Waiting for a biopsy...: Hello ladies, I am... - Women's Health

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Waiting for a biopsy...

meggiemog profile image
8 Replies

Hello ladies,

I am really sorry this is going to be a long post - so apologies! I am 52 years old, had ovary & tube removed at 28 due to a twisted cyst, then went through menopause 2 years later. In last few years I have had a massive fibroid growing outside my womb which meant I had a total hysterectomy to remove what bits weren't removed the first time. On top of this I had to have surgery to repair a hiatus hernia and stop acid reflux! So each time I think great! Done! Sorted! Only.... last 2 years or so I have been having all kinds of issues I thought it would be linked to auto-immune stuff - too much to list here and it would just bore you all half to death. After much to-ing and fro-ing to various hospital departments, I end up at rheumatology, who did a spinal MRI scan, and find what they tell me is a cyst in my gluteus maximus (basically top of my backside muscle) and hey it's nothing -but we'll do an ultrasound to check . So ultrasound is done, and after waiting for the results they say - yes you have a lesion - we don't know what it is so we would like to do an ultrasound biopsy. I can actually feel this lesion, it's hard and doesn't move. I have now been waiting 3 weeks to get an appointment to find out what this is - and it's really not great. I keep snapping at my poor hubby. The worst of it is no one has actually spoken to me about this - I have only got copies of the medical letters sent to my GP, and I wouldn't have got them if I hadn't asked. Today I tried to find out what was happening to be told the radiologist hasn't looked at the scan yet ..... erm - yes they have?!! I'm guessing it must be a more senior radiologist. The time scale is awful. It took 6 weeks to get MRI result as it went to an MDT meeting, another 2 weeks for the ultrasound, then another 2 weeks after that to get the result of that - and now I am another week down the line from there. I hate to say - but if this was a lump in my breast or a problem lower down I would have had all the tests done by now. Is there any of you lovely ladies who have had a similar experience? Thanks for reading - you need a medal :-)

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8 Replies
Cooper27 profile image
Cooper27

I don't have anything helpful to add, but hope you get some feedback soon.

meggiemog profile image
meggiemog in reply to Cooper27

Thanks anyway. I can't see any of these groups that fit this really! Maybe there should be an under investigation group!

LuverlyLucie profile image
LuverlyLucie

I went to the GP 2 weeks ago due to painful ovaries. I had my bloods done the same day but my transvaginal scan is not until mid November and my smear plus swabs is end of November. So, it takes a while. I think I’m unlikely to get the results by Christmas so until then I’ll continue to be worried, tired and in pain.

meggiemog profile image
meggiemog in reply to LuverlyLucie

Hi LuverlyLucie,I actually ended up having a very detailed focused MRI rather than a biopsy in the end as my lesion is in an area they classed as 'too dangerous'. I am waiting for my results now and I get where you are, as all you want is your tests done and results. It seems an eternity, especially when you are in pain. Just hang in there - I am sure if they find anything worrying they will deal with it swiftly.

LuverlyLucie profile image
LuverlyLucie in reply to meggiemog

Many thanks for your kind words. That’s really helpful. I hope you find out what yours is soon and I’m really sorry to hear you’ve been through so much.

meggiemog profile image
meggiemog in reply to LuverlyLucie

I have to say ovary pain is the worst , so I hope they have given you some pain relief in the mean time. xx

Darceydoo profile image
Darceydoo

Hi if I where you I’d ring my GP and insist they get your results which they can do!If it’s affecting you mentally.

meggiemog profile image
meggiemog in reply to Darceydoo

I am waiting till the end of the week to ring for my results. Radiologist told me it can take 10 working days for the resultsto be written - Friday will be a couple of days short of that - I have a busy job so it will keep my mind off it until then anyway. GPs will not tell me anything whilst I am under the hospitals care.

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