Red light therapy: Has anyone tried this for... - AMN EASIER

AMN EASIER

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Red light therapy

Aaron98 profile image
10 Replies

Has anyone tried this for neuropathic pain? A local tanning salon was offering a free week of infrared and red light therapy, and I went in yesterday for my first session. I figured it can't hurt to try. Lying under red lamps in a tanning bed, unable to really feel much of anything happening, felt a little weird.

Supposedly this technology has worked for other people suffering from neuropathy, but I've never heard from any of them personally. Has anyone on this forum successfully used red light therapy as a treatment for neuropathic pain? I'd be very interested to hear your thoughts.

Yesterday was Rare Disease Day. I thought of you all. I hope you are as well as you can be.

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Aaron98 profile image
Aaron98
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mariagno profile image
mariagno

Tanning salons facing bans on UV lighting have now switched to these red lights as beneficial to wellness or a way to keep customers coming into their business. The claim is the red lights bring red cells to the surface.

I am having a hard time finding any research outside of the tanning spas themselves.

I would put this in the Buyer Beware pile or the benefits are left up to the beholder.

monkeybus profile image
monkeybus

Have you looked into cold laser treatment?

Aaron98 profile image
Aaron98 in reply to monkeybus

I have, but my insurance will not cover it. A local spot charges $180 for an eight minute treatment, and suggested a minimum of a ten week trial. Two grand? I'm not sure that's in my budget (or anyone's for that matter).

monkeybus profile image
monkeybus in reply to Aaron98

$180 for eight minutes. What a f*cking racket!

I'm English, and a socialist to boot. I believe healthcare to be a basic human right. Free at the point of delivery.

Bad enough that I have to pay for Modafinil and 4-AP.

Tax the rich.

Right, now I've got that out of my system, I was more thinking of these;

ebay.com/sch/i.html?_from=R...

Affordable, and you never know, could work. On my list of things to buy.

Aaron98 profile image
Aaron98 in reply to monkeybus

I hadn't seen those before, monkeybus. If you get one, I'd love to read your thoughts. What other at-home therapies have you tried, besides your TENS unit? Did I see a post from you before about trying some other kind of light or laser therapy?

monkeybus profile image
monkeybus in reply to Aaron98

Ebay is the place for all sorts of borderline illegal medical equipment.

Shock wave therapy

ebay.com/sch/i.html?_from=R...

Proven to work for nerve damage and axonal regeneration:

ncbi.nlm.nih.gov/pmc/articl...

That's on my list.

Cold laser therapy also has strong evidence for neuropathic pain:

ncbi.nlm.nih.gov/pmc/articl...

And it is cheap.

At the moment, I am using cranial electro stimulation.

healthunlocked.com/amneasie...

ncbi.nlm.nih.gov/pubmed/217...

Very cheap.

And I am just about to build a PEMF unit.

ncbi.nlm.nih.gov/pubmed/150...

PEMF penetrates much deeper into tissue than TENS.

None of the above electronics is fringe science. Though, electromedicine has gone right to the back of the queue. Is this a conspiracy involving the major drug companies? Wouldn't surprise me. And it is easier to pop a pill.

It is spasticity, general neuropathy and above all spasms, it is the spasms that I am going to conquer. Likely the cold laser won't do that, but I'll get around to buying a unit soon. I studied computer science, likely the reason a lot of these treatments make a lot of sense to me.

If you are feeling brave, electro convulsive therapy:

ncbi.nlm.nih.gov/pubmed/168...

I'll point out that my shoulder was in agony for ages. Six hours of TENS, and the pain is all gone. Muscle pain though. Limited results for your kind of pain.

StevenSims profile image
StevenSims

Hi, UVB rays we need for vitamin D3

Infrared light therapy was very helpful. But with AMN a lot of us have dysautonomia and adrenal dysfunction so you have to make sure to drink a lot of water and electrolytes and make sure not to get over heated.

Aaron98 profile image
Aaron98 in reply to

Hi Jenna. I don't know much about dysautonomia (autonomic dysfunction). One of my doctors mentioned that he thinks I might have it in addition to AMN and Addison's, but it hasn't been looked into yet. Do you know what kind of tests are performed to determine this? Is it very common for people with AMN to have, as well? Any information you can provide would be most appreciated.

A tilt test for sure is performed with blood pressure changes of at least 20 points. Also other tests but it will depend on how complex of equipment your neurologist has.

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