On vacation!: Didn't think I would ever... - Advanced Prostate...

Advanced Prostate Cancer

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On vacation!

SpencerBoy11 profile image
9 Replies

Didn't think I would ever go on an ADT vacation. My new urologist thinks it would be a good idea since I have several SE from my MDS-RS with the worst being fatigue added to my ADT fatigue. Have been on Eligard after radiation for 3 yrs. with PSA undetectable. Am sure in my mind that the radiation caused my MDS. Will continue PSA testing every 3 mos. Sure hope the hot flashes stop.

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SpencerBoy11
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maley2711 profile image
maley2711

Have any type of metastases been detected by scan? You mentioned your bladder? If no past or current scans have found metastases, then a vacation is the only way to determine if your treatment has fully succeeded, IMHO. At 85, you deserve a break!!!!!!! Sadly, after 3 yr zero T at a an advance age, T recovery could be a real challenge...most of the SEs probably caused by low T, NOT the drug. I wonder if they consider T boost too risky for men in your situation? I've seen no studies of that? But i haven't looked!!! Aren't our Docs supposed to know this stuff???????????????????????????????????????

SpencerBoy11 profile image
SpencerBoy11 in reply to maley2711

I have already had 4 different oncologist and will probably fire the one I have now. Don't know where I'd be with out this site.

Horse12888 profile image
Horse12888

Maley's right. Intermittent ADT is not inferior to continuous, though T recovery may be slow, or not happening at all, necessitating T replacement. Today, this is not considered dangerous, because you're adding in the same chemical that would have been provided by your testicles. Good luck.

SpencerBoy11 profile image
SpencerBoy11 in reply to Horse12888

Would be nice for my T to increase, but a decrease in fatigue will make me happy.

Horse12888 profile image
Horse12888 in reply to SpencerBoy11

Yes, fatigue is an extremely common SE. Mine was debilitating.

Mascouche profile image
Mascouche

I wish you all the best with your ADT vacation Spencerboy11.

I just began my own ADT vacation on May 2. Can't wait for testosterone to come back so I can regain the energy that I've missed so badly after 2.5 years of treatment.

GoBucks profile image
GoBucks

Good luck! I just passed the 1 year mark of vacation. T recovery barely happening but I feel great. Still have hot flashes at night but much less than before.

Break60 profile image
Break60

have you tried estradiol patches? A lot less SEs than Lupron and no need for vacation.

SpencerBoy11 profile image
SpencerBoy11 in reply to Break60

I couldn't get anyone to rx them for me. Right now the die is cast and I want to see what happens.

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