Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,363 members • 26,717 posts

All posts for March 2019

Clinical Trial Trials

My husband is participating in the EMBARK Study at Winship Cancer in Atlanta (Emory). We aren't allowed to know his PSA as part of the study. The object is...

My husband is participating in the EMBARK Study at Winship Cancer in Atlanta (Em...

COG1

•5 years ago

4 Replies

Prostate Cancer procedures

I had prostate surgery last week. My Dr. said that I had aggressive cancer in the lymph nodes. He will start me tomorrow on hormone therapy using firmagon and...

I had prostate surgery last week. My Dr. said that I had aggressive cancer in th...

gamemaster34

•5 years ago

29 Replies

ED Recovery -- Are there signs to look for?

Really, it's a two part question: (1) For those of you who had a radical prostatectomy, how many have recovered to where an erection capable of penetration...

Really, it's a two part question: (1) For those of you who had a radical prostat...

baw1955

•5 years ago

13 Replies

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Rising PSA and stable scans

We received the results of Jacks pet scan . Following 4 rounds of docataxel it show no uptake since Jan 22 Since his psa is hovering around 88 we were sure he...

We received the results of Jacks pet scan . Following 4 rounds of docataxel it s...

joann48

•5 years ago

4 Replies

Cancer Drs in Seattle

Any suggestions for doctors in Seattle? Just beginning to set up a team for most likely some scans, Salvage Radiation, and ADT. Just starting down this path...

Any suggestions for doctors in Seattle? Just beginning to set up a team for most...

richlisad

•5 years ago

14 Replies

2nd opinion

Today I'd a second opinion meeting. The prof. told me (for the first time I hear this from a doctor): ..." We need to try to make your fatal disease into a...

Today I'd a second opinion meeting. The prof. told me (for the first time I hear...

puxi

•5 years ago

48 Replies

Is there any validity to this concept—reducing the pressure on Pca via drug treatment?

When I read this article on using evolutionary strategies, I wondered about a view my dr espoused ....

When I read this article on using evolutionary strategies, I wondered about a vi...

podsart

•5 years ago

17 Replies

Foundation One came back, ATM (Alteration R250, loss exons 19-20)

Just found I that I have the ATM mutation. While I always believe that some knowledge is better than no knowledge, this news is not the best for me. At least...

Just found I that I have the ATM mutation. While I always believe that some know...

cfrees1

•5 years ago

10 Replies

Update on test results

Hi Kim here again, we went to see the oncologist yesterday and we had some very positive results, my husband had responded really well to the chemo, still a...

Hi Kim here again, we went to see the oncologist yesterday and we had some very ...

16starsky

•5 years ago

8 Replies

Lab results for 4 mos of HT Sabbatical

T=296, PSA= 3.9 At what point do they recommend going back on Casodax & Lupron?

arete1105

•5 years ago

4 Replies

Docetaxel

Friends, next week start docetaxel. I would appreciate your advice to face this new path.

Friends, next week start docetaxel. I would appreciate your advice to face this ...

joancarles

•5 years ago

9 Replies

Wrong treatment 11 months in?

I'm new here. My wonderful husband was diagnosed June, 2018, T4N1M0 adenocarcinoma, Gleason 9 with pre-tx PSA 27. High volume disease, outside of prostate...

I'm new here. My wonderful husband was diagnosed June, 2018, T4N1M0 adenocarcin...

snookchaser

•5 years ago

9 Replies

LU 177 now or later?

I had a prostectomy by robotic surgery 7 years ago. It was Gleason 9 and had a little outside the capsule, but my surgeon thought he got it all, so sent me...

I had a prostectomy by robotic surgery 7 years ago. It was Gleason 9 and had a l...

kiskadog

•5 years ago

4 Replies

Metformin - A Cheap Diabetes Drug Shows Potential as a Life-Extension Therapy

Myers had me on Metformin for off-label PCa purposes. Looks like it is good for all that ails you. Important to note: the medical community isn’t convinced of...

Myers had me on Metformin for off-label PCa purposes. Looks like it is good for ...

cesanon

•5 years ago

6 Replies

Infectious Disease, Parasitic Infections and Environmental Toxins contributing to Cancer Risk

I've been following and studying this trend for many years. Join me on my FaceBook page as I post and share many associated & interesting topics, even offer...

I've been following and studying this trend for many years. Join me on my FaceBo...

wise-crow

•5 years ago

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Bipolar Androgen Therapy results?

I was diagnosis with a gleason 9 and 900 psa in 2016. I am now on Bipolar Androgen Therapy. I am new here. My psa has gone from 2500 to 1000. Does anyone have...

I was diagnosis with a gleason 9 and 900 psa in 2016. I am now on Bipolar Androg...

oldcars

•5 years ago

25 Replies

Looks good

https://www.globenewswire.com/news-release/2019/03/25/1760002/0/en/Arvinas-Announces-Initiation-of-Patient-Dosing-in-the-First-Phase-1-Clinical-Trial-of-PROTAC-

https://www.globenewswire.com/news-release/2019/03/25/1760002/0/en/Arvinas-Annou...

Bob10

•5 years ago

8 Replies

Should I avoid chicken?

Since I was diagnosed in 2006, I have been limiting my consumption of red meat. Instead, I eat fish, chicken, and turkey mostly. This weekend, I watched a...

Since I was diagnosed in 2006, I have been limiting my consumption of red meat. ...

LeeLiam

•5 years ago

67 Replies

PSA RISING

Good morning all My husbands PSA is on the rise. In 2017 he was diagnosed. Gleason 7/8 Did 42 radiation treatments and Lupron injections. 1 year later PSA on...

Good morning all My husbands PSA is on the rise. In 2017 he was diagnosed. Glea...

Hidden

•5 years ago

21 Replies

Improved Response to Olaparib Treatment Among Men With mCRPC Harboring BRCA1/2 vs ATM Mutations

BRCA2 and Olaparib   TAKE-HOME MESSAGE •This multicenter retrospective study...

BRCA2 and Olaparib   ...

Balsam01

•5 years ago

11 Replies

Pelvic radiation disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4663381/ Yikes. Anyone regret or decline having WPRT due to these issues? R.O.'s and M.O.'s all saying I should...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4663381/ Yikes. Anyone regret or d...

Spaceman210

•5 years ago

15 Replies

Casodex and liver problem?

My father is suffering from cancer he is on casodex one a day He vomit blood and black stool due to esophageal varices (condition due to liver problem) He was...

My father is suffering from cancer he is on casodex one a day He vomit blood and...

Hidden

•5 years ago

5 Replies

Lutetium 177

Hi, has anyone any experience of receiving Lutetium 177 in Chirate University Hospital Berlin? We are hoping to travel from N.Ireland but finding it hard to...

Hi, has anyone any experience of receiving Lutetium 177 in Chirate University Ho...

Jenbt

•5 years ago

6 Replies

Well..latest (03/22) PSA is up to 1.67 from 1.5(O2/22)...on the high test(concentrated) BIRM for 2 months now. Lupron & Xtandi.

Hmmm. I was hoping for lower PSA...but, alas. NO. However, Dr. Cevallos, when we corresponded re. the BIRM, said the tests would show improvement (as they have...

Hmmm. I was hoping for lower PSA...but, alas. NO. However, Dr. Cevallos, when we...

greatjohn

•5 years ago

54 Replies

What else should we be doing

My husband was diagnosed in March of 2018. Psa 18 Gleason 8. We were treated at emory Winship in Atlanta. He had derelix injections in stomach every four...

My husband was diagnosed in March of 2018. Psa 18 Gleason 8. We were treated at ...

elainea53

•5 years ago

13 Replies

Current Understanding of Resistance to Abiraterone and Enzalutamide in Advanced PCa

Emmanuel S. Antonarakis, Johns Hopkins, below [1]. Mentions 14 ongoing clinical trials, including this: "Another approach that we have begun to test here at...

Emmanuel S. Antonarakis, Johns Hopkins, below [1]. Mentions 14 ongoing clinical ...

pjoshea13

•5 years ago

18 Replies

Pain with Zytiga

Hi, It is a long time without writting here but I always try to follow the posts and take advantage of all the support this forum gives me and my father with...

Hi, It is a long time without writting here but I always try to follow the posts...

Noel91

•5 years ago

11 Replies

Post-HIFU PSA result of 4.6. Not what I was expecting.

I am in shock at just receiving my post-HIFU procedure PSA test result of 4.6 ng/ml (range 0-4.1). I was expecting/hoping for nil or much lower. I had my 10mm...

I am in shock at just receiving my post-HIFU procedure PSA test result of 4.6 ng...

Adam10

•5 years ago

28 Replies

Headaches!

I received the results from my bone scan and along with my right pelvic femur hip area, which I already knew I had . It also stated a uniform uptake in skull...

I received the results from my bone scan and along with my right pelvic femur hi...

RalphieJr64

•5 years ago

42 Replies

"Taking vitamin D supplements could slow or even reverse the progression of less aggressive, or low-grade, prostate tumors"

March 22, 2019 "Hollis wondered if giving these men vitamin D supplements during the 60-day waiting period would affect their prostate cancer. His previous...

March 22, 2019 "Hollis wondered if giving these men vitamin D supplements during...

George71

•5 years ago

10 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for March 2019

Clinical Trial Trials

Prostate Cancer procedures

ED Recovery -- Are there signs to look for?

Rising PSA and stable scans

Cancer Drs in Seattle

2nd opinion

Is there any validity to this concept—reducing the pressure on Pca via drug treatment?

Foundation One came back, ATM (Alteration R250, loss exons 19-20)

Update on test results

Lab results for 4 mos of HT Sabbatical

Docetaxel

Wrong treatment 11 months in?

LU 177 now or later?

Metformin - A Cheap Diabetes Drug Shows Potential as a Life-Extension Therapy

Infectious Disease, Parasitic Infections and Environmental Toxins contributing to Cancer Risk

Bipolar Androgen Therapy results?

Looks good

Should I avoid chicken?

PSA RISING

Improved Response to Olaparib Treatment Among Men With mCRPC Harboring BRCA1/2 vs ATM Mutations

Pelvic radiation disease

Casodex and liver problem?

Lutetium 177

Well..latest (03/22) PSA is up to 1.67 from 1.5(O2/22)...on the high test(concentrated) BIRM for 2 months now. Lupron & Xtandi.

What else should we be doing

Current Understanding of Resistance to Abiraterone and Enzalutamide in Advanced PCa

Pain with Zytiga

Post-HIFU PSA result of 4.6. Not what I was expecting.

Headaches!

"Taking vitamin D supplements could slow or even reverse the progression of less aggressive, or low-grade, prostate tumors"

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