It’s been a slow trip fighting arthritis on top of recurring PCA. Still on a Lupron vacation. Osteopenia cleared up after 21 months with only bicalutamide, T rose to 226, and PSA has stayed less than 0.1. I finally have a new knee! It‘s painful but every night is a bit better than the night before and I can walk our property for the first time in years.
Looking forward to holidays where I can walk through airports, train stations, museums, cathedrals, and play with our newest grandchild.
When it comes to what matters QOL is up there with staying alive and not worrying family. This group has helped - providing confidence to do this.
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kreg001
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It is pleasing to hear your positive report of your health progress. Good for you. I too am suffering from BMD issues having caused osteoporosis and compression fractures resulting in back pain. Which BMD medication is helping you? You are a brave man getting a knee replacement. I hope your rehab goes swiftly and causes you as little pain as possible. With PCa comes new important abbreviations in our vocabularies such as SEs and QOL. One of my newer thoughts each day is, be careful now and don’t fall down! Take care of yourself. I never considered myself fragile, and I doubt that most of us did either, but now we are, and I hate it!
With my Lupron Depot PSA was steady in the 2-3 range after biochemical recurrence following salvage brachiotherapy. PSMA showed the cancer was detectable in my seminal vesicles and nowhere else. I started taking bicalutamide with Lupron Depot and PSA dropped to <0.1. Nice. Complaining about my sore knee to my PCP led to a DEXA scan that indicated I had osteopenia and my PCP and a Ortho Surgeon were reluctant to consent to knee replacement. I kept getting needled up with Kenalog at three month intervals. I went on the Lupron ‘vacation’ and PSA stayed low. I went ‘natural’. Eliminated caffeine and rare meat. Tried to swim 1/2 to 1 mile a day. Prescription meds besides bicalutamide are daily solifinacin alternating with myrbetriq (stress incontinence after salvage brachiotherapy), and linosinopril (blood pressure). Tried to be lacto ovum vegetarian one or two meals a day. Lot of milk, fish (esp. salmon), eggs 4-5 times a week often with mushrooms and spinach. Supplements of iron folate and turmeric (curcumin). Began to experience numb fingers, peripheral neuropathy, and took 2.25 mg vitamin D2 and a B12 shot once a week. Even with the kenalog the bone on bone pain was often bad and I wolfed down acetominophen and ibuprofen at least twice a day. Things came to a head visiting our son and his family in Amsterdam and then attending a big Slovak gathering of my wife’s family in a village in Slovenia. I had to ask to be wheel chaired in terminals and train stations. Back home I begged for a new knee. A new DEXA indicated I had crept to the bottom of the normal range for my age and my PCP and Uro consented to arthroplasty. Had to wait three months with no kenalog before surgery could proceed. It’s only been three weeks but new knee new me.
Hello. Good to hear your report, I had a partial left knee replacement back in May 2023. I am very grateful that I can walk again with out pain. My surgery went very good. I still have some puffiness, but I am pretty active with working yet so I am on my feet a lot etc. I take, lupron and xtandi. My PSA (<.01) has been undectable for over a year now. Very grateful for that. I trust that your knee serves you well.
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