The importance of speaking to the right person & being persistent.

[kkatz]

Well I went back into AFib 9 days after CV. Tachycardia, breathless ,light headed.

I phoned the Arrythmia nurses number & was told it is a shame it didn't work but to get my Gp to do an ECG & send it to email.They would look at it & go from there.Probably decide to do a 24 monitor & see me in clinic.Waiting list for clinic 5 months.Lots of people worse than me and that at least they offer contact by phone.Despite my protestation s about having to wait over 12 months from referral to cv no sympathy at all.This is the same nurse that originally told me at first consultation it would be unlikely they would do anything because of my medical history. So rang my Gp .took till late afternoon to get call back & Gp & she said go to a & e.I knew this was not the answer but I was even tempted to try it.

Anyway I rang Arrythmia nurses again and got the chap who decided that I should have the cv and is present at all the CVS.

He went through the options and I have done a separate post on advice for them.

Just shows speak to the right person and be persistent.

[Paulbounce]

KK wrote

"Just shows speak to the right person and be persistent"

Yep - nail and head is on the tip on of my tongue. Let's be honest - most of us hate going to see the doctor or going to hospital. I know I do and I'll bet many others do also.

There's a fear about it - for us all. Some times the only thing to fear is fear itself.

You wrote

"Just shows speak to the right person and be persistent"

No wiser words have been spoken on the forum in my book. I hate going to hospital and I hate going to the doc's. Why ? I can't tell you - but I just do. How silly is that - very stupid I know. There are certain things I can do now - I know what they are and it's coming soon..

Paul

[jeanjeannie50]

I can imagine how upsetting that is for you, I've been there.

Did you do as I advised and not exert yourself? What medication are you on? 100mg Flecainide and 12.5mg Metoprolol twice daily were the best for me. I felt really down after having 2 cardioversions in one year, like you I thought it was the end of the world when told they would offer no more, but somehow my body adapted and now I'm usually unaware of my heart rate. It fluctuates between about 60-90 and I can cope with that.

I guess you have seen the diet recommendations I've made that have really helped me?

Jean

[kkatz in reply to jeanjeannie50]

Thank you JeanJeannie,I really took it easy for a week.Went to a really gentle excercise class on the Wednesday day 8 & absolutely fine.Went crown bowling match on the Thursday & bang.A match is normally up to 21 .This was only to 11 so no problems I thought I would be ok.I don't know if you have seen my post today.I felt so dreadfully down.I don't cry but when I rang back to say I would like to go for Ablation I was told not sure If too big a risk but they would put we forward to see Ep but that could be 4- 5 months .He was advising CV with Amioderine which I would have to stay on for life. Only meds for AF are Adizem (Diliatazem) .A year of fighting & waiting for nothing.And I feel worse than before CV.Not sure I can face it but have to.Just going to start again a bit at a time.

[jeanjeannie50 in reply to kkatz]

Trust me things will get better. I don't know how old you are, if young ignore what I'm going to say, but being in constant AF is a breeze once your body gets used to it. I had three ablations and the first two made my AF attacks worse, third one helped.

Jean

[jeanjeannie50 in reply to jeanjeannie50]

Bending is a sure trigger for AF, but I found it can also stop it too.

[kkatz]

Jean I am 73 and we'll overweight 14st 4 and 5.4 but I was pretty active before all this started.Excercise classes 2x per week + occasionally gym.Bowls 5 times a week . in lockdown walks 4 or 5 times a week and excercise videos a couple of times a week.I was Paroxysmal for 4 years & it switched day after Az jab but it would probably have done same if I had caught COVID & probably been worse . I was torn between living with it as I just had to limit some things but could still do things or go for more invasive steps.But I am struggling at the moment.I know you have been through a lot yourself and you & others on here help me so much.Thankyou for the support.Kathy