Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,198 members • 26,464 posts

All posts for August 2019

Prostatitis - I've made a mess of it

Suffering since May 2018(though with previous history) - symptoms - burning urination, burning scrotum, constipation and burning defecation - now feeling...

Suffering since May 2018(though with previous history) - symptoms - burning urin...

Hidden

•5 years ago

9 Replies

Targeted Radionuclide Therapy?

I was diagnosed with ATM genetic defect, which is another DNA repair mutation much like BRCA-1/2 but up until now one that didn't respond to the treatments...

I was diagnosed with ATM genetic defect, which is another DNA repair mutation mu...

cfrees1

•5 years ago

8 Replies

PSA rising after aberaterone

I have CRPC heavily metastasized into the bones. I have been on aberaterone for about 9 months. My PSA dropped like a stone from 600 to 22 in Jan, but has...

I have CRPC heavily metastasized into the bones. I have been on aberaterone for ...

rpol

•5 years ago

23 Replies

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Les's 15th year!

Just needed to share. My husband went for his 6 month Lupron shot, 15 years straight. His doctor stood in front of us with a big grin on his face saying,...

Just needed to share. My husband went for his 6 month Lupron shot, 15 years str...

bluepacifica

•5 years ago

102 Replies

Update on Labs

As a result of some of the helpful comments from fellow warriors I began tracking the blood levels below in addition to my compulsive monthly focus on PSA. The...

As a result of some of the helpful comments from fellow warriors I began trackin...

Philly13

•5 years ago

6 Replies

Update

Hi All, I haven’t posted for a while but I thought I would let you all know how I’m doing and to give a little hope to all newly diagnosed. I was diagnosed at...

Hi All, I haven’t posted for a while but I thought I would let you all know how ...

Apollo123

•5 years ago

9 Replies

MRI found 2 cm lesion on pelvis, doctor said to ignore it.

My husband was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enlarged lymph nodes in the iliac chain, obturator, and largest in the...

My husband was diagnosed in Feb 2017, PSA 275, gleason 8, There were several enl...

cajeffrey

•5 years ago

25 Replies

The Conference Prostate Cancer Question Catcher is now live!

Write in your questions for the Prostate Cancer Patient Conference, here: https://malecare.org/prostate-cancer-question-catcher/ Hundreds of people will be...

Write in your questions for the Prostate Cancer Patient Conference, here: https:...

Darryl

Partner•5 years ago

6 Replies

Update

My husband seen a specialist for a second opinion. His diagnosed was the same as the oncologist and urologist. Clinical trial does not start until the middle...

My husband seen a specialist for a second opinion. His diagnosed was the same as...

Mamabakes994

•5 years ago

5 Replies

New Health Plans for 2020

Hi Everyone, I am wondering if anyone has Kaiser Permanente as their health plan and if so, how likely Kaiser is to refer you out of state to someplace like...

Hi Everyone, I am wondering if anyone has Kaiser Permanente as their health plan...

MeliaQuinn

•5 years ago

11 Replies

1st 68Ga-PSMA-11 PET/CT Interpretation please. Not last

My concern & understanding is of the para below; … specifically my “PSMA avid” lit up areas in the last sentence? 1. Where is my cancer in my upper other...

My concern & understanding is of the para below; … specifically my “PSMA avid” l...

depotdoug

•5 years ago

13 Replies

I received notice in the mail welcoming me to WellCare Part D prescription Drug Plan.

My initial response was to be perplexed. I did not sign up for a new plan. WellCare bought Aetna Part D drug plans. This was apparently required for the $69...

My initial response was to be perplexed. I did not sign up for a new plan. WellC...

Philly13

•5 years ago

3 Replies

Radiation versus Surgery for lung cancer stamped from probate cancer

I have two options either surgery or dart radiation from Dattoli cancer center in Sarasota . Dattoii radiated my cancer when it went to first to my lymph nodes...

I have two options either surgery or dart radiation from Dattoli cancer center i...

westerville

•5 years ago

11 Replies

Stem cell treatment for incontinence?

Has anyone had any experience with this treatment following radical prostatectomy and radiation? There are seemingly legitimate clinics claiming that...

Has anyone had any experience with this treatment following radical prostatectom...

Istomin

•5 years ago

2 Replies

Any Comments Pro or Con on the CareOncology protocol?

CareOncology's protocol: Metformin- mitochondrial inhibition and lowers IGF-1 and insulin Doxycycline- mitochondrial inhibition Mebendazol- Induces abnormal...

CareOncology's protocol: Metformin- mitochondrial inhibition and lowers IGF-1 an...

cesces

•5 years ago

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SM-88 (TYME) is an interesting treatment - a PCa trial seems in order

SM-88 trials are targeted to pancreatic cancer right now. It's a very interesting approach - I'm wondering if it would be an effective PC treatment?...

SM-88 trials are targeted to pancreatic cancer right now. It's a very interestin...

GranPaSmurf

•5 years ago

5 Replies

"Medicine" for our mind?

Our mind has more power than we think, it influences our wellbeing, our feelings (also pain feeling), our health, maybe even our healing power. It can help or...

Our mind has more power than we think, it influences our wellbeing, our feelings...

Hidden

•5 years ago

8 Replies

G9 since 2005, zero treatment until late 2017, now multiple Mets lymph and skeletal. Have fail Xtandi, Lupron, Taxotere. Now Indomethacin

Failed Xtandi monotherapy after successful 15 months, failed Taxotere, failed Lupron immediately, failed Cabazitaxal. Asked MO to prescribe Indomethacin,...

Failed Xtandi monotherapy after successful 15 months, failed Taxotere, failed L...

Sxrxrnr1

•5 years ago

19 Replies

ADT, Zytiga and Fitness

I'd like to hear from anyone who is trying hard to keep fitness up wile on ADT and Zytiga. I've been on ADT for 16 months now and close to a year on Zytiga. In...

I'd like to hear from anyone who is trying hard to keep fitness up wile on ADT a...

StePeteMN

•5 years ago

7 Replies

Mushrooms??

City of Hope has seen some promise with lowering PSA levels using white mushroom caps. https://www.cityofhope.org/blog/fighting-prostate-cancer-with-mushrooms...

City of Hope has seen some promise with lowering PSA levels using white mushroom...

Coupe31

•5 years ago

4 Replies

New prostate cancer treatment concept

Recent clinical trials have hinted that combining immunotherapy and radiation therapy may be a powerful treatment approach for castration-resistant prostate...

Recent clinical trials have hinted that combining immunotherapy and radiation th...

George71

•5 years ago

20 Replies

a major development in a decades long quest to develop a treatment that destroys tumors without the debilitating side effects of chemo.

A cancer therapy invented at Rice University has crossed a milestone in clinical trials, a major development in a decadeslong quest to develop a treatment that...

A cancer therapy invented at Rice University has crossed a milestone in clinical...

George71

•5 years ago

28 Replies

Medical Oncologist in Florida

Hi All- Does anyone have suggestions for good MOs in Florida, preferably that specialize in Prostate Cancer? We are in Fort Lauderdale/Miami but would travel...

Hi All- Does anyone have suggestions for good MOs in Florida, preferably that sp...

Shanti1

•5 years ago

18 Replies

Dr. Ralph Moss dealt with prostate cancer differently

I thought you might like to see this article on another way to treat prostate cancer. I understand most of us have already had treatment, but good to know I...

I thought you might like to see this article on another way to treat prostate ca...

AnnieAppleseed

•5 years ago

11 Replies

Acetyl -L-carnitine

Prevention, Early Detection, and Interception Abstract 5086: Acetyl-L-carnitine (ALCAR) inhibits angiogenesis, migration and macrophage recruitment in...

Prevention, Early Detection, and Interception Abstract 5086: Acetyl-L-carnitine ...

Graham49

•5 years ago

12 Replies

BRAC, KRAS mutations. Prostate Cancer Genetic Tests

We are having my husband genetically tested to see what we can learn about his PC. Hopefully, this will help doctors decide which treatments are best as...

We are having my husband genetically tested to see what we can learn about his P...

paige20180

•5 years ago

6 Replies

Why Doctors still offer treatments that don't work

Please read and comment below...

Darryl

Partner•5 years ago

8 Replies

Nitric-Oxide-Donating NSAIDs.

New study below [1]. Seems an age since I last read about nitric-oxide-donating NSAIDs & a possible anti-cancer effect. First: is anyone using one? From a 2005...

New study below [1]. Seems an age since I last read about nitric-oxide-donating ...

pjoshea13

•5 years ago

16 Replies

PSA value caused by seminal vesicles

I had an electroporation as primary therapy for the prostate. Based on an MRI before the therapy the doctors decided not to treat the seminal vesicles, they...

I had an electroporation as primary therapy for the prostate. Based on an MRI be...

GP24

•5 years ago

3 Replies

Your thoughts and critique of the new Malecare "branding"

I've been "spare time" working on new branding for Malecare, with the massive help of Grapheine in Paris. Please share your thoughts....positives and minuses...

I've been "spare time" working on new branding for Malecare, with the massive he...

Darryl

Partner•5 years ago

14 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for August 2019

Prostatitis - I've made a mess of it

Targeted Radionuclide Therapy?

PSA rising after aberaterone

Les's 15th year!

Update on Labs

Update

MRI found 2 cm lesion on pelvis, doctor said to ignore it.

The Conference Prostate Cancer Question Catcher is now live!

Update

New Health Plans for 2020

1st 68Ga-PSMA-11 PET/CT Interpretation please. Not last

I received notice in the mail welcoming me to WellCare Part D prescription Drug Plan.

Radiation versus Surgery for lung cancer stamped from probate cancer

Stem cell treatment for incontinence?

Any Comments Pro or Con on the CareOncology protocol?

SM-88 (TYME) is an interesting treatment - a PCa trial seems in order

"Medicine" for our mind?

G9 since 2005, zero treatment until late 2017, now multiple Mets lymph and skeletal. Have fail Xtandi, Lupron, Taxotere. Now Indomethacin

ADT, Zytiga and Fitness

Mushrooms??

New prostate cancer treatment concept

a major development in a decades long quest to develop a treatment that destroys tumors without the debilitating side effects of chemo.

Medical Oncologist in Florida

Dr. Ralph Moss dealt with prostate cancer differently

Acetyl -L-carnitine

BRAC, KRAS mutations. Prostate Cancer Genetic Tests

Why Doctors still offer treatments that don't work

Nitric-Oxide-Donating NSAIDs.

PSA value caused by seminal vesicles

Your thoughts and critique of the new Malecare "branding"

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