It's time for a repost of my two-part cancer journey diary. Some "starting the journey readers" might find it helpful. Originally posted as two Health Unlocked "replies" - maybe I should make them an actual full "post".
So I am pleased to report that other than fatigue, I feel sort of normal right now. Even back at work part time. Very different from the pain and terror at the beginning.
My biggest challenge right now is pushing myself to exercise. And of course in the back of my mind is the dread of progression. But the contrast between 2 years ago in spring 2022 and now is astonishing. In frankness we, in other words my wife and I, did not expect that this would be the case.
One side comment is that, because I was diagnosed too late with high volume metastatic Stage 4 PCa, it was too late for surgery or radiation! The success today is entirely related to triplet therapy - in other words drugs and chemo. And my quality of life has not been impaired by destructive therapies, although the achievement of basically zero testosterone means fatigue. (At the beginning I had a lot of meetings with palliative care. Eventually I realized it was not so useful. At least at that time.)
G-d willing I am able to continue to enjoy this level of good health, especially for the benefit of and joy with my family. And thank you to Canadian Healthcare.
The Beginning Of A Metastatic Prostate Cancer Journey - Part 1 of 2
Thanks for posting. I was diagnosed also in 2022. All the research I was doing on radiation vs prostrate removal went out the door when scans came back metastatic! I year of lutetium and ADT and PSA has been undetectable for many months and the latest scans indicate only residual activity, so thinking "this thing is being kept at bay". SEs suck, but bearable. My wife and I met the MO a few weeks ago and she out of the blue asked "Is he in remission?" and we got an affirmative. I guess that's a term the docs don't want to throw around lightly, probably with good reason. Just got my zolodex this morning (was there more belly than last round?) as the battle goes on.
Wow an amazing story LTR. I think Lutetium was fairly new at that time?
We have both followed a a similar path using different methods. We've avoided it seems destructive surgery or radiations. And the side effects, in my case esp. fatigue, are bearable. Contra many opinions I don't care about the whole ED business. You've probably seen some of the new stats that LE for men with metastatic PCa has improved.
I take some supplements, but as Mr T. says, there's no clinical evidence in support of them. (Although of course there's the cliche "absence of evidence is not evidence of absence" 😃).
My biggest challenge lately has been exercise. I've gone back to work and my exercise program has really declined. Is exercise a focus of yours? And are you able to maintain a program?
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Could not remove my prostate and the cancer!
My supplement list and mTor pathways role In metastatic prostate cancer. 
My journey with PCa
My Gleason 3 + 3 Cancer is Now Metastatic
My father diagnosed with Advanced prostate cancer
