I am a healthy, almost 23 year old. I was finally diagnosed with a 4.5cm acoustic neuroma in October 2020 and had it removed in November. The operation was amazing and the surgeons successfully removed 100% of the tumour, keeping all facial nerves in tact. I did however lose my hearing on the left side, so now have single sided hearing. I am now almost 5 months post op and have been noticing my blood circulation is dreadful. My hands and feet regularly go white and completely numb even when moving them around regularly. Also having my arms as high as my chest whilst in bed gets me pins and needles and dead arms meaning I have to keep them down. I also experience discomfort on my right hip, where I was laid on for 15.5 hours during my operation (long time right? 😂) which means I cannot sleep on that side anymore. I just wondered if this was a normal symptom of the tumour or surgery and if anybody else had experienced similar?
Thanks in advance x
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Mt22
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All I got to say is wow, quick diagnoses to op. I’m sat here in hospital having been diagnosed 22nd jan 21 for 4.05x 2.5. Sadly not all was removed after 17.5 hour op. I’ve had some leg nerve twinges but willl monitor this.
Very quick, I was amazed with how well everything was dealt with and super grateful. So sorry to hear they weren’t able to remove everything and you’re still experiencing symptoms. These might ease with time, fingers crossed 🤞🏻 Wishing you a speedy recovery, that’s a crazy long time to be in surgery and your body will need as much rest & love you can give it 😊
I can’t see your AN affecting your circulation in other placed. I would seek medical advise for it. What. Area are you so zi know who this wonderful surgeon is. Be kind to yourself, good luck xxx
Hi Mt22, I hope you have found the other comments helpful, we would agree that if you ever notice any side effects or changes to speak to your medical team for further advice and information. If you have any questions or would like to talk further, do contact our support team on 0808 800 0004.
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