Could it be AN?: I've had tinnitus for... - Acoustic Neuroma ...

Acoustic Neuroma Support

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Could it be AN?

Madmum31 profile image
4 Replies

I've had tinnitus for a couple of months has definitely got worse. Comes from my head, may be more right ear than left.... anyone have AN without hearing loss?

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Madmum31 profile image
Madmum31
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4 Replies
Kristyll profile image
Kristyll

I think a lot of sufferers only lost their hearing after the op. Not everyone lost it with initial symptoms

DVC2021 profile image
DVC2021 in reply to Kristyll

Many thanks

DVC2021 profile image
DVC2021

I had noticed progressive hearing loss and tinnitus in right ear and had put it down to noise exposure. I was fitted with a hearing aid in July 2020 and was referred for MRI as a precautionary measure.I had confirmation of 1.5 cm AN in November (COVID delays).

It was suggested to wait 12 month for 2nd MRI July 2021- which has confirmed growth, but still below 2cm, referred to consultant in October and have the option of surgery or Gamma Knife.

I have opted for Non invasive option and am awaiting appointment.

Does not seem to be much of a rush compared to some of the posts I have read.

Little worried maybe a coincidence but have noticed more headaches on right side since confirmation of growth.

I initially noticed some balance problems but I seem to have adjusted to these also.

Fingers crossed my symptoms do not deteriorate after the surgery.

Myangel95-12 profile image
Myangel95-12

I had hearing loss before diagnosis, was Instant then continuous tinnitus.. some people dont have total hearing loss and some only mild.. I would say speak to your doctor… the ENT tried lots of things to do with fluid levels etc before an mri was even offered, none of which answered the question to how I was feeling, then mri showed AN. Good luck and hopefully it’s not AN xx

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