest part of the calf to start with? I take coumodin for several reasons...it is cheap. for one. I now am able to walk and drive and go a little bit. I have blood in lots of places that Im just not going to let them check out. For several years now it is as if they have been on a scavenger hunt inside my body. A lot of things don't work anymore. No one seems to really know anything and I"ve spent over 2 of the last 3.5 yrs in the hospital. It was several things.....cancer surgery.....then the blood infection.....then the DVTS which caused they say.....the pulmanary embolism.....and still there are unfinishied procedures they say. I had a screen put in the aorta...and 7 stints in the legs as they had turned dark and they scheduled me to remove them......lots of crap..dialysis for 6 months because both kidneys quit......lots of unanswered questions....I have blood in my spit sometimes.....i have blood in the stool sometimes....my coumodin level has been up and down. They do not know why and when i go for my weekly check up it is always...

"What did you do....like im some criminal.." i cant eat this...i can't eat that....and i don't but still i feel that they don't believe me. So......i've slowed on the doctors visits. They call...I don't go. I don't feel 100%...hell i don' feel 75% but I am still here working part time.

And yet...they still want to run tests...tests...tests.....tests.....and oh....put a sewing machine up my groin to sew up some hole in my heart. Although the urgency to do that died off when they found out i had to give up my insurance. So......I just wondered since a small percentage of us who have it statistically are still alive......what your experience is and maybe you have knowledge that I don't have. If it weren't for some really good friends I would not even want to be here. My mind says "whats the point?'" But i do enjoy life. YOu won't find anyone who enjoys it more when I feel well. I am sorry that you feel life stopped once you were home.....it did for me in recovery period....i've had to re-learn how to walk thru pain in both hips twice since my PA in 2011. I had the cancer surgery in 2010....lymphoma in 2008.....and then the 7 stints in 2012. I have had one whole year of NO hospitals. That in itself is just wonderful. It was hard to keep my work thru all of that.

Then the financial thing of bankruptsy with nearly 1 million in hospital bills....IM still suffering thru that. IT was over in april of 2013......but trust me....it is NOT over. I still have no credit and only just recently was granted Part B at a healthy premium monthly. OBAMACARE?

WHERE? OBAMASCARE!!! and then....terrorising people to say there is a fine if you don't take it? REALLY? Maybe the government can explain why their rules are different from ours. The lack of credit for our government doesn't seem to stop them from spending , borrowing....yet...we the people......are penalized for our financial situation. OOppps...

now that part is my difference after this PA thing. I never used to care what the government was doing....and now i just speak my mind all the time. I apolozige but im not erasing it.

Im not mental....just growing more and more vocal. So there has been some change in my own personality since the PA. I wish all well who are survivors of this and CANCER.

I do cancer walks on cains and once in a wheel chair, but I have done 4 relays for life so far. I keep the little ribbons on my bathroom door to remind me where i've come from on the days when i wonder how far i have to go yet.

Ozzysmom profile image
Ozzysmom

No ... I was worried for you. my problem all came at once, lost my will to fight. But I had some wonderful friends and family who would not let me give up and I am back into living again.

I spoke out of compassion and fear for the depression that comes to some who are forced to quit their jobs and are unprepared for it.

I often said I wish i didnt have to work. Well, it happened and for a time I was miserable. Not so now... I wish you well and the blessings to find answers for all your msny health problems. I am sorry if I offended you and feel sad that I spoke out with out knowing all you are suffering.

Ozzysmom