multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma
chen5631867 in Myeloma America Support2 years ago
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, th...
Multiple Myeloma treatments/side affects /90 year old focus
Plankl in Myeloma America Support3 years ago
Need help on side affects
Velcade gave me neuropathy in thighs
Revlibin gave me rash
Just starting Ninlaro
Concerned that clinical studies do n...
Take 5 Minutes to Share Your Perspective!
tclementi in Myeloma America Support2 years ago
Dear fellow patient or family member,
For the second year in a row, Andrew has been invited to be a patient representative on the President’s...
solitary plasmacytoma did not respond to radiation. Anyone else with this out there?
darst in Advanced Prostate Cancer9 months ago
I was diagnosed with a solitary plasmacytoma and had radiation but it had no affect on the plasmacytoma. I feel all alone in this. I do not ...
Melza27 in Leukaemia CARE a year ago
Hello my mum has become unable to do any basics like eat walk pick things up no coordination or balance it's like she's gone back to baby st...
nggu in Myeloma America Support5 years ago
My name is nggu and I am from Copenhagen, Denmark. I am 73 years of age.
I was first diagnosed with MM on Dec. 20, 2012. At that time I had a...
cales in Myeloma America Support4 years ago
Hi, I have just joined as my mum (she is 83 years old ) was recently diagnosed with multiple myeloma she started treatment .....after 4 days...
U.K. news - Enzalutamide (Xtandi)
pjoshea13 in Advanced Prostate Cancer3 months ago
\"Enzalutamide (Xtandi) is a type of hormone therapy that is already given to some people with prostate cancer that has spread to other part...
Aggressive Follicular Lymphoma Now In NIH CAR-T Clinical Trial
wmay13241 in Non Hodgkin's Lymphoma Friends3 years ago
In 2011 my 64 year old (at that time) wife was diagnosed with follicular lymphoma. She relapsed within 4 months of R-CHOP (6 cycles) and wit...
Drugs to Avoid with CMT
phicam in Charcot-Marie-Tooth UK2 years ago
Stumbled upon this and thought people might find it useful.
It was in a published paper called Medication-induced exacerbation of neuropathy ...
Does zytiga cause pneumonia?
Je1234 in Advanced Prostate Cancer4 months ago
Dad’s in the hospital with his 3rd case of pneumonia. The doctor stopped the zytiga because she said this was causing it. I asked could it b...
khenderson in Non Hodgkin's Lymphoma Friends3 years ago
Just wondering if anyone has tried natural alternative treatments to treat their lymphoma?
Introduce yourself to the community
LuciaHU in Myeloma America Support5 years ago
We’re excited about what you can go on to do for those affected by cancer. We hope you are too. Write something today about your experience ...
Zoom Zoom, CAR-T Cells to Treat Myeloma
Janstafl in Myeloma America Support5 years ago
An exciting approach to refractory myeloma is the development of CAR-T cells to recognize and kill the malignant plasma cells which mutate a...
KimMarr in Myeloma America Support5 years ago
Hi, My name is Kim Marrelli. I was diagnosed with Myeloma 4 years ago. I am considered high risk with t(4:14) (MMSET/FGFR/IGH). To be hone...
My Journey so far...
FSMBeerMan in Advanced Prostate Cancer2 years ago
My diagnosis goes back to June 1st, 2009. I was 42. Biopsy showed all 12 sectors with 4=3=7 Gleason. July 23 had prostate removed. The p...
pjoshea13 in Advanced Prostate Cancer3 years ago
A PCa study involving apigenin has been appearing roughly every 2 months this past 18 years. A bit frustrating, since while apigenin is fou...
If yr PSA reading is Undetected?but bone scan shows slight dark shadow on lower vertebrae?
Nuray in Advanced Prostate Cancer2 years ago
High folks,quick up date?I recently finished my Radiothereapy about two months ago?saw my Onc and complaint about back pain as I was paintin...
59 year old female
Lovinglife11 in Leukaemia CARE a year ago
Diagnosed with ALL in 2011, really had a tough time for a few years but now enjoying life and loving my family. My health is generally good ...
Drugs that Act as Inhibitors of NF-κB.
pjoshea13 in Advanced Prostate Cancer8 months ago
No, I haven't joined the other side, but in a group this size a fair number would prefer a legitimate drug to a handful of polyphenols gener...
Imbruvica side effects
ralexander in CLL Support Association4 years ago
I've taken Imbruvica (Ibrutinid) for nearly three years and it quickly put my MCL into remission. I quickly had the side effect of diarrhea,...
How were you diagnosed with multiple myeloma? Feel free to reply to expand on your diagnosis experience.
tclementi in Myeloma America Support3 years agoPOPULAR
Lesion at T10
rhbishop2 in Advanced Prostate Cancer2 years ago
I'm now nearly 8 years since diagnosis. RRP and EBRT failed to reduce my PSA below 2. At the beginning of treatment a bone scan showed a pro...
putting on tons
arvine in PMRGCAuk2 years agoPOPULAR
well as many of you may recall, i started on 40 mg pred, last oct, am now down to 10mg since e 8, as per rheumatologist instr, for those man...
High WBC and it does matter to my doctor
gemit2000 in CLL Support Association2 years agoPOPULAR
I think perhaps I should print out Maggie_b's post from yesterday, \"High WBC but it doesn't matter\" to give to my hemo/oncologist (along w...
Cómo supe del Mieloma Múltiple
natydem in Mieloma Múltiple Chile5 years ago
La primera vez que escuché de esta enfermedad fue por la mamá de una amiga. No entendí mucho de qué se trataba, ...
Alguien tiene cancer mieloma múltiple joven ??? Por favor contar experiencia
Piafuentes77 in FNCChile5 years ago
Partner with us
Start a Community