Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

2,691 members • 899 posts

All posts for June 2020

Who cares for the careers?

No plan I was rushed to hospital as an urgency staggering and vomiting and being accused of being drunk on duty by my nursing colleagues

No plan I was rushed to hospital as an urgency staggering and vomiting and being...

Kristyll

•4 years ago

2 Replies

When you were first diagnosed with an Acoustic Neuroma, what was your doctors initial advice?

Did your doctor have a treatment plan that you still follow or has this changed? This experience can be really overwhelming so we have compiled a list of...

Did your doctor have a treatment plan that you still follow or has this changed?...

Shannon_TBTC

Partner•4 years ago

2 Replies

Cancelled operation due to lockdown

Did anybody out there have there AN operation cancelled as lock down started.Has anybody had new dates yet.Mine was cancelled for 19 march..

Did anybody out there have there AN operation cancelled as lock down started.Has...

Teashop

•4 years ago

11 Replies

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Pre-op self care?

Hi all, My name is Charlotte and my boyfriend has just been diagnosed with an AN. He is hoping to have surgery in the coming months. I was wondering if anyone...

Hi all, My name is Charlotte and my boyfriend has just been diagnosed with an AN...

Charlieglebby

•4 years ago

6 Replies

2 years and 9 months after cyber knife...

Another good news, this year accoostic neuroma shrank by another 2mm so actual measure is 19mm :)

Another good news, this year accoostic neuroma shrank by another 2mm so actual m...

Joanna010181

•4 years ago

5 Replies

Community Guidelines

Welcome to The Brain Tumour Charity Acoustic Neuroma Community for support of those with an acoustic neuroma brain tumour. We’re very glad you have chosen to...

Welcome to The Brain Tumour Charity Acoustic Neuroma Community for support of t...

Shannon_TBTC

Partner•4 years ago

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Hello from Shannon at The Brain Tumour Charity

Hi Everyone! It is great to be part of this community with you all. My name is Shannon and I joined the charity at the start of the year as a Digital Support...

Hi Everyone! It is great to be part of this community with you all. My name is ...

Shannon_TBTC

Partner•4 years ago

7 Replies

Hello from Beth at The Brain Tumour Charity

Hi All, I just wanted to introduce myself, my name is Beth and I have been working within the Support Team at The Brain Tumour Charity for over 7 years. We are...

Hi All, I just wanted to introduce myself, my name is Beth and I have been worki...

Beth_TBTC

Partner•4 years ago

8 Replies

Suspected Acoustic Neuroma

Hello, I’ve been referred to see a specialist with suspected Acoustic Neuroma. I was curious as to how long everyone waited to be seen for initial appointment...

Hello, I’ve been referred to see a specialist with suspected Acoustic Neuroma. I...

Lana95

•4 years ago

17 Replies

worried about progression

Hi everyone! I'm new here; got diagnosed with an acoustic neuroma last June following the loss of hearing in my right side and a referral to ENT. I apparently...

Hi everyone! I'm new here; got diagnosed with an acoustic neuroma last June foll...

vec776

•4 years ago

6 Replies

Hello from Sarah at The Brain Tumour Charity

We're really pleased to have come on board and be part of this group. I'm Sarah and have been working at The Brain Tumour Charity for the past 2 1/2 years as...

We're really pleased to have come on board and be part of this group. I'm Sarah...

Sarah_TBTC

Partner•4 years ago

1 Reply

Operation expectations

Hello, I’m awaiting a date for surgery. I’m just trying to prepare myself mentally. How long was your surgery? How long was you in hospital for after. I have...

Hello, I’m awaiting a date for surgery. I’m just trying to prepare myself mental...

Bullpenn

•4 years ago

16 Replies

Growing again?

I have had an acoustic neuroma since 2011. For the past month, I have had a quite painful earache, more noticeable tinnitus (popping noises and whistling) a...

I have had an acoustic neuroma since 2011. For the past month, I have had a quit...

LisaBod

•4 years ago

5 Replies

Started growing again?

I have had an acoustic neuroma since 2011. For the past month, I have had a quite painful earache, more noticeable tinnitus (popping noises and whistling) a...

I have had an acoustic neuroma since 2011. For the past month, I have had a quit...

LisaBod

•4 years ago

2 Replies

Updates to this community

Dear community members, You may be aware that here at HealthUnlocked, our model works through partnering with patient advocacy organisations, who provide...

Dear community members, You may be aware that here at HealthUnlocked, our model...

MaddieHU

HealthUnlocked•4 years ago

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Do you want to be part of something which improves the lives...

How has your experience with the healthcare system been?

Are you or a loved one affected by a brain tumour? Do you ha...

Today, we'd like to hear how your acoustic neuroma has impac...

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Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

All posts for June 2020

Who cares for the careers?

When you were first diagnosed with an Acoustic Neuroma, what was your doctors initial advice?

Cancelled operation due to lockdown

Pre-op self care?

2 years and 9 months after cyber knife...

Community Guidelines

Hello from Shannon at The Brain Tumour Charity

Hello from Beth at The Brain Tumour Charity

Suspected Acoustic Neuroma

worried about progression

Hello from Sarah at The Brain Tumour Charity

Operation expectations

Growing again?

Started growing again?

Updates to this community

Search posts

Pinned Posts

Latest poll

How were you told about your/your loved ones brain tumour diagnosis?

Archive