My friend feeling numbness in feet and legs and losing weight

[Karmaji]

My friend with PC had RT and is on ADT.... since march 2022. However, doctor did not go for Pet scan....in France they stay with MRI, CAT scan and bone scan....

His biopsy puts him in GL 7....He feels numbness in feet and feels legs like wood...He is losing weight....His PSA is <0.06....Is it worrisom ???

[GP24]

I think your friend should get a second opinion to discuss these problems with a different doctor.

These hospitals offer a PSMA PET/CT in France: mediglobus.com/clinics/coun...

[Karmaji in reply to GP24]

Thanks....I feel he is in wrong hands ..at a Paris hospital and then at La Rochelle....

[LowT in reply to GP24]

There may be more than one thing going on. Need for comprehensive evaluation. Could be peripheral neuropathy.

[marnieg46]

Hi Karmaji,

If you are looking for a second opinion...

When we were in Paris in September 2019 and my husband became very ill, our specialist here in Australia referred us to a colleague of his at Pitie Salpetriere - Professor Morgan Roupret, who is also a professor at the Sorbonne University. He was excellent. Practical and direct. I now follow him on Twitter and it's fairly obvious that he's very well respected by his peers.

I know Paris is a bit of a trip from where you are located but perhaps if you want a more comprehensive assessment it might be worth it... and also Morgan might have someone he'd suggest you see closer to home once you have the issue investigated.

I do hope you get some answers.

Regards, Marnie.

[Karmaji in reply to marnieg46]

Thanks...

My friend is more rooted in Paris for consultation...French do not trust medical service of provinces...They trust Paris...I will pass this info to my friend

[Hidden in reply to marnieg46]

Happy holidays to you and Ron! 🙏❤️

[marnieg46 in reply to Hidden]

Thank you Scott. Yes it's a lovely time of the year coming up...Christmas. One of the rare times all 19 of our mob are able to congregate in the one place!!

Unfortunately the boy is in hospital fighting kidney sepsis that has developed from a UTI. The urologist is hoping that they won't have to remove his kidney. So keep us in your thougths.

Hope all goes well at yours and your get together with cujoe and Paul... sounded like it went very well. I'm yet to see the photos!! Sorry I missed it. Next time hopefully x

[Hidden in reply to marnieg46]

omg! Sepsis? Whoa Nelly . I’m sorry about that . I had UTI’s due to tubes and a foley for more than a year . Pure hell it was . This is so much suffering for the boy .. I’m praying for his kidneys … so crucial to us all ? Paul and Cujoe came and went . We hiked a bit and they mulled over pc .. These two men both 10 or more years my elder both have tremendous energy and gusto for life . They both actually out hiked me , the kid . So the beat goes on ! The mob sounds fun! Much love to you all ! Ron is always in our prayers.. 🙏❤️

[d3is4me in reply to marnieg46]

Marnie Sorry to see this about Ron We are thinking of you both and praying for good outcomes

Ross

[marnieg46 in reply to d3is4me]

Thanks Ross. Your thoughtfulness most appreciated. I’ll keep you posted. Hope all goes well for you . Marnie

[Hidden in reply to d3is4me]

🙏

[MJCA]

Hi,

It sounds as if your friend is experiencing neuropathy. The drug Neurontin/Gabapentin may assist with his issues. Bonne chance avec ton ami.

[lowT163]

after my radiation and adt I became diabetic unknown to me. The numbness in my feet and constant urinating led me to endocrinology and finding an A1C of 10 +. Rule that out.

[Boywonder56]

Heavy legs are the side effect i get from lupron....it sux...i have been excercising but think im a lil late...