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Yet another covid positive question

Dogruff profile image
9 Replies

How have people found the course of their covid panned out?

I’m on day 4 or 5. Any serious infections/pneumonias I’ve had in the past it’s started with a bang. This has started out in a way that made me feel rather cocky but every few hours I’ve been getting worse. Have people found this is the case with them? Or did they suffer most at the start

Also, frustratingly, after triage they decided I wasn’t eligible for the infusion as I’ve managed to not have oral steroids in the last 3 months which is a record for me. They also didn’t take into account the cumulative risk of co-morbidities which push me into higher risk plus living alone.

I’m mega irritable today. Oximetry called me and I didn’t answer as I was likely to tell them to shove it. I’m not a grumpy person so very unlike me.

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Lysistrata profile image
LysistrataAdministratorCommunity Ambassador

I haven't had COVID so can't comment on that, beyond obviously follow your asthma plan if asthma is acting up/get help if needed for COVID or asthma. People I know with it have not felt the best but it hasn't gone beyond feeling a bit rubbish for those fully boostered.

I believe the risk calculation for the antiviral treatments with asthma is based on having the steroids within x period, not the reason you need them, if that makes sense. Asthma itself, even severe asthma, doesn't seem to be associated with much risk when it comes to COVID, despite the initial concern that it would. I have severe asthma but don't respond to oral steroids, so wasn't invited to have the PCR at home etc despite being in group 4 for vaccine, shielding etc (which was based on earlier concerns about risk - if they were to redo those groups now I wouldn't expect to be in that group).

I assume not being eligible for antivirals is based on my lack of recent steroid use - I know others on here without admissions for a much longer time or ever were initially invited to the scheme based on recent steroid use. I think it was a year at that point, but they may now have reduced that depending on individuals.

The criteria are here: nhs.uk/conditions/coronavir... - I suspect it's the last one for recent steroid use. I realise that asthma is considered an inflammatory condition, but not all inflammatory conditions have the same COVID risk. I don't of course know what other comorbidities you have and what their risk may be.

3 months without pred doesn't seem long enough to be making the decision based on asthma control . I wasn't considered stable enough asthmawise to be on a vaccine trial at 10 months with no admissions (and without oral steroid use in that time.) I thought I was stable as I'd never done close to that long without an admission since I started having admissions and they were like...err no. This suggests to me they are unlikely to see 3 months with no pred as 'controlled' and so probably aren't making the antivirals decision on that basis.

The link I posted does have information about a study which may have broader eligibility criteria. However, if you're at day 4 or 5 you may not be eligible for antivirals as they need to be given earlier.

Dogruff profile image
Dogruff in reply to Lysistrata

The nurse seemed really unsure herself. It was very much a going by a very specific list of conditions and medication. The list I found online does include the more problematic asthma but I still think for some healthcare professionals they don’t get asthma at all. It also seems to be really different every in how they are administering it. I spoke with a doctor friend and in her area it is hospital consultants that are doing the triages and they having a lower threshold for providing it because they want that net of keeping as many out of hospital or needing any ongoing care as small as possible. And apparently they are moving towards opening up to more people anyway. So I think time just was not my friend.

Poobah profile image
Poobah

According to Asthma UK, you may still be able to access covid treatment:"Accessing antiviral treatments when you’re not high risk

If you are not eligible for treatments because you don’t fall into the high-risk group, you may also be able to access treatment with the antiviral molnupiravir through the Panoramic Study.

This is a UK-wide clinical study open to volunteers who:

have had a positive PCR testfeel unwell with symptoms that started in the last five daysare aged 50 or over, or 18-49 with an underlying health condition.

Find out more and sign up for the PANORAMIC trial."

Link: asthma.org.uk/advice/trigge...

Dogruff profile image
Dogruff in reply to Poobah

Sadly I’m on the standard care option. So no treatment.

Keisha192001 profile image
Keisha192001

I didn’t get any respiratory/asthma symptoms until day 4 or 5 and even then I thought they were pretty mild. Didn’t realise the impact it had on my asthma until I was trying to do minimal exercise like walking to the shop after my 10 day isolation and I was wheezing like crazy when I got there which is extremely unlike me as I’m not a wheezer generally.

Dogruff profile image
Dogruff in reply to Keisha192001

Thanks! I seem to have finally platued in terms of the feelings of horror. When I’m a few hours after ventolin I start getting f short of breath and super exhausted with a drop in my peak flow. Asthma uk helpline said to speak to GP as it sounds like I may need steroids. My GP offered me an end of day face to face appt and did a check over- chest sounded ok. He gave me a prescription for steroids and antibiotics incase my O2 levels become problematic but they have been ok since last night so hopefully I won’t need them.

HBaaBaa profile image
HBaaBaa

Sorry to hear you are feeling so rubbish. I am now nearly 4 weeks since initially testing positive and still having problems. My infection seemed to stay firmly in my upper respiratory region and caused sinus problems, loss of smell, post nasal drip, headaches etc but thankfully did not go into my chest. I have not had to even have my salbutamol once. My peak flow dropped by about 10% but nothing too concerning. I was on the priority list and at triage told point blank that respiratory wasn’t included at all and there was no way I was getting it. I was told I was not eligible for the PROSPECT trial too. I tested positive up until day 10 and was still feeling really quite poorly on day 13 so went to my GP who promptly sent me to A and E because it’s affected my heart and has been causing arrhythmia and dizziness. All quite scary and hopefully being seen to now. This was all very unexpected as I have never had heart issues and thought my asthma would always be my weakness.

Take care of yourself and don’t be afraid to go back to your GP if you get any weird symptoms at all. This virus does very odd things to our bodies - even when fully vaccinated!

Logo132 profile image
Logo132

I had covid a month ago, course of the illness itself was very mild but it’s definitely done some damage to the lungs and I’ve been left with a nasty cough.

Please be careful and dont hesitate to phone emergency services if you need to. I’d definitely argue your case with your doctor as it sounds like the meds would benefit you.

Dogruff profile image
Dogruff

Hi all, I’m finally coming out the other side. Thought I would update for anyone who is scouring the boards like I did at the start.

While it’s termed I had “mild” Covid it certainly didn’t feel mild!!! Now, don’t get me wrong, I’ve had worse infections in the past. H1N1 was far worse. But it really knocked me. My colleagues were so worried about me they insisted on doing door step visits and basically had a rota for checking in with me.

It’s two weeks since my positive and I’m

Still very limited in my day to day activity. Throughout it, I still maintained a twice a day stroll to the corner of the street with the dog as she will not go to the loo in the backyard. I do think that worked in my favour. I’m

Still not able to do much more than that. My boyfriend had a headache as his only symptom but that was probably more from work stress than Covid 🤣

The first few days it was mostly severe sinus related pain, increase in running nose, drop in peak flow, coughing fits which calmed after

Ventolin and extreme fatigue. Sinutab max was a lifesaver but once it kicked in my nose really started to flow. My nose was so raw from

All the action the skin around it was breaking down.

There was times I cried because I felt so awful. That isn’t something that is normal for me- I’m

The type of person who will laugh through something or ignore it. It took about a full week before I could tolerate doing things like watching TV. My brain is still mush, concentration is very poor. My lungs are still mega twitchy. On Friday i very nearby called 999 as a coughing fit was not passing.

I’m on week 3 of being off work. Im bored but mostly because im normally always occupied and not very good with managing goldfish brain and tiredness.

Strangest thing it’s only this week my O2 levels are dropping a bit. Nothing problematic but just slightly lower than would be typical for me.

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