Feeling more forgetful these days... - Young Adults with...

Young Adults with Melanoma

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Feeling more forgetful these days...

Redjenn profile image
5 Replies

I'm 31 with stage 3c diagnosis. I have been doing Yervoy treatments just over two years now. I feel like I have lost a lot of brain power since beginning treatments. I've become annoyingly forgetful and make a lot of stupid mistakes b/c of it. Sometimes it's kind of scary. I used to have a good memory. Has anyone else experienced this? Is it normal? Will my brain get back to normal after treatment ends?

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Redjenn profile image
Redjenn
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Robynfine profile image
Robynfine

I feel the same way. I don’t know if it’s stress, Yervoy, getting older, or what. But I don’t think you’re alone. I haven’t ever asked my oncologist about it. Have you? I’d be curious to what he or she says.

Redjenn profile image
Redjenn in reply to Robynfine

She just said there is a thing called "chemo brain" and even though I'm not on chemo, I'm still having toxins dumped into my system, so it could be something similar to "chemo brain."

kboudreau profile image
kboudreau

I was on this for about 7 months before the side effects got too bad... I had always associated the lack of memory with stress but yes it was certainly a thing!! My last treatment was in Aug 2017 and I do feel that my brain is feeling more and more "normal" as time goes by.

You must be closing in on completing treatments, keep it up!

Redjenn profile image
Redjenn in reply to kboudreau

Yes, I have 3 more left! Good to hear it will return to more normal! What kind of side effects did you experience?

kboudreau profile image
kboudreau in reply to Redjenn

Colitis (10+ times per daily/night and waking several times during the night), this is the one the took me out of treatment. I also experienced some nausea, headaches and small rashes. I was put on prednisone to help with colitis and ended up needing remicade infusion to finally make it go away. As I closed in on being done with prednisone I began to have joint problems. The joints are still an issue and almost 9 months later i am still on a low dose of prednisone to help. Still hoping my bowels will return to normal someday, but a small price to pay in the end!!

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