Mikemike: Hello....I am here and happy... - Advanced Prostate...

Advanced Prostate Cancer

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Mikemike

Poppy1952 profile image
5 Replies

Hello....I am here and happy to help in any way I can. Will try to be concise. G-9...radiation only(28 sessions IMRT) a breeze. Declined lupron...because of a continuing anxiety condition. Metastices showed up 14 most later...PSA 6.7 up to 16.2 in 6 weeks. PSMA pet showed two rib mets and 1 other on the pubic ramus. Radiated all at Mayo/Jax...psa 16.2...down to 7...last PSA earlier this week two 4.9. What else can I help you with? Prostatectomy OR radiation? Radiation everytime. ...at least for me.

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Poppy1952 profile image
Poppy1952
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vintage42 profile image
vintage42

Like you I had radiation, declined ADT hormone therapy, and have mets. Plus cancer still in prostate. My big mistake was not taking ADT. I am finally on Orgovyx (with Abiraterone) and it is not unpleasant at all.

spkinva profile image
spkinva

I had a prostatectomy, Lupron, and pelvic radiation afterwards. I say go with radiation.

j-o-h-n profile image
j-o-h-n

Can't comment on your Pca but you better take care of your stuttering.

Good Luck, Good Health and Good Humor.

j-o-h-n

Grandpa4 profile image
Grandpa4

I would at least try ADT with abiraterone. If the side effects are bad you can stop them. In terms of prolonging life nothing else works as well.

Ampa profile image
Ampa

I have been most fortunate to have a great care team from Mayo. I had a prostectomy in 2007 at Froedert in Milwaukee. It was caught early but the surgery did not get it all unfortunately and wait and see was not an option , so they next radiated the platform on which slowed the spread. I have had all the treatments from hormone therapy to chemotherapy. I have been blessed on my journey as I now have seven grandchildren aged 15 down to one. I have survived to see them blossom.

I was fortunate to be treated with Pluvicto recently. My metastasis are in my spine and numerous other places. The Pluvicto worked well for me but as I understand it only works in 35% of people treated. If you are eligible it is one of the last treatments that work effectively with Stage 4.

My best wishes to you on your journey.

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