new here, sruggling to cope with my baby's asthma.

my son quinn is 1 tomorrow and in the past week i have just realised that my baby has a serious illness that isn't going to go away.

from around 4 months quinn had recurring chest infections and after 5 courses in 5 weeks he was referred to ped respiritory consultant. he had already been admitted due to rsv also. he went to see the specialist in feb and was put onto ventalin, salbutamol, and belazone 100mg morn and night. i was told they would give him a further 6 weeks before they investigated further.

A few days later i went to my gp saying that he was still really bad, more so at night and i was to scared to go to sleep incase he stopped breathing. i was told i was narotic and get some sleep and stop worrying. Fortunatnatlly i ingored the gp's and constantly watched him. Two days later my son took a massive asthma attack and i almost lost him.

since then quinns condition has continued to get worse. he needs his sulbutamol around 100 times a week. he needs to be attmitted to hospital around once a week. his courses of pednisalone have been increased to 20mg for 7 days and he has been put on singlair 4mg and beclazone 200mg d+n. his development is also delayed due to this as he gets so out of breath if he even tries to move around. i'm a single mother and also have a son at 2 and a half. due to quinn being so bad i was unable to get anyone to look after him or a nursery who would take him, as a result i have had to give up my job. they were very unsympathetic about the amount of time i needed to take off for emergency admissions to hospital.

i'm now trying to deal with the difficult task of claiming benifits including dla, which after reading some of the posts i'm very pessimistic that i will get them.

Right now i need to feel like i'm not alone, is anyone else going through the same or experianced anything similar.

thanks

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Hello - Welcome to AUK

Hi and welcome.

Sorry i cant offer you any advice as i havent been in that situation but i'm sure someone who had the knowledge or had been there in the past will be able to offer you some much appreciated help.

This is a very friendly place and i find that reading the posts really helps with some questions i need answered so hope you'll get the advice your after soon.

I just wanted to give u a hug as u sound very distressed by your sons health and your situation of having to give up your job.

My opinion of your doctor telling you to get sleep could be so your health doesnt suffer as rememeber you need all the strength you have to care for for children and the last thing you want is to feel run down.

Take care

Lisa x

[yaf_user681_26677]

Hi there, I am so sorry to hear that Quinn has been unwell. I understand how scary and worrying this can be. Emily was first diagnosed with asthma at the age of one, she had rsv at 9 months.

Em is now nearly 13 and has had good and bad periods with her asthma. Things change all the time. Sadly the worry never goes away. I too don't work anymore due to the numerous admissions etc but things are getting better in that direction. I did manage to work when she was younger though.

There is nothing i can say to you to make things any easier, only that you are not alone and there are many of us mum's out here who understand what you are going through. It takes time to get your head around it all and take it all in. Feel free to pm me if you want to chat. Being a mum is so hard and we all need to look out for each other. Take care and Happy Birthday Quinn.

Best Wishes

Cathy xxx

p.s. Try and get an asthma nurse or someone similar to help you fill in forms for dla, alot of the problem is knowing what to write and what they want to know.

Best of Luck xx

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well quinn's birthday was spent in hospital!!!! he took a attack through the night i multi dosed him, and again 1 1/2 hrs later to keep him out of hospital. at 9.00am i took him to the gp who inebulised him. they then reqemended that i get one for home and thats when the problems started.

they have told me that if he needs inebulised he must be in hospital. so it was a total washout! poor quinn

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Hiya, it's horrible when your kids get poorly. my son had a major asthma attack in feb and sadly we were not so lucky. my advice is to keep pushing for the right medication a the doctors, and if you don't agree with something ask for another opinion, there's no point being polite if your child's ill!! hopefully one day in the near future they'll sort out his medication and you'll be able to help control his asthma. unfortunately it takes longer than we'd like with little ones cos they can't tell you what their chest feels like and if it's working. just keep on and make sure you don't leave your little boy with anyone that doesn't know how to notice the symptoms and treat them before it gets worse, it's just not worth the risk. x