Feeling so anxious

[pump321]

I am new to this site so hope somebody can help me. I suffered with chronic migraines for over 40 years and last year I was given a new injection which really worked and was a miracle. Sadly the injection seems to have had side effects and I now have chronic fatigue so unable to do anything at all except rest all day which has made me very depressed and extremely anxious. I cannot see friends or go out anywhere as I am so exhausted all the time, I sleep a lot during the day. I just feel I need to talk to somebody and see if others have any advice about how to deal with this. I feel so helpless not being able to live a life like other people. I used to be such a strong and capable person, now my husband has to care for me and do everything. Any thoughts would be much appreciated. Thank you so much. I look forward to hearing from somebody.

[Just_breathe_1]

hi,

What injection was that? I read an article recently about neurologists using a chemically-altered ketamine injection for migraines.

I am not a doctor, it’s just a thought

[pump321 in reply to Just_breathe_1]

Bless your heart for replying so quickly. The injection for migraines that I was given was called 'Emgality'. It's a brand new treatment and not much is known about the side effects. I was so desperate I agreed to use it but I am certain it's plunged me into this chronic fatigue. What is a chemically altered ketamine do you know? Thank you for your thoughts, it's very kind of you.

[Just_breathe_1 in reply to pump321]

practicalneurology.com/arti...

Take a look at this link.

[pump321 in reply to Just_breathe_1]

Thank you so much for taking the time to send me the link. I'll take a look

[Hidden]

Hello and welcome!

I'm sorry to read about your persistent migraines which sounds awful. Whilst I have never suffered in this way thankfully I understand how frustrating it is to not find answers to problems.

Years ago I suffered back pain which went on for over a year. Relief came when I read about the work of Dr John Sarno who developed the mindbody approach. He has a follower in the UK Georgie Oldfield NHS trained physio and she set up SIRPA. This may sound a longshot but she has treated people with chronic migraines. Might be worth it to take a look!

sirpa.org/

Wishing you all the best.

[pump321 in reply to Hidden]

Thank you so much for your reply 'WaitingGame10'. I also have a very bad back after a fracture in my spine so I will look up Dr. John Sarno and Georgie Oldfield. Very much appreciated. It's very kind of you to reply.

[Hidden in reply to pump321]

Your welcome! This approach helped me, it's not everyone's cuppa tea but when all else fails!Georgie will always ask though about ruling out any underlying physical issues but seems like you've been down that route!

[pump321 in reply to Hidden]

I've just looked up Georgie Oldfield and realise that I will have to pay for her expertise, sadly I am not in a position to pay for any more treatment or advice. I've spent so much money over the years seeking help privately but have now run of funds but thank you very much for your help, I'm very grateful you took the time to reply to me.

[Hidden]

Hi again. That's a shame but I know what you mean.I actually did research on my own, didn't pay for anything by reading journalling and noticing patterns. It took a while once you grasp the concepts that for some people physical pain maskes underlying emotional distress. Apparently physical and emotional pain use the same neural pathways. At least thats my understanding. But it made sense to me. I'm sorry its out of your reach. Thats the trouble. Good luck and I hope you get some help.

[pump321 in reply to Hidden]

I think you are absolutely right that physical pain often masks underlying emotional distress. I think that's what I am suffering from amongst other things. Thank you so much.

[Shysteve]

Good morning hope your well( or as well as you can be in this situation)it's a major shock to the system especially when as you say your a strong person,even strong people struggle,this doesn't make you less strong or less of a person it just means you need to sit back a bit and take care of yourself and let your body recover,you will find your way back it may not be an over night thing but there a load of support here from some amazing people so please don't be afraid to ask to be able to reach out/ rant/ put the world to rights ,best wishes Steve

[pump321 in reply to Shysteve]

Thank you very much for your kind words. I am doing to best to manage my symptoms without seeking medical help. I don't want to start taking medication for my anxiety and chronic fatigue. I try and rest and pace myself but I give in and go to bed most mornings as I feel so tired and nauseous. I hate giving in to this resting but don't have the energy to do much else at the moment. My husband is taking care of me and doing everything. Thank you for getting in touch.

[Shysteve in reply to pump321]

Now worries,I know you feel that there's no end to the tiredness and being overwhelmed,but you also need to listen to what your body is telling you(IE needs rest)it's exceptionally difficult especially if you're used to leading an active life but your body knows best,and you obviously need to let your body recover physically so you have the strength to be able to start work on your mind and other things,it will get better,I know it's almost impossible but please be patient and listen to what your body is telling you, again you will get better and wish you every happiness in doing so ,it's just a long hard slog,the human body / mind is absolutely amazing, sometimes we just need to step back and get our bearings,best wishes steve

[pump321 in reply to Shysteve]

I so appreciate your support. I am so scared to give into resting more than I do now in case I spend all day every day in bed and get bodily weak. Somebody told me laying in bed is not good which I really understand. I have lost all my friends as I cannot join in and meet anybody. I am so frustrated as I haven't the energy to do anything at all and spend a lot of time on Facebook which is something I would never have had time for before I began suffering like this. Thanks again for taking the time to reply to me.

[Shysteve in reply to pump321]

Sounds very similar to myself if I'm honest,I've been having trouble sleeping but have because lathargic (this was never me,I was working 12-14 days for the past 15 yr at least and think it's just burnt me out both physically and mentally,I've recently tried forcing my self to go for a small walk in the morning (I'm lucky to live near a lovely castle)and have taken to a stroll around each morning, don't get me wrong it's very difficult to get my butt out the door ,but have found this does actually clear some of the worry and stress as you just take in the scenes, even with my social anxiety,I don't encounter many people and am happy with a quick nod as we pass,this seems to be getting less and less daunting too,I haven't braved a conversation at this point but that is one of my future goals,best wishes

[pump321 in reply to Shysteve]

You sound as if you are doing really well getting out for a little walk each morning, it's obviously helping you quite a lot. I hope you gradually walk a little further each day and are able to perhaps speak to somebody when you are out one day. It is all such a struggle but I hope you gradually begin to make progress. I send you my best wishes and thanks for getting in touch. I much appreciate it.

[Shysteve]

No worries and hope you are able to make some progress in your own fight,again if you feel the need to rant/vent or just chat please feel free to contact me, best wishes Steve

[pump321 in reply to Shysteve]

It's nice to know there are lovely people on here who understand, it really does help so much to know we are not alone. It's been lovely to chat to you. Many thanks again

[Shysteve in reply to pump321]

No worries at all,like I said anytime you need your more than welcome

[pump321 in reply to Shysteve]

Bless your heart x

[Cb1963]

There's numerous types of headaches or migraines 😫 as a sufferer of cluster headaches these are absolutely awful, they've been called " suicide " headaches because they take you to places you'd rather not be. I originally was on topiramate and these kept my headaches at bay, however they came back with a vengeance, even taking the dose doubled up !

After nearly 6 months I was back at the neurologist and was prescribed verapamil, but also I was injecting myself with sumatriptan 30mg injections, these helped once a headache came on, however after taking the new medication I'm more or less free from these excruciating headaches , I'm not sure if the injections are the same one you use, but I hope this information helps, best of luck !!!

[pump321 in reply to Cb1963]

Thank you very much for replying Cb1963. I am so pleased to hear that after taking your new medication you are more or less free of your terrible migraines. Thank you for telling me. I also had a new injection last summer called Emgality which worked very well so after over 40 years I became virtually free from migraines but the side effect of the injection has left me with chronic fatigue and terrible anxiety which I am finding very hard to cope with. Thank you very much for taking the time to reply to my post and so pleased to hear that you are now also virtually migraine free.