Dry eye

[6625]

Hi it's 2 years since j had operation to debulk my AN operation was scary as it was my first ever op.all we t fine they removed as much as they needed to ,recovery was slow my face had dropped on one side ,still find it difficult pronouncing some words,my head where scar is sometimes feels like it's pulling n I suffer from terrible dry eye as still side of face not functioning properly, does any one else have these problems

[Leodo]

My wife had gamma knife radiotherapy on her AN in September last year. She has had a maseteric nerve transfer for her facial palsy and has had a weight fitted in her eyelid as it was not closing properly. The more I hear about this condition the more I realise how individual the symptoms are, best of luck with yours, it’s always good to talk

[Jmerlin]

Hi. I had a 2cm AN removed 4 years ago. The scar discomfort and dry eye have gradually got better as each year passes. It is very slow but is improving. I also think you get used to adapting to the new reality and so you don’t notice it as much. I find keeping busy but making sure I get plenty of rest helps - so an active day of cycling followed by a more restful day otherwise symptoms stack up. Good luck!

[Jogmymemory]

Hello! I am sorry you are going through this difficult time. I had AN surgically removed 10 years ago. My doc said it would be a “small bump in the road” and my life would go on as before. I was not prepared for very long and difficult recovery from that surgery. It was rough! I had significant facial paralysis and the dry eye was very painful. Initially the doctor minimized the complications but eventually recommend that I use Lacri- lube ointment in the eye and to tape it shut to sleep. It helped. I found that Press and Seal food wrap adhered to the skin and held it closed while I slept. It came off without pulling my skin and eyelashes Sustain Ultra eye drops helped too. The eye is much better now, I use an eye drop very infrequently. The facial paralysis is much improved as well. People I have met recently have told me they don’t notice it. Hang in there. Time heals and we adapt to a new normal. I hope you feel better soon!