What’s wrong with me?!?!!!! - The Endometriosis...

The Endometriosis Foundation

1,074 members108 posts

What’s wrong with me?!?!!!!

Beth1002 profile image
2 Replies

I’m a little bit lost...I’ve been seeing a doctor(s) for about 4 years with severe pelvic pain, heavy bleeding, irregular bleeding and bloating etc all endo symptoms. Multiple hospital stays and too many tears. I’ve had ultrasounds that have been clear and sometimes cysts. I had a lap last month and was told I was clear of any endo. My doctor is a specialist I think but I just have a gut feeling somethings been missed. I’m 24yrs old and dependent on tramadol and now I have oramorph at home when it gets too debilitating. I had the Mirena coil fitted too and been told to expect pain but this can’t just be from that?! I honestly don’t know what to do next. I’ve fought for an MRI and it’s happening next week but it’s only looking at my back because I said the pain radiates there.

If you’ve got this far I appreciate it and any help/advice is highly appreciated. My mental health is taking a huge hit from this all. I feel like I’m going crazy or something like being told it’s all in my head

Written by
Beth1002 profile image
Beth1002
To view profiles and participate in discussions please or .
Read more about...
2 Replies
FluteE profile image
FluteE

I’ve had a IUD on and off (only when trying for and being pregnant with my last child now 17yrs old). I recently started having low abdominal pain, back pain, waves of nausea, and constipation. As several weeks passed, I was able to narrow it down to my left side. I saw my gyn. He removed my Mirena (I’m 55... no longer needed) and said anytime he does a removal, he sends it off. He called back stating I had actinomycosis... a rare bacteria known to be associated with long term use (even though I’ve always had them changed out at the appropriate time). I have now been on IV antibiotics for almost 6 weeks through a picc line and will proceed with 6 months of antibiotics by mouth. Although rare, I would recommend a blood test since ultrasounds and mri’s are not a good diagnostic tool for my diagnosis. (I had those as well). Good luck!

LoLoLeanne profile image
LoLoLeanne

check out my profile, I’ve had something very similar. Been totally dismissed and am having to just deal with it x