Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

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I feel a bit of a fraud

I had Gamma Knife on Tuesday and, apart from a lack of confidence walking, the f...

Stereotactic Radiosurgery (SRS) offered at the Oxford University Hospitals - Churchill Hospital

Good day to you all. I am a 58 year old soon to be 59 (in two months' time) and ...

Apple airpod live listen acting as hearing aid

Apple air pod live listen feature. Has anyone with SSD tried the Apple airpod li...
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Just been diagnosed with AN

Hi, im 46. Last year went to the doctors with vertigo, quite bad, vomiting, dizz...

Travel Insurance

Hi everyone. I’m not sure what your experiences are of obtaining travel insuranc...

Lots of hard work and practice

I had surgery , leaving a little to stop face drop. Felt really wiped and out of...

At last

Finally...I was referred by my GP to ENT services to check for an acoustic neuro...

Anyone who had a second AN surgery?

Hi - I had my first surgery in 2019 for a 3.8 cm AN. This surgery was in India a...

Maybe Meniere`s Disease? (my hearing loss and dizziness)

I saw the ENT consultant last week - he said it may be Meniere`s disease causing...

Where is a Cerabellar pontine angle acoustic neuroma positioned ?

Is the CPA acoustic neuromas in line with our mouth / jaw line ? I had an X-r...

Droopy eyelid

Hi, did anyone get a droopy eye lid same side as their AN?

Radiation twice anyone?

Good morning. I had radiation four years ago for an acoustic neuroma and it did ...

Nausea

I have been diagnosed with vestibular schwannoma. It is 3.7cm diameter. I am awa...

I`m normal - it`s official - my MRI report says so!

Phew! Good to know I have not joined the AN club (no offence to you guys who ar...

MRI of head - my (good) experience - weird images though

I went to a mobile scanner unit in an Asda car park in Leeds. The MRI machine w...

Pain behind ear

Hello everyone, I had my surgery coming up to a year ago. The last two days I ha...

Beyond Brain Tumours survey

A huge thank you to everyone who has already taken the time to complete our Beyo...

Mystery a.n?

Hello, I have a mystery brain tumour! It was diagnosed in January as an A/N, how...

Radiotherapy at Guys hospital anyone? I need to make a decision!

So it is decision time. My 1.5cm AN has grown in a relatively short time to 2.2c...

Side effects of gamma knife

I had surgery on my Neuroma in August 2017 and again in May 2018, it took about ...

We are so deeply saddened and sorry to hear the incredibly sad news of the death of Tom Parker. Our hearts go out to Kelsey and their family

We know this devastating news will come as a huge shock and may be distressing f...

Ear/headache

Hi good morning I have been suffering with lightheaded feeling with dizziness, ...

Do you want to be part of something which improves the lives of people with brain tumours?

We are co-creating a new strategy for the future with all those who share our ai...

Post AN surgery

Has anyone had a tough time after having AN removed? I had the surgery 7 months ...

What is your dizziness like?

My first ever post in this group - any information will be appreciated. My dizz...

Dizziness.... can your body compensate in other ways?

Hi I have a small acoustic neuroma on the balance nerve on my right hand side. I...

Aggitation

Hi, I'm awaiting tests for a suspected accoustic neuroma, I feel like I'm on a v...

Hit on side of head and ear on acoustic nueroms side

Hi I was struck on the side of my head and ear AN side got pain in jaw and ear h...

Schwannoma recurrence

I had a craniotomy for a large(4.5 cm) scwannoma 6 months ago, which I'm still w...

Fast growing AN

Hi, I was diagnosed with a 10x6 AN in February 2021. After having another mri Ja...
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