Muscle loss: I'm sure this is a beaten... - Advanced Prostate...

Advanced Prostate Cancer

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Muscle loss

Mrtewills profile image
56 Replies

I'm sure this is a beaten horse topic, but I am unable to perform my previous weight training insofar as weight and stamina.

I'm on eligard every 3 months and nightly erleada pill. Can I incorporate creatine monohydrate without effecting my PSA or exacerbating my BPH?

I'm Stage 4, Gleason 9, mets to lymph system. PSA is .010. I'm happy with that, however the loss of strength/ stamina is causing unnecessary pain in my body?

Any info would be great.. Thank you.

Respectfully..

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Mrtewills profile image
Mrtewills
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56 Replies
God_Loves_Me profile image
God_Loves_Me

I also had muscle lost and i connected to nutritions from MO office. Also start protein shake 2 times in day. Morning and before sleeping that's ad 51 gram protein from shake. Also get some protein from lunch and dinner as well. I also have appetite loss because of different treatment.

Mrtewills profile image
Mrtewills in reply to God_Loves_Me

And how did adding the protein help? Which protein, bc I believe any dairy based protein is counter productive to the body

God_Loves_Me profile image
God_Loves_Me in reply to Mrtewills

I talked to multiple nutritions and I confirmed to high protein keep healthy body

Muscle Milk Genuine Protein Shake, Vanilla Creme - Zero Sugar

OldGuysRule profile image
OldGuysRule in reply to Mrtewills

Milk builds strong bones and muscle.

Maxone73 profile image
Maxone73 in reply to God_Loves_Me

Save some $$$, 50 grams at once is too much:

mayoclinichealthsystem.org/....

Maxone73 profile image
Maxone73 in reply to God_Loves_Me

just one thing they never write right: it’s always “per kg of ideal weight” or “per kg of lean mass”…per kg of weight in itself means nothing…you can be 100kg and have 40% fat or 5% fat and protein intake should be different!! (As also calories intake)

mrscruffy profile image
mrscruffy in reply to Maxone73

I have never seen "ideal weight" just current weight. In order to build muscle quickly and efficiently you need 1g per Kilo and a surplus of calories. Low calories and low protein intake are not conducive to muscle building

Maxone73 profile image
Maxone73 in reply to mrscruffy

Yes because they want to sell proteins. Any trainer would check your weight and fat mass first. Apart from having been a personal trainer and started lifting weights in the late 80es…it’s also written on that article as well 😅 they say that quantity must be adjusted in case you are overweight, which is the standard.

mrscruffy profile image
mrscruffy in reply to Maxone73

My trainer with 7 national certifications agrees with me and ingest protein accordingly. she doesn't sell supplements

Maxone73 profile image
Maxone73 in reply to mrscruffy

Good luck to her!

I suppose she knows studies like this: dexalytics.com/news/proper-....

Or the many others written by trainers at Olympic levels

Mascouche profile image
Mascouche in reply to Maxone73

I am in agreement with Maxone73 on his take about lean body weight rather than current overall weight. The same principle is applied with keto where you are to ingest 1.2 to 2g per kg of lean body weight. In its simplest terms, I remember the two keto dudes saying "Your lean body weight is how much you weighted when you were 20 years old". Of course if someone was already overweight at 20, then the analogy does not apply. ;)

Mgtd profile image
Mgtd

Hate to say this but you may just have to adjust to the new normal that this disease brings. Regardless of age we all feel the loss of stamina and to do the things we did in the old days.

Derf4223 profile image
Derf4223

Welcome to the Hydra club. We didn't choose it, it chose us. I'm exercising daily 2 hrs minimum, elliptical and resistance and aerobics. In addition to creatine, also take taurine and plant-based protein drink-powder. All of this is not making me stronger, it is IMO keeping me from getting weaker. That is probably the best one can achieve with the Hydra (APCa and its treatments.)

BTW, thanks for your service.

PS many MO's miss the BMD loss issue. Get a DEXA scan. I take Calcium (1000 mg/day minimum), D3 (4000 IU/day), K2 mark 7 (100 ug/day), and Magnesium (200 mg twice/day.) I am also on Prolia due to being osteopenic prior to ADT. Good luck and manage your stress.

mrscruffy profile image
mrscruffy

You will need more than Creatine to build muscle, I lost muscle until I got nutrition and supplements correct. For me personally I have not had a problem with Creatine

Nusch profile image
Nusch

From my experience you don’t need to supplement and we never know, which sleeping lion we will wake up. I focus on a plant based diet with fish and lot of beans and legumes. I started with low weights and increase over time. This works - at least for me. I won’t look like Arnold Schwarzenegger, but I regained muscle mass and I’m satisfied with my condition.

Nomiskneh profile image
Nomiskneh

Dear Mrtewills,

See the annexed very recent (18 april 2024) research .

Creatine supplementation and resistance training to preserve muscle mass and attenuate cancer progression (CREATINE-52): a protocol for a double-blind randomized controlled trial

Very positive!

bmccancer.biomedcentral.com....

Wish you the best,

Henk

Maxone73 profile image
Maxone73 in reply to Nomiskneh

Well you still don't know if it's positive as the trial has not started yet. But there will be some interim results within 24 weeks. I am very interested as I hope to solve the dilemma "creatine good for muscles but bad for bone metastasis" that some other study raised.

London441 profile image
London441

Creatine helps a little, effort helps more. Work harder in the gym, eat well and manage your expectations for best results.

The combination of advancing age and ADT is swimming upstream for sure, but it can be done very effectively. Get a good trainer unless you really know what you’re doing. Most older guys simply don’t work hard enough.

Maxone73 profile image
Maxone73 in reply to London441

Old time iron pumpers saying: in order of importance what does the trick are hard workouts, rest, diet.

I remember how, after just 3-4 months of training, some kids were eager to start taking supplements. Meanwhile, there were others who relied solely on their diet and still managed to lift five times more than them 😜 the quest for a silver bullet is never ending.

You are perfectly right, plus there is one extra factor related to aging (even more with people under ADT), we must try to put on muscle without putting on too much fat (actually it's better to say save muscle, as many scientists say you cannot increase without T). Because extra weight (whether is muscle, water, fat or anything else) could compromise our joints, even worse if you have bone metastasis.

Stevegr profile image
Stevegr in reply to Maxone73

I am 79 , American and live in Greece for the past 40 years,Gleason 9, removed prostate immediately and on ADT & Bicalutamide for 2 years. Radiation initially and spot Radiation for 2 very small spots on my pelvis area. 2nd PSMA this year showed only one small spot. No organs so far. During this time I have had very little side effects. other than ZERO sex. No weight gain or loss and still lifting heavy weights. I take Protein powder & creatine and have a great diet( meat fish of all kinds. All fresh & no package items . And of course WINE.

I exercise , weights & machines, every other day am in good condition and never sit still. I am very lucky to have both an inquisitive brain and great wife and magic hands. I can fix or invent almost anything.

My psa is ,80 this month & I will start on XTANDI next month due to PSA increase from .4 to .8 in 4 months.

I have read a massive amount regarding sex systems and as for me it is all crap. Pumps, rings, drugs &, porno . It is never close to what I had. As long as you accept this your trip through this PC maze will be easier. I made the choice life or death & I have never regretted it. Fight until the end!

Maxone73 profile image
Maxone73 in reply to Stevegr

Fight on!!

CountryJoe profile image
CountryJoe in reply to Stevegr

Love your spirit!!!

j-o-h-n profile image
j-o-h-n in reply to Stevegr

Stefanos, Yiasou Patrioti.......(where in Hellas?) - Ioannis

Good Luck, Good Health and Good Humor.

j-o-h-n

tayninhtom profile image
tayninhtom in reply to Stevegr

Great attitude, and sage advice. Rock on, dude!

Yzinger profile image
Yzinger

you guys are freaking me out here - CAN WE HAVE WHEY PROTIEN OR NOT?

MoonRocket profile image
MoonRocket in reply to Yzinger

You can have whey protein, just don't over do the amount. Whey taken pre workout can help sustain your workout and taken after wards helps the repair and building of muscle.

Maxone73 profile image
Maxone73 in reply to Yzinger

Nothing stop you from having whey, but try to use also vegetal proteins powder, especially if you need a big amount. Personally I do one scoop (15g) isolated whey (85%) in the morning basically everyday (I workout 6 days per week lately). I workout (always in the morning) then right after the workout 35g (82%) vegetal protein powder, from mixed sources, to complete them and make them as effective as animal proteins. The remaining amount of proteins I get from my diet, which is plant based (except for salmon/sardines here and there).

garyjp9 profile image
garyjp9 in reply to Maxone73

M73, I'm confused about the use of whey for myself. Isn't it considered dairy, like milk?

Maxone73 profile image
Maxone73 in reply to garyjp9

Yes but consider two things. One is that protein powders are in a way “purified”, no lactose and other sugars. And research that point their fingers toward dairy usually talk about a constant and generous amount of them in your daily diet. But if you want to be 1000% sure, use veg proteins.

garyjp9 profile image
garyjp9 in reply to Maxone73

Thanks. I know you are cautious, so I may reconsider about whey.

Maxone73 profile image
Maxone73 in reply to garyjp9

To be honest, I am going full veg protein myself. I have not noticed any difference. The only thing is to choose a good organic source because they can sometimes have problems with the presence of heavy metals.

garyjp9 profile image
garyjp9 in reply to Maxone73

Thank you

900312611 profile image
900312611

To all you naysayers, can you just answer the op’s question: Can I incorporate creatine monohydrate without affecting my PSA or exacerbating my BPH?...

Maxone73 profile image
Maxone73 in reply to 900312611

You are right!

Maxone73 profile image
Maxone73

The only doubt is when you have bone metastasis, but in your case go for it! Some do the old load cycle then maintenance cycle for a number of months then off for a while, then they repeat. Others prefer a lower dosage but for very long times. I am not up to date at the moment about the latest research on the most effective way of taking it.

pj1121 profile image
pj1121

I hate to worry so I use organic Pea protein, which is a complete protein once a day. Plus, I try to have protein at almost every meal. You need .8 g protein per kilo of weight and the body cannot absorb more than 35 g of protein at a time. My opinion after research.

HotRod4321 profile image
HotRod4321

Short answer:

For me, the answer is simple: I am now more woman than man, because I have no testosterone. I need to keep it that way, more for my Wife than me.

Long answer:

If I increase my testosterone, the prostate cancer will be reactivated [IE: it will grow and metastasize more (I am lucky, none in endocrine system, just bone)]. ME? Used to be Hercules (over 6', 200#), could lift my own weight overhead, bicycle 50+ miles in 2-1/2 hours. Now? An overweight Barney Fife. Muscle gone, replaced by body fat. Am advised that if I continue, with my old workouts I would encourage testosterone to come back. So, I refrain, wishing I could still do maintenance workouts. Difficult, if not impossible for me now.

I am very lucky, PSMA (Prostate-specific membrane antigen = glow in dark test where radioactive agent binds with any prostate cancer cells) = nothing glowing, nothing to see here, keeping on, moving on = just keep doing what I'm doing. Zero testosterone = no prostate cancer.

Bottom line:

Be careful. My old workouts, if I could do them, will bring back the testosterone.

Good luck and Godspeed in your Journey!

CountryJoe profile image
CountryJoe in reply to HotRod4321

I think that you are hurting yourself with this analysis, amigo. Exercise might stimulate some T increase but not enough to worry about. What is more important, it fights cáncer and makes you feel so much better.

Maxone73 profile image
Maxone73 in reply to CountryJoe

Yes, the increase of T with exercise is small and temporary.

HotRod4321 profile image
HotRod4321 in reply to CountryJoe

Me? Delayed diagnosis due to covid... ugh... but it is what it is....

I was told 1 in 10 would have side effects.... well, I am in the ONE and I have them all in spades. One of those is that my lungs don't work like they used to. A 4-hour workout was the normal for me. I miss those days. My doctors warned that I would not be able to continue those workouts while under treatment. If you think 4-hour workouts don't raise Testosterone, I have some old labs to show differently. I used to have 600sf in the basement/terrace level for exercise. I'm down to 250sf and 5 machines [elliptical, weight station, recumbent bicycle (I held on to 6 bicycles hanging in the garage too) fit one, and crunch machine] in the hopes that one day I might get back to it.

Now, I cannot go 10 minutes on the recumbent bicycle before I run out of breath. Anemia now being monitored. If I could exercise, believe you me, I would. But I cannot. I felt obligated to post my answer to 'MRTEWILLS' because I didn't want him to think he was alone and that there may be others with worse issues.

My PSMA = nothing glowing = no cancer = keep on keeping on and I am good to go.... And if you could find a way around me losing my breath just going up a single stair, I'm ready to listen. The doctors have and I've been thru the tests and have Rx (prescription medicine) to help. We have 3 sets of stairs and I use them to 'exercise' now. I do my best. On a good day, I can do chores. On a bad day, not so much.

'"The 50-year-old body I ordered is on back-order and I hear nothing but supply chain woes, and I'm told it may be some time!"' LOL! [Yes, that line is a joke, just to be clear!]

We will all walk in our own shoes on our own paths. Good luck to you on yours!

fast_eddie profile image
fast_eddie in reply to CountryJoe

I second this notion. I am 74 and hit the gym 3x a week for lifting and cardio. I feel better and look better. Oh, and I am told that it is important to maintain bone as well as muscle strength and lifting is the secret to that.

Tommyj2 profile image
Tommyj2 in reply to HotRod4321

This disease is an ego crusher for those of us who were formerly quite active….i do group workouts now and my goal is to be able to keep up with the fit ladies in the group…..and to be able to get 20 lbs of groceries up my steep stairs without losing all my breath……the two spare tires around the middle don’t help matters either🫤

HotRod4321 profile image
HotRod4321 in reply to Tommyj2

And here I thought I was the only one with two!!!

Tommyj2 profile image
Tommyj2

am I reading this correctly….BPH? Does this stand for something other than benign prostatic hypertrophy?

fast_eddie profile image
fast_eddie in reply to Tommyj2

That's right. Been there and done that prior to cancer diagnosis. So can you have BPH and cancer at the same time? I guess so.

j-o-h-n profile image
j-o-h-n

I just ordered a dozen of these:

Good Luck, Good Health and Good Humor.

j-o-h-n

Women will love me.....
Stevegr profile image
Stevegr in reply to j-o-h-n

Athens Halandri. We only live once so go all out to enjoy it,

j-o-h-n profile image
j-o-h-n in reply to Stevegr

Ela tho na sou pou kati (kati) mystico. My clan is from way up north (borders with Albania) in Epirus (Ioannina) - Try a trip up there to meet "The Ali Pasha".....Much different than the south. Xronia Pola......

Good Luck, Good Health and Good Humor.

j-o-h-n

Stevegr profile image
Stevegr in reply to j-o-h-n

We have been to most of Greece including Ioannina. Beautiful areas but too distant for living unless you are a farmer or environmentalist.

We are all here for one reason, and no one knows what that is.

Good Luck to you too.

HotRod4321 profile image
HotRod4321 in reply to j-o-h-n

Mines on backorder....

j-o-h-n profile image
j-o-h-n in reply to HotRod4321

Mine too....... I ordered the lower section also.......

Good Luck, Good Health and Good Humor.

j-o-h-n

HotRod4321 profile image
HotRod4321 in reply to j-o-h-n

LMAO....Thank you!!! John hypen...clever...

j-o-h-n profile image
j-o-h-n in reply to HotRod4321

Please, an official note:

Hyphen sounds too much like a Hymen that's why I like to call them Dashes.

Good Luck, Good Health and Good Humor.

j-o-h-n

HotRod4321 profile image
HotRod4321 in reply to j-o-h-n

"John Dashes" it is!

CaptainKrunch profile image
CaptainKrunch

Was experiencing extreme/worsening fog brain 15 months into my 2 year abi+pred+lupron treatment until blood tests highlighted low B-12 (likely a decades long issue). Since starting 1000 mcg of OTC B-12 I feel much better energy and focus.

85745 profile image
85745

Same here, Started supplements Creatine and Astaxanthin ( Amazon ) Also do dumbbell lifting on critical body parts. Stretching seems to help me also. For my joint pain MSM supp seems to help . Thinking about taking Hemp protein powder again use to take it many years ago . Good energy boost . Best

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