Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,371 members • 26,725 posts

All posts for August 2022

Genetic test result question

This is my first post to the group after closely following for the past couple of years. In June 2021 I had my my tumor genetic tested by Foundation for...

This is my first post to the group after closely following for the past couple o...

Bears_fan

•2 years ago

5 Replies

No more hidden paywalled prostate cancer research

No more hidden paywalled prostate cancer research The White House has updated its policy on federally funded research. Going forward, the results of...

No more hidden paywalled prostate cancer research The White House has update...

cesces

•2 years ago

33 Replies

WHAT NOW? REALISTICALLY!!! T3N0M1,STAGE4, mets in pelvice

hi all,. Been on hormone injections4 month, stopped urinating blood and gore..... feel better more able deal with diagnosis,learning deal with...

hi all,. Been on hormone injections4 month, stopped urinating blood and g...

Mrtroxely

•2 years ago

35 Replies

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Pluvicto

Hi all ! - Is anybody being treated with Pluvicto - especially in the UK - Would you please be kind and identify how it’s going - side effects - efficacy -...

Hi all ! - Is anybody being treated with Pluvicto - especially in the UK - Would...

raoulmaher

•2 years ago

3 Replies

Updated trial fails to show any real benefit to metastasis-directed therapy (MDT) in oligometastatic patients

Deek et al. combined two trials: ORIOLE and STOMP (n=162) with extended follow-up. https://ascopubs.org/doi/full/10.1200/JCO.22.00644 After 52.5 months...

Deek et al. combined two trials: ORIOLE and STOMP (n=162) with extended follow-u...

Tall_Allen

•2 years ago

48 Replies

Genome biopsy test is deciding factor for definitive treatment but

Hello brothers.I am 74 and have no other disease,etc but prostate cancer,and active , and exercise everyd ay. Genome biopsy test- says LoHiRisk,Cilnical...

Hello brothers.I am 74 and have no other disease,etc but prostate cancer,and a...

Bythetree

•2 years ago

11 Replies

post radiotherapy fatigue

Finished my 20 sessions of radiotherapy (60 grey in total ) in mid July . Areas targeted were prostrate, lymph nodes, seminal vesicles and small pelvic bone...

Finished my 20 sessions of radiotherapy (60 grey in total ) in mid July . Area...

Ghostlycomet

•2 years ago

17 Replies

Update- My TP biopsy and No Levaquin

I had my transperineal (TP) biopsy by Dr. Stratton at the University of Oklahoma Medical Center yesterday. He did not use Levaquin or any floroquinolones as I...

I had my transperineal (TP) biopsy by Dr. Stratton at the University of Oklahoma...

BB_1

•2 years ago

4 Replies

L/T vs S/T ADT post SRT & WPLNs?

I just finished SRT & WPLN's and feel much better than I imagined (although going to dentist today about some small persistent sores on my gums that showed up...

I just finished SRT & WPLN's and feel much better than I imagined (although goi...

jjpeabody

•2 years ago

5 Replies

my CAR-T experience

I was part of the City of Hope Phase I CAR-T trial. Here's my experience with it. I got my infusion of cells on July 5. The first week I noticed...

I was part of the City of Hope Phase I CAR-T trial. Here's my experience with ...

Javelin18

•2 years ago

15 Replies

I decided to zig with Pluvicto

Hi everyone, I had a bone scan and and CT can yesterday at SDMI in Las Vegas. I had an appointment for a consult for Xofigo but decided to cancel since I...

Hi everyone, I had a bone scan and and CT can yesterday at SDMI in Las Vegas. ...

Jamesjohn63

•2 years ago

7 Replies

Clinical trails

Going to my very first visit for my first clinical trial soon. PSA is at .3 and it seems that the zytiga is starting to fail. PSA was over 500 5 years ago...

Going to my very first visit for my first clinical trial soon. PSA is at .3 and...

lincolnj8

•2 years ago

11 Replies

PSA persistance

well, not the result I wanted. Just got my reulsts back from first uPSA test since surgery. (June 2 22) .69.. have oncology apt next week. Is this...

well, not the result I wanted. Just got my reulsts back from first uPSA test si...

runtrails

•2 years ago

29 Replies

Testosterone - How low can it go?

Briefly, diagnosed in April with de novo high volume metastatic PC. Plan was to follow PEACE-1: Lupron, abiraterone & 6 rounds of docetaxel. Had to stop...

Briefly, diagnosed in April with de novo high volume metastatic PC. Plan was to ...

rsgdmd

•2 years ago

35 Replies

Tamsulosin

I was very late getting an Rx refill and found out I did just as well without it. Nice to be able to drop one of my many meds.

I was very late getting an Rx refill and found out I did just as well without i...

6357axbz

•2 years ago

7 Replies

psa up again how much can it range

on Zytiga and dexamethasone and lupron - my psa was like .34, .47, now.60 I’m Not sure when to Worry and what else I can try after this -

on Zytiga and dexamethasone and lupron - my psa was like .34, .47, now.60 I’m N...

Chris52981

•2 years ago

3 Replies

A Question for those who had RP awhile ago

Hi all - I had an RP 2 years ago and so far no incontenence. My question is whether there are long term incontenence issues from RP. We men without...

Hi all - I had an RP 2 years ago and so far no incontenence. My question is wh...

Tony666

•2 years ago

13 Replies

CBC EVERY 2 WEEKS DURING IMRT

I've had 6 of 38 IMRT sessions so far. My RO is having a CBC done every 2 weeks, and my first one was today. Everything was normal except for 3 areas that...

I've had 6 of 38 IMRT sessions so far. My RO is having a CBC done every 2 weeks...

GMan-62

•2 years ago

5 Replies

Pluvicto and a port

My husband is having his first pluvicto tomorrow and this question didn't occur to me to ask. Has anyone here had pluvicto administered to them via a port? Or...

My husband is having his first pluvicto tomorrow and this question didn't occur ...

Yadifan

•2 years ago

17 Replies

Tallguys

Anyone taking Erleada and how many pills daily. A there any problems.Iam gleason 9and met with 45 radiation treatments.Also on Trelstar.

Anyone taking Erleada and how many pills daily. A there any problems.Iam gleason...

drpaaa

•2 years ago

9 Replies

Low PSA and PSMA scan

Hi, I have a question regarding my dad’s latest PSMA scan , it seems the scan has not found new metastasis and the old mets seems stable! My dad’s psa was...

Hi, I have a question regarding my dad’s latest PSMA scan , it seems the scan ha...

godhelpus

•2 years ago

18 Replies

Gleason of 9 Pca but only two small nodes on scan. All other is negative.

is this really stage 4 ? heard someone mention oligo (?)

warrior22

•2 years ago

9 Replies

Akkermansia probiotic

I recently read that akkermansia has been linked to advanced prostate cancer. It is also now being touted as the latest thing for diabetes. As such, I've...

I recently read that akkermansia has been linked to advanced prostate cancer. I...

bonnierose

•2 years ago

7 Replies

Next steps

My recent PSMA scan showed the following: Multiple (7) nonenlarged but PSMA avid retroperitoneal and left common iliac lymph nodes. Thesedemonstrate variable...

My recent PSMA scan showed the following: Multiple (7) nonenlarged but PSMA avi...

venecia1983

•2 years ago

4 Replies

Not new information but fairly concise regarding treatments

As a healthcare professional and new to this diagnosis, I was amazed MRI isn't one of the first tests to be done. I firmly believe it should be done similar...

As a healthcare professional and new to this diagnosis, I was amazed MRI isn't o...

Vangogh1961

•2 years ago

17 Replies

xtandi and side

How long does it take for xtandi to get out of your system? How long does it take for the side effect to stop. I started have headaches and blood pressure...

How long does it take for xtandi to get out of your system? How long does it ta...

Echotango51

•2 years ago

9 Replies

What's The Best Way To Take IP6 Inositol?

What is the best way to take IP6 Inositol to ensure it works optimally in the body? Also, since it touted to have a very positive effect on the immune...

What is the best way to take IP6 Inositol to ensure it works optimally in...

back2health

•2 years ago

24 Replies

Chemo "reset?"?

Hello all, I believe I saw it here a while back where it was stated that after castrate resistance has been reached and then moving onto taxotere (chemo),...

Hello all, I believe I saw it here a while back where it was stated that afte...

GSDF

•2 years ago

49 Replies

mets 4+4 got out of the prostate into lungs and bones

I was put on firmagon {hormone therapy} and now 7 months still on it .Finished 6 rounds of chemo 3 weeks ago. Working 3 days a week and feeling a lot...

I was put on firmagon {hormone therapy} and now 7 months still on it .Finished...

Brianne07

•2 years ago

13 Replies

Zytiga discontinuation due to high ALT/AST

Hey all, my father has to stop taking Zytiga due to high liver enzymes. What is the next step after this? I am upset because he was responding very well and...

Hey all, my father has to stop taking Zytiga due to high liver enzymes. What is ...

Mw921000000

•2 years ago

27 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2022

Genetic test result question

No more hidden paywalled prostate cancer research

WHAT NOW? REALISTICALLY!!! T3N0M1,STAGE4, mets in pelvice

Pluvicto

Updated trial fails to show any real benefit to metastasis-directed therapy (MDT) in oligometastatic patients

Genome biopsy test is deciding factor for definitive treatment but

post radiotherapy fatigue

Update- My TP biopsy and No Levaquin

L/T vs S/T ADT post SRT & WPLNs?

my CAR-T experience

I decided to zig with Pluvicto

Clinical trails

PSA persistance

Testosterone - How low can it go?

Tamsulosin

psa up again how much can it range

A Question for those who had RP awhile ago

CBC EVERY 2 WEEKS DURING IMRT

Pluvicto and a port

Tallguys

Low PSA and PSMA scan

Gleason of 9 Pca but only two small nodes on scan. All other is negative.

Akkermansia probiotic

Next steps

Not new information but fairly concise regarding treatments

xtandi and side

What's The Best Way To Take IP6 Inositol?

Chemo "reset?"?

mets 4+4 got out of the prostate into lungs and bones

Zytiga discontinuation due to high ALT/AST

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Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2022

Genetic test result question

No more hidden paywalled prostate cancer research

WHAT NOW? REALISTICALLY!!! T3N0M1,STAGE4, mets in pelvice

Pluvicto

Updated trial fails to show any real benefit to metastasis-directed therapy (MDT) in oligometastatic patients

﻿Genome biopsy test is deciding factor for definitive treatment but

﻿post radiotherapy fatigue

Update- My TP biopsy and No Levaquin

﻿L/T vs S/T ADT post SRT & WPLNs?

my CAR-T experience

I decided to zig with Pluvicto

Clinical trails

﻿PSA persistance

Testosterone - How low can it go?

Tamsulosin

psa up again how much can it range

A Question for those who had RP awhile ago

CBC EVERY 2 WEEKS DURING IMRT

Pluvicto and a port

Tallguys

Low PSA and PSMA scan

Gleason of 9 Pca but only two small nodes on scan. All other is negative.

Akkermansia probiotic

Next steps

Not new information but fairly concise regarding treatments

xtandi and side

What's The Best Way To Take IP6 Inositol?

﻿Chemo "reset?"?

mets 4+4 got out of the prostate into lungs and bones

Zytiga discontinuation due to high ALT/AST

Search posts

Pinned Posts

Latest poll

Aware of our online community's impact, resources & support—please consider helping sustain & expand our group. https://malecare.org/donate

Topics

Archive

Genome biopsy test is deciding factor for definitive treatment but

post radiotherapy fatigue

L/T vs S/T ADT post SRT & WPLNs?

PSA persistance

Chemo "reset?"?