10 month old asthmatic

[traveladdict1]

Good morning , we have just been discharged for the 10th hospital stay in 8 months. Every time my baby gets admitted the doctors say its bronchiolitis . We are now in June and have been told by nurses / doctors / consultants that she wouldn't get bronc after March time however here we are with the same diagnoses . I am going out of my mind watching my baby struggle to breath all the time . The longest we have gone without an admission is 5 weeks. Has anyone got any advise ? I've taken weeks off work unpaid and am getting worried that I will soon loose my job. Surely there must be something they can do to help the wheezing? She on the blue and white inhaler which are clearly not helping very well.

Thanks ! x

[Chip_y2kuk]

I know this doesn't really help but be persistent... it took us ages to get my daughter diagnosed with asthma... we kept getting told they don't diagnose asthma I under 5's she was 18 months at the time... she was officially diagnosed at 2 years old... has regular asthma reviews and we get on well with her named doctor and asthma nurse (the only one in the surgery that does children's reviews)

We had regular 999 calls because she couldn't breathe and it was recorded on her first admission by the rapid responder she had "an all over audible wheeze" we spent various nights in hospital but we where persistent and got the right diagnosis and the right treatment eventually

[TMR16]

We went through a similar thing with my son from when he was about 6 months old. After over a year of regular hospital admissions, some via ambulance, I was close to losing my job as well as my mind.

We were eventually referred to the asthma clinic (he’s labelled as ‘suspected asthma’ because of his young age) which is useful to help you manage the symptoms.

The breakthrough for us, however, was when a paediatric chest consultant was doing the ward rounds one day and on hearing how many times my son had been admitted, he immediately put him under his own clinic. I get the impression that you have to hit some kind of trigger because some infants will naturally grow out of it. I’ve also heard you have to push for a consultant but I was so stressed and exhausted that I can’t advise on that.

Regarding work, are you able to enlist the support of a union rep or occupational health doctor? I was saved by my union rep who pointed out, during an absence management review, that as the primary carer of a dependant who has an ongoing condition that can’t be improved on, it is comparable to him having a disability and therefore I can’t be penalised for it. My absences to care for my son are now treated separately from my own, but it’s been a long hard battle and without her help I’m sure I would have caved in.

I wish you well xx

[Saassii]

What's the baby reacting to? I imagine you don't know what she's allergic to as yet. But you could remove all known allergens.

Dust

Mold

Bacteria

Cockroach droppings

Animal dander be it pet or rodent

Pollen is a possibility so you could consider air filtration. I would. But get it cleaned and new filtration regularly.

Get as many windows open as possible and give her fresh air.

Clean the place like you'll perform surgery there.

I'm sorry for both your struggles, microbes are cruel.