wobblybeeAdministrator

🤔 Was it simply the Receptionist who gave you this information, or a GP who refused it because of cost.

Nitrofurantoin is available on prescription. It comes as capsules, tablets and a liquid that you drink.

Copied from nhs.uk

flowerygirl in reply to wobblybee

The receptionist said the GP said she can’t prescribe it because of the cost

I spoke to 111 just there hoping they’d prescribe nitrofurantoin liquid version but a longer course

But instead he’s just prescribed amoxicillin again, which was the first medication I took that didn’t help

Reply (0)Report

wobblybeeAdministrator in reply to flowerygirl

The GP is correct in saying there is a very high cost for the liquid, it could be the practice budget won’t cover it. Capsules shouldn’t be opened, but would it be possible for you to crush tablets in water 🤔I have difficulty with soft capsules myself, and have resorted to using a spoonful of natural yogurt to get them down.

As a last resort, would you be prepared to pay for a private prescription 🤔

Consider alternative antibiotic if clinically appropriate

Do not open modified release (MR) capsules.

Open 50mg or 100mg immediate release (IR) capsules and disperse contents in water.1

Crush and disperse IR tablets in water for enteral feeds only1

Nitrofurantoin 25mg/5mL oral suspension sugar free (LICENSED, VERY HIGH COST)

Reply (1)Report

flowerygirl in reply to wobblybee

No I’m on universal credit, I’ve had this UTI for two months and spent a fortune on liquid paracetamol. I’ve had this problem since I was in my teens, I have bad health and tried every size tablet or capsule there isn’t a way I can swallow it; even codeine. I get the same speech from my drs everytime I ask for liquid it’s quite hard because of course I have tried and I keep trying to swallow tablets

Reply (0)Report

wobblybeeAdministrator in reply to flowerygirl

🙂 I hope you can get this resolved by 111

Reply (0)Report

HTme

Flowerygirl, I'm so sorry you're having such a tough time. Several friends who have had repeated amd long lasting uti's found taking d-mannose helpful in getting rid of them and preventing reoccurence. It's a natural sugar found in cranberries and seems to bind with bacteria in the bladder so they get expelled from your body. It's available in powder form in Boots, Holland and Barrett or Amazon. Unfortunately its not cheap (£20ish) so perhaps you could ask a friend for a gift or as you're receiving benefits your GP or the council might have advice on accessing a small grant you could use for your health care.

The NICE clinical guidelines have more info on UTI treatments including D-mannose, you could google it before speaking to your GP again so you have the same info they do. Good luck and I hope you feel better soon.

Kidney2014

Sucks you’ve suffered so long without any real solutions. I have recurring UTIs and once had one for over two months with same course as you. Ended up in the ER (I’m in the states) with sepsis from UTI. Spent a week there on IV antibiotics until my cultures came back negative. Afterward I was sent to a urologist for further examination. I tend to have a little urine retention. Was advised to try d-mannose and cranberry tablets that were super potent. Both are over the counter and that regimen helped. Ultimately I was prescribed bactrim as prophylaxis.

Not sure how the system in the UK works. Can you be referred to a urologist? As a female, they can look at your bladder as well as your pelvic floor.

flowerygirl in reply to Kidney2014

After this course of antibiotics I’m definitely gonna ask this because I’m getting so ill with this

Reply (0)Report

Haych42

Hello flowerygirl,Reading this makes me feel so sorry for the problems and pain you're having. You might read this and think. Hmm that won't work, I thought just that. Its really worth trying, surely. I'd been on Nitrofuritoin for about 3 years and had to change every month to another antibiotic. Every time I tried to cut down, bang another infection would return. I'd had enough! I decided to see someone private. They examined me and told me that I'd severe dystrophy. Dryness down below. She prescribed me with a cream that I use once every other night. Look into it, please. I've not had any infections and this has been a couple of years free of that horrible I need a wee and achey feelings. The one I'm prescribed is Ovestin. I've also spotted advertised and tried the Vagisan moist cream which works just as well (you can buy this one from chemists) If only my dr recommended this all those years and antibiotics ago🙄. But please read up on these creams as you said you've health problems. I really hope you and others get to try this out. Fingers crossed or legs crossed 🙏

Wizboz

Omg you poor thing🙏I have had the 3 day course too... which like you ..the infection felt like it was still there... I’m lucky in that my surgery are fantastic snd as I have stage 3 ckd..I get treated really well. You definitely need a longer course and for the receptionist to be rude to you is awful. Keep on with the 111 as they seem to be your best option... I’ve had before bicarbonate of soda mixed with water and this helps as it soothes the pain when weeing. 🙏🙏I’m thinking of you flower girl😘😘

Anonduck

I would hugest that maybe you try seeing your gp again to try nhs find the cause, maybe SJ if you can be referred to a specialist? As if you can figure what’s causing the issues you might be able to lessen how often you are suffering. However remember referral take time. As for the tablets I used to struggle with swallowing them, but I realised that my issue was in my head, my brain telling me I didn’t want them, I got better but still sometimes struggle, I find looking down while swallowing them helps because most people look up to take medication but the pills float, so you end up swallowing all the water and being left with the pill. Where as when you look down the pill floats at the back of your mouth and I find it goes down a bit easier. I hope you get the answers and help you need.