diagnosed 4 years ago. misdiagnosed 6 years ago. NEW TO THIS FORUM. Most pulmonologists know of HP but don't really KNOW HP. Misdiagnosis is abundant.. I lived in Arizona so I was misdiagnosed with a usual local issue called Valley Fever, which I did not have. Treated 2 years for the wrong thing, I chose to go across the country to the Mayo Clinic in Minnesota where NO snap decisions were made based on where I lived. After open lung biopsy I have chronic, idiopathic hypersensitivity pneumonitis. If you are not seeing a highly trained specialist, you are making a huge mistake.
I take 3000 mg of CellCept / Mycophenolate daily which is the max. 15 MG Prednisone, assorted puffers and pills all from Mayo recommendation.