Was hoping for a better monthly PSA p... - Advanced Prostate...

Advanced Prostate Cancer

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Was hoping for a better monthly PSA post Xtandi

dockam profile image
dockam
•12 Replies

Hey gang,

PSA dropped to 8.9 from 9.2 last month with a month of Xtandi 😢

Started Xtandi after a jump from 5.2 to 9.2 in a month.

Was hoping for a bigger drop, it may be the dying PCa cells releasing PSA.

Have two 1 cm pelvic lymph node that had a high activity with Axumin scan a couple months ago.

Life is still good even with #stageIVpca

Still able to do dentistry(seeing patients are an antidepressant) , hiking, and made a full blown Friendsgiving dinner last Sat

May y'all have a wonderful Thanksgiving

Much Aloha

Fight on Brothers

Randy

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dockam
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Kaliber profile image
Kaliber

Hope you have a nice Thanksgiving too brother Randy . You’ve still got lots of fire in that furnace buddy, probably that Xtandi will kick in harder in a bit ... it took me 90 days to hit nadir on it.

Best wishes for the holiday 🌻🦋🌸🌼🌈🦃🦃🦃

Come on Psa ,cooperate please ?

Magnus1964 profile image
Magnus1964

You hit it, dying cells are probably giving off PSA.

2dee profile image
2dee

I'm 78. Give the Xtandi just a bit more time.MY experience is 2018 PSA 1300+.

Lupron till 7mos ago brought PSA below 2. 7mos ago PSA spiked up above 9.

Xtandi added for 6mos brought PSA down to .3 and still falling maybe.

2Dee

StayPositive1 profile image
StayPositive1

Happy Thanksgiving Randy! I hope you can still get out for a Turkey Trot in the AM. I’m hoping to bag a mile or two myself. Cheers!

David20451 profile image
David20451

Started Xtandi after SBRT to an enlarged lymph node so cannot cannot comment on PSA. Have you considered SBRT (focused radiation) on the lymph node. I saw a urological surgeon who wouldn't consider surgery. Too dangerous in my case. Been on Xtandi for 6-1/2 years now. Keep on keeping on. Sounds like you are doing all of the right things. Happy Thanksgiving.

dockam profile image
dockam• in reply toDavid20451

Spoke to Kaiser MO and we are going to monitor monthly PSAs. If no significant drop, then a rechallenge with Taxotere in 2021.We ruled out radiation thus far, I'd rather for whole body systemic approach to get any stray PCa cells e.g. Chemo.

monte1111 profile image
monte1111

Chemo and lupron brought me from 59.9 to 7 right before the last chemo. It was over a year before Xtandi and Lupron brought me to <0.1.

j-o-h-n profile image
j-o-h-n

Patience is a virtue, have it if you can, seldom in a woman, always in a man....

Happy Black Friday...

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 11/26/2020 9:30 PM EST - HTD

dockam profile image
dockam• in reply toj-o-h-n

Patients are a plus for me 😂

j-o-h-n profile image
j-o-h-n• in reply todockam

How true......... But I call them customers.......

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 11/27/2020 3:47 PM EST

treedown profile image
treedown

I am going to count the drop as a good thing and be happy for you OK?

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