Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

2,690 members • 899 posts

Sort posts by:

Just been told…I have a Brain Tumour

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific battle with T4 tonsil cancer ( which had spread into 7 lymph nodes base of...

So Im 56 and last week I was told by my Oncologist that after an 8mth horrific ...

EllieMay7

•11 days ago

9 Replies

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

I have a small AN on watch and wait I have been feeling out of sorts headache, off balance, tinnitus louder than normal. But I’m experiencing pins and needles...

I have a small AN on watch and wait I have been feeling out of sorts headache, o...

Whitneyhouston

•25 days ago

2 Replies

2 acoustic neuromas

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chance ie not NFT2.? I have an AN on the left and another on the right. One on the...

Morning everyone. Is there anyone out there who has 2 acoustic neuromas by chan...

Operalovers

•1 month ago

Be the first to reply

Want to take advantage of all our features? Just log in!

musician - hearing loss after surgery

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the...

Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in ...

domforr

•1 month ago

11 Replies

Possible AN with eye pain

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI in November 23. I am due a second scan in April to see if a very small...

Hi all. I have been diagnosed with a possible AN or Schwannoma after an MRI i...

Loonywoman

•2 months ago

6 Replies

Pink cheek, ref Rapid Access for hearing loss

Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly this is where I am now and wonder if anybody had similar without it being AN....

Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly th...

hollyrain

•2 months ago

4 Replies

Sign our open letter

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. We're calling for: 🔬Pioneering research into brain tumours. 🏥Access to...

Some decisions are tough, but a National Brain Tumour Strategy is a No Brainer. ...

Zhaleh_TBTC

Administrator•2 months ago

1 Reply

Eye twitching

Hi all, i had gamma knife in september 2023 and since then I've noticed my left eye is twitching. I think my next scan will be september this year. Should i...

Hi all, i had gamma knife in september 2023 and since then I've noticed my left ...

Cwk123

•2 months ago

6 Replies

Head tingling face, legs, and arms

Hi, I am a newbie here, so hope you are all doing as well as can be expected. for the last 12 months I have had 24/7 head tingling in random parts of the head...

Hi, I am a newbie here, so hope you are all doing as well as can be expected. f...

bubbatetley

•2 months ago

13 Replies

Carotid Artery Ultrasound Scan?

Good evening Could anyone tell me if they were sent for a Ultrasound scan prior to an MRI? My consultant said he was sending me for an urgent MRI and...

Good evening Could anyone tell me if they were sent for a Ultrasound scan prior...

BrainyJanie

•2 months ago

2 Replies

Employment Resources

A brain tumour diagnosis can mean that you need to consider adjusting your working arrangements, hours and sometimes the type of work you do. If a partner is...

A brain tumour diagnosis can mean that you need to consider adjusting your worki...

Zhaleh_TBTC

Administrator•2 months ago

Be the first to reply

spooky69

I' m doing an investigation on eyesight after surgical removal of a large AN. This in not in combination of facial palsy. I do have facial palsy but I...

I' m doing an investigation on eyesight after surgical removal of a large AN. ...

Spooky69

•2 months ago

1 Reply

mri without contrast

Hi everyone I was wondering if anyone could advise me about what to do going forward. In February 2023 I woke up one morning and I felt like the whole room...

Hi everyone I was wondering if anyone could advise me about what to do going fo...

Hidden

•3 months ago

2 Replies

Hearing

Hi I had my AN debulked in 2016,it was 28mm they operated and shrunk it to 12mm,I was left with facial palsy which in time got better,I have really bad dry...

Hi I had my AN debulked in 2016,it was 28mm they operated and shrunk it to 12mm,...

6625

•3 months ago

3 Replies

Total hearing loss

After having MRI of auditory meatus both sides in December (total hearing loss) I had a further MR scan of neck with contrast and now have received a...

After having MRI of auditory meatus both sides in December (total hearing loss) ...

Acoustguit

•3 months ago

Be the first to reply

MRI results

I had my annual watch & wait MRI October 13th 2023 and after leaving messages for consultant's secretary and emailing the skull based unit at the QE...

I had my annual watch & wait MRI October 13th 2023 and after leaving messages fo...

Tigerlily15

•3 months ago

15 Replies

Things Changed yesterday.

Hi again everyone, Well Yesterday I went for my run , but halfway through something odd happened. As I said previously I only got slightly dizzy on standing...

Hi again everyone, Well Yesterday I went for my run , but halfway through somet...

Reddington__

•3 months ago

7 Replies

Hello< I have just been diagnosed with a AN measuring 14mm, I am seeing the consultant on 8th Feb but it seems I am on the watch and wait!

The whole story, the truth and nothing but the truth! I developed Tinnitus mildly I'd say about six months ago but I have always had neck issues, been having...

The whole story, the truth and nothing but the truth! I developed Tinnitus mild...

Joker2768

•3 months ago

2 Replies

Facial palsy recovery

Hi all, I had my AN surgery in 2018 and after that I did physio for a while for the facial palsy. They also used to give me Botox injection on my chin to...

Hi all, I had my AN surgery in 2018 and after that I did physio for a while for ...

Frooti

•3 months ago

4 Replies

Fined for my Accoustic Neuroma

Hi, Following a recent MRI during which my AN was shown to have increased in size, I have also noticed a change in my symptoms. Although unilateral hearing...

Hi, Following a recent MRI during which my AN was shown to have increased in si...

roland0302

•3 months ago

16 Replies

waiting

Hi can anyone help as to how long I may to wait to hear from the ENT department regarding scans etc. I was referred 2 weeks ago by A&E who picked up my Neuroma...

Hi can anyone help as to how long I may to wait to hear from the ENT department ...

JoanneSP

•3 months ago

4 Replies

MRI results and ENT update

Hi, I have had tinnitus since May 2022 and developed pulsatile tinnitus last year March. I had an MRI scan a few weeks ago and have had a letter come through...

Hi, I have had tinnitus since May 2022 and developed pulsatile tinnitus last yea...

Shantelle00

•3 months ago

8 Replies

Waiting and Wondering

Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in my left ear around July of 2023. In December of 2023 I began experiencing...

Hello everyone. I'm a 61 year old male and I started experiencing tinnitus in ...

murphyzlaw

•3 months ago

1 Reply

Diagnosed today with an acoustic Neuroma.

Hi Everyone. I have just been told this morning that my MRI confirmed an acoustic neuroma. The ENT Doctor said he is now referring me to a specialist in...

Hi Everyone. I have just been told this morning that my MRI confirmed an acoust...

Reddington__

•3 months ago

32 Replies

Dental implants...should I be concerned?

Good morning, I'm newby to this group and wanted to throw a question out there. First off, I have an acoustic neuroma and found this out about 7 years ago via...

Good morning, I'm newby to this group and wanted to throw a question out there....

Go2golf

•4 months ago

1 Reply

Head Pins and Needles daily for a year

Hi to everybody on this brilliant Forum.. I hope you all had a good Christmas! I am really struggling with awful head pins and needles for over a year now...

Hi to everybody on this brilliant Forum.. I hope you all had a good Christmas!...

bubbatetley

•4 months ago

4 Replies

Support Team Christmas opening times

We know that this time of year can be difficult for many in the brain tumour community, which is why our Support Services will still be opening at reduced...

We know that this time of year can be difficult for many in the brain tumour com...

Zhaleh_TBTC

Administrator•4 months ago

Be the first to reply

Operate or not. No win situation.

I was diagnosed in 2015 with a smallish A.N. and have been on a watch and wait programme since then.I was diagnosed as bilaterally deaf. This year I was called...

I was diagnosed in 2015 with a smallish A.N. and have been on a watch and wait p...

Delgirl1

•4 months ago

3 Replies

Trigeminal Neuralgia

some few months ago, I wrote about random short head aches last perhaps just a few seconds with many every hour. After many months of trials with...

some few months ago, I wrote about random short head aches last perhaps just a f...

GGourmet

•4 months ago

8 Replies

Not sure what to do next

Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went to the doctors. It's a very high pitched ringing and varies between loud and...

Hello. I suddenly developed loud tinnitus in my left ear 3 months ago and went ...

Sootymouse

•4 months ago

23 Replies

Write a post or ask a question

Search posts

Pinned Posts

See all

Beyond Brain Tumours survey

Do you want to be part of something which improves the lives...

How has your experience with the healthcare system been?

Are you or a loved one affected by a brain tumour? Do you ha...

Today, we'd like to hear how your acoustic neuroma has impac...

Latest poll

See all polls

How were you told about your/your loved ones brain tumour diagnosis?

Vote

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Acoustic Neuroma Support | HealthUnlocked

Acoustic Neuroma Support

Just been told…I have a Brain Tumour

I am experiencing pins and needles in my lower arms and lower legs also bad cramp in my legs and my speech is stuttering .!

2 acoustic neuromas

musician - hearing loss after surgery

Possible AN with eye pain

Pink cheek, ref Rapid Access for hearing loss

Sign our open letter

Eye twitching

Head tingling face, legs, and arms

Carotid Artery Ultrasound Scan?

Employment Resources

spooky69

mri without contrast

Hearing

Total hearing loss

MRI results

Things Changed yesterday.

Hello< I have just been diagnosed with a AN measuring 14mm, I am seeing the consultant on 8th Feb but it seems I am on the watch and wait!

Facial palsy recovery

Fined for my Accoustic Neuroma

waiting

MRI results and ENT update

Waiting and Wondering

Diagnosed today with an acoustic Neuroma.

Dental implants...should I be concerned?

Head Pins and Needles daily for a year

Support Team Christmas opening times

Operate or not. No win situation.

Trigeminal Neuralgia

Not sure what to do next

Search posts

Pinned Posts

Latest poll

How were you told about your/your loved ones brain tumour diagnosis?

Archive