Oh how I despair some days. Does he think that miracles happen on birthdays and suddenly you need anticoagulation. (Not blood thinners please as they don't) With your blood pressure problems you are already at risk of stroke regardless of any other problems you may have. Please go to AF Association website and look up CHADSVASC to see what your risk is. Even treated blood pressure makes your score at least 1 and this is added to the fact that you are five times more at risk of stroke just by having AF.
I have spoke at length with EP about Anti coagulation
And chads scores and he still says I'll be fine
I see him every six months
Seems like everyone in AF once diagnosed as I was too are given warfrin
By cardio guys but after failed cardio version
I was discharged on diltizem digoxin warfrin peridipril and told nothing could be done
EP. Took me off digoxin and diltizem put me on dronadrone and then tried a further cardio version
But dropped back into AF a few days later
He put me back on diltizem
Took me off warfrin
So bob he is seeing me I have regular ECG s surely that is better than sorry we can't do anything your discharged on drugs don't need to see you anymore
After a three min time slot his passing comment was would I stay on warfrin
Probably !
Who do you trust a guy who deals day in day out with AF and is deemed to be one of the best in the country ?
Seeing him every six months and a contact number for help
Also question was about swollen legs not rat poison. That's another term for blood thiner ( we all know it doesn't thin blood bob just easier to type )
What qualifications have you in regard to AF
Or is your experience based on your own journey and other people's comments
I am passing on my journey on here in the hope people benifit
There is a very simple resolution to whether you should be on a blood thinner,anticoagulant,rat poison or whatever other name it goes under...
Simple just ask the EP to sign a disclaimer stating that you are on no risk of a stroke prior to your 65th Birthday....
We are all in the same boat one way or another and whilst many of us are not medically trained we are all "experts by experience" and we are doing our very best to help and support each other....
Also I would be concerned as to why one leg was affect have you had an injury sometime on that leg....
Ha,Bob is the epitamy of calmness and serenity and furthermore he is not called Saint Bob for nothing...So I wouldn't worry to much about that...Carol...
Hi Bob, of course you are correct re calling anticoagulants blood thinners but my Rivaroxaban safety card for my purse refers to it as a blood thinner, probably for practical reasons.
At AF A we have been trying to rid the world of this misnomer for years and when I proof read the new booklet on ablation I changed every one! Bet some get slid back in again though.LOL Same with ref to rat poison which is never helpful. Thing is warfarin hasn't been used for that in many years as it doesn't work! Whoever thought that giving it to rats on Vit K rich grain was a good idea hadn't thought about it.
I have the same problem on 240mg Diltiazem Prolonged release capsules. I asked the same question and had some helpful replies so you could probably find them by doing a site search. I was going to ask my GP for water tabs but it seems they are not very helpful sadly.
Only advice I can give is maybe change brand or ask for modified release capsules if not taking them already. Also be sure that you always have the same brand, I have had an ongoing tussle with my GP over that but the thinking is that the body needs time to adjust to the formula and if you keep changing brand it upsets you all over again. I feel much better since being on only one brand.
I try to lie down for half an hour every afternoon which seems to help, also been told to cut down on fluids as well as drink more fluid to help constipation caused by - guess what! Work that one out.....
As for the sicky feeling it seems you need to keep your stomach lined so snacks are good but I have Ranitidine to take at night which helps. I find between the fluid and the hungry feelings I am putting on weight, can't win! So only option for losing weight is more exercise, not so easy if you have asthma and AF......
I would bite the EPs hand off if offered a pacemaker but I am 70 so that makes a difference I know.
Have to say it is quite nice to meet someone with exactly the same problems - big hug!
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