Evening all .... finally I received a Formal diagnosis from a new consultant yesterday... following a recent CT after my 6th admission in 10 mths I have been diagnosed with Tracheobronchomalesia- TBM- floppy airways /collapsing trachea to the lamen !! Along with poorly controlled Asthma... I’ve been fighting the medical profession for 5 yrs despite working in the medical field myself and being told many times it was in my head !!!! The relieve was immense ... which sounds weird as I’ve got a diagnosis which is not easy to treat and asthma which makes the condition progressive !!!! But to finally be believed is what matters ... I often read in here how we are dismissed by Drs time after time when we know our own bodies ... so please feel reassured it does happen and they do eventually listen ...
They are hoping to get the asthma controlled to prevent the TBM progressing !! Fingers crossed 🤞... but just I know I’m not going mad and I can deal with anything they throw my way !!!
Thinking of you all tonight ... keep pushing x