Started RITUXIMAB yesterday 4 1/2 hr session 2nd session 2weeks time both sessions infusion also 3day steroids infusion 3/4hr for 3days i

[gerry1950]

Oral need to post because of time would like to thank people who replied to the 5bin issue thanks very interesting reading cheers Gerry

[maggie44]

I may have to go on rituximab at some point. The fibrosis has been held for last 12 months - but I suspect it may be on the move again. Any side effects for you so far? Hope all goes well - let us know how you are getting on.

Maggie

[gerry1950 in reply to maggie44]

Hi Maggie no side affects yet get second treatment in 2 weeks consultant will be to see that day I think I'm the first one with my condition that he has tried this treatment on i am wishing ,hoping and praying for a positive result thanks for the reply will keep updated cheers Gerry

[ifcfg1929]

I had rituximab in March. Did not work with me. At this point i'm on the waiting list for lung transplant. Hope all goes well

[gerry1950 in reply to ifcfg1929]

Was diagnosed with with hypersensitivity pheumonitis in Dec 2009 have various other treatments so I think this a faster action treatment so I a have second treatment in 2weeks and see my consultant on the same day here's hoping I will keep praying thanks for the reply

[Cheryl_uk]

Wow someone who has been on rituximab. I have Chronic progressive sarcardosis and I think rituximab is the next treatment they are looking at for me. I have had the iV steroids it did not seem to make a difference but they are possible thinking about giving me another 3 day course. I have been told by Brompton that if rituximab does not work then they will be looking at lung transplant. I am on home oxygen and morphine together with steroids and numerous other medication. I see you message is a month old do you had any further information

Regards

Cheryl