Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,220 members • 26,480 posts

All posts for May 2023

My beloved father and best friend has passed away, he will always be my hero.

My wonderful father Albert Moser passed away May 20, 2023. The last few months have been incredibly hard. After his 4th dose of chemo in February, he had a big...

My wonderful father Albert Moser passed away May 20, 2023. The last few months h...

fmoser

•1 year ago

78 Replies

Stempede with Ogrovyx + Abi.

Hi All, Had pros. cancer in 2014 which was knocked out with guided radiation. Now, 9 years later my PSA went from .4 to .9 in 12 months. PSMA Scan shows a...

Hi All, Had pros. cancer in 2014 which was knocked out with guided radiation. N...

Geo99

•1 year ago

22 Replies

Immunotherapy and… Nothing Else?

Hi All, Article that maybe of interest... https://www.cancer.gov/news-events/cancer-currents-blog/2023/neoadjuvant-immunotherapy-only-treatment KR, SJ

Hi All, Article that maybe of interest... https://www.cancer.gov/news-events/c...

321adam

•1 year ago

3 Replies

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QoLing, QoLing, QoLing 💙🤙Say you love me😘

https://youtu.be/wlJvpeDbpfU Walked to the Ventura Botanical Gardens and Wow what a lovely variety of plants/flowers 😁...

https://youtu.be/wlJvpeDbpfU Walked to the Ventura Botanical Gardens and Wow wha...

dockam

•1 year ago

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Got a new tee shirt

let me know what you think.

gsun

•1 year ago

6 Replies

Pluvicto

My brother will go for his second treatment on June 19th. Spoke to the PA yesterday. She said he’ll now get 80% dosage instead of 100%, because they’ve...

My brother will go for his second treatment on June 19th. Spoke to the PA yeste...

Jzner

•1 year ago

21 Replies

Experience with lupron

Well brother I was on lupron for about a year couldn't tolerate the side effects went on firmagon could not tolerate side effects finally went and had a...

Well brother I was on lupron for about a year couldn't tolerate the side effects...

Startanew

•1 year ago

30 Replies

Tip about antihistamines

I looked it up and antihistamines (Zyrtec, Claritin, Benadryl, et al) can lead to weight gain. Both water retention and fat. How so fat? I can testify...

I looked it up and antihistamines (Zyrtec, Claritin, Benadryl, et al) can lead t...

Derf4223

•1 year ago

6 Replies

Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa

I have PCa. I am also immune suppressed due to kidney transplant. In February I started hormone injections due to BCR. A couple of weeks later I started to get...

I have PCa. I am also immune suppressed due to kidney transplant. In February I ...

Graham49

•1 year ago

5 Replies

QoL my Loving I will send to you 💙

https://youtu.be/RMupWnpLlIsWeekend in Ventura and already have a photo album on Day One. https://photos.app.goo.gl/kXdV7z6Pu6GXUtiUA A pt heard me yakking...

https://youtu.be/RMupWnpLlIsWeekend in Ventura and already have a photo album on...

dockam

•1 year ago

17 Replies

Can MRI reliably detect mets?

I had a lumbar-sacral MRI done for orthopedic reasons. Would it have shown any detectable bone mets in the study area? Same question as to any suspicious...

I had a lumbar-sacral MRI done for orthopedic reasons. Would it have shown any ...

garyjp9

•1 year ago

11 Replies

urolift

had radiation in 1989. In the 2010s I had a urolift installed and regret every since. Worked maybe foe a month. Still on flomax. Every time I get CT o r MRi it...

had radiation in 1989. In the 2010s I had a urolift installed and regret every s...

Laun

•1 year ago

3 Replies

Good News Story from Australia: Apalutamide to become available on PBS for men living with mHSPC

Prostate cancer treatment worth $40,000 a year to be listed on PBS A significant prostate cancer treatment is about to become more affordable for men across...

Prostate cancer treatment worth $40,000 a year to be listed on PBS A significa...

marnieg46

•1 year ago

25 Replies

HDR BT Salvage Therapy

Hello All I just completed the second BT procedure at MSK. Pain level was maybe 3 but mostly gone the next morning with some soreness. My next step I’m told...

Hello All I just completed the second BT procedure at MSK. Pain level was mayb...

Trying-Times

•1 year ago

5 Replies

Any experience with fever please?

Hi all - thanks in advance for your insights. I’m caring for my 67 yr old brother with stage 4 mCRPC diagnosed in 14 (4+3). Treatments have been RPT in 15,...

Hi all - thanks in advance for your insights. I’m caring for my 67 yr old brothe...

Cdel

•1 year ago

5 Replies

Lithium and PCa

My own story: forty years on lithium for manic depression, diagnosed with PCa through elevated PSA, prostatectomy followed by eight years of annual PSA tests...

My own story: forty years on lithium for manic depression, diagnosed with PCa th...

IvorOrr

•1 year ago

12 Replies

qol - Erectile Dysfunction Got You Down?

I may be weird (I definitely am), but I find dark humor a good outlet for the stress of cancer, the treatments, SE's, etc. I hope these corny jokes make some...

I may be weird (I definitely am), but I find dark humor a good outlet for the st...

Carlosbach

•1 year ago

179 Replies

Cabazitaxel and estrogen patch

My brother has CRPC and is receiving Cabazitaxel+Relugolix. Denosumab and Zoledronic acid don't work for him. I suggested an Estrogen patch to both maintain...

My brother has CRPC and is receiving Cabazitaxel+Relugolix. Denosumab and Zoled...

DCDan

•1 year ago

1 Reply

Started Xtandi

Hello everyone, After almost 3.5 years, my PSA has gone down (from 577 to 4.23), and now it has started to go up again (9.5). So the Firmagon, Docetaxel and...

Hello everyone, After almost 3.5 years, my PSA has gone down (from 577 to 4.23)...

GTTown

•1 year ago

4 Replies

Xtandi and accelerated vision decline

I sent my MO a message the other day about all the SE's of Xtandi up to this point because it is really hitting me harder each day. A recent reference to just...

I sent my MO a message the other day about all the SE's of Xtandi up to this poi...

treedown

•1 year ago

10 Replies

New superbug-killing antibiotic discovered using AI

How long before they find a cure for cancer? An hour and a half? I will be happy for a drug that puts into a durable remission and or prevents progression....

How long before they find a cure for cancer? An hour and a half? I will be ha...

Scout4answers

•1 year ago

2 Replies

5/25 update on Zytiga failed

To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip...

To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 ...

alperk

•1 year ago

14 Replies

Neuropathy and a Bad Week

Hi Gents, Does anyone know what I can do to curtail the effects of neuropathy to my fingers from docetaxel? On to a different subject, last Saturday I went...

Hi Gents, Does anyone know what I can do to curtail the effects of neuropathy t...

MJCA

•1 year ago

37 Replies

Now Undetectable PSA on BAT Regimen

Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years...

Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only...

MateoBeach

•1 year ago

47 Replies

Very slow start getting treatment and diagnosis

Hi everyone, My dad went to the doctor recently and discovered he has a psa of 255. His doctor ordered him a psma pet scan for a week later which was supposed...

Hi everyone, My dad went to the doctor recently and discovered he has a psa of 2...

AppleTree43

•1 year ago

40 Replies

ORIC 944 trial

I have just been accepted into the ORIC 944 drug trial. Is anyone else on this trial and would you share your experiences either on the forum or through the...

I have just been accepted into the ORIC 944 drug trial. Is anyone else on this t...

Magnus1964

•1 year ago

19 Replies

Radiation v cryosurgery

I had an interesting conversation with my research doctor today. We were discussing the long term effects of radiation to the prostate. He told me since that...

I had an interesting conversation with my research doctor today. We were discuss...

Magnus1964

•1 year ago

4 Replies

Anyone heard from EdBacon?

He had just started pluvicto but hasn't posted an update in over 2 months... I miss him.

He had just started pluvicto but hasn't posted an update in over 2 months... I m...

GSDF

•1 year ago

15 Replies

Experience of taking darolutamide

Who took darolutamide in metastatic castrate-resistant cancer, please share your experience? How much did you profit on it and after which drugs?

Who took darolutamide in metastatic castrate-resistant cancer, please share your...

rnvrnv

•1 year ago

2 Replies

Xofigo Update

I just added more content to my bio regarding my husband's history and current status. I'm highlighting the current treatment for those who might be...

I just added more content to my bio regarding my husband's history and current s...

Tinuriel

•1 year ago

14 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2023

My beloved father and best friend has passed away, he will always be my hero.

Stempede with Ogrovyx + Abi.

Immunotherapy and… Nothing Else?

QoLing, QoLing, QoLing 💙🤙Say you love me😘

Got a new tee shirt

Pluvicto

Experience with lupron

Tip about antihistamines

Discitis nearly killed me. I suspect streptococcus B was injected into me by Hormone injection for PCa

QoL my Loving I will send to you 💙

Can MRI reliably detect mets?

urolift

Good News Story from Australia: Apalutamide to become available on PBS for men living with mHSPC

HDR BT Salvage Therapy

Any experience with fever please?

Lithium and PCa

qol - Erectile Dysfunction Got You Down?

Cabazitaxel and estrogen patch

Started Xtandi

Xtandi and accelerated vision decline

New superbug-killing antibiotic discovered using AI

5/25 update on Zytiga failed

Neuropathy and a Bad Week

Now Undetectable PSA on BAT Regimen

Very slow start getting treatment and diagnosis

ORIC 944 trial

Radiation v cryosurgery

Anyone heard from EdBacon?

Experience of taking darolutamide

Xofigo Update

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