Posts - Vasculitis UK | HealthUnlocked

Administrator•6 days ago

Vasculitis UK is supporting this study and we would welcome those eligible to take the opportunity to have their say. Your personal experience and opinion...

Invitation to participate in a study

Vasculitis UK is supporting this study and we would welcome those eligible to ta...

https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please follow the above link for more details 👆

Administrator•7 days ago

6 Replies

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Ramadan Autoimmune Health Survey (including vasculitis)

https://www.vasculitis.org.uk/news/ramadan-autoimmune-health-survey Please foll...

Administrator•9 days ago

hi Does anyone know if partners / carers of clinically extremely vulnerable people are eligible for the Covid boosters in April. I am under 75 years of age....

Covid booster vaccines

hi Does anyone know if partners / carers of clinically extremely vulnerable pe...

Main1234

•9 days ago

5 Replies

methotrexate Injections

hi there everyone. I’m starting injections for methotrexate soon. I’m currently on the tablets. And I haven’t taken the injections before, does anyone have any...

hi there everyone. I’m starting injections for methotrexate soon. I’m currently ...

Cheese27

•13 days ago

5 Replies

cutaneous vasculitis - serous drainage

At the weekend I knocked off a new scab on my right foot. I have since intermittently had a clear lliquid dripping from the site. This is the third time in...

At the weekend I knocked off a new scab on my right foot. I have since intermitt...

Lovsterlover

•14 days ago

4 Replies

Covid Vaccines for Immune Suppressed - Any News?

just sending this out there. Has anybody got any information. I am now over 6 months since my last jab. Our pharmacist has said possibly from April 22nd but...

just sending this out there. Has anybody got any information. I am now over 6 mo...

Investigator1

•16 days ago

23 Replies

Small Vessel Vasculitis and Methotrexate

hi i am currently on methotrexate and am struggling really badly with the exhaustion side of the drug. Does anyone have any tips on how they dealt with the...

hi i am currently on methotrexate and am struggling really badly with the exhaus...

Cheese27

•19 days ago

11 Replies

skin tears

I have vasculitis, MPA, microscopic Polyangiitis, and have been on prednisone for 3 years. Currently I am on 2.5 mg. Recently I developed several skin tears...

I have vasculitis, MPA, microscopic Polyangiitis, and have been on prednisone fo...

GinnyMa

•23 days ago

6 Replies

Methotrexate and antibiotics

For anyone on methotrexate (presently or in the past), if you've had infections what antibiotics have you been prescribed? My sister has a UTI (symptoms only...

For anyone on methotrexate (presently or in the past), if you've had infections ...

Grizzly-bear

•29 days ago

15 Replies

Vasculitis Awareness Evening- 12 March

Last Tuesday at the Health Innovation campus in Lancaster a between 40-45 Vasculitis patients attended and Vasculitis Awareness evening. The event was...

Last Tuesday at the Health Innovation campus in Lancaster a between 40-45 Vascul...

Jann

•1 month ago

3 Replies

ANCA Vasculitis - Are you interested in taking part in the HAVEN Trial?

https://www.vasculitis.org.uk/news/are-you-suffering-with-anca-vasculitis

For those with ANCA associated vasculitis and renal involvement in the UK Clinicians are worried about overtreating patients and adding side effects of long...

Administrator•1 month ago

7 Replies

A questionnaire for those with ANCA associated vasculitis and renal involvement in the UK

For those with ANCA associated vasculitis and renal involvement in the UK Clini...

Administrator•1 month ago

Do you live in Spain? Or will you be in Barcelona on the 6th of April? Would you like to come along to a vasculitis patient event in Barcelona on the 6th of...

Vasculitis Patient Event in Barcelona, 6th April 2024

Do you live in Spain? Or will you be in Barcelona on the 6th of April? Would yo...

Administrator•1 month ago

Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset...

Medication for Vasculitis

Hi. I have had Vasculitis for four years and my current medication is Prednisolo...

oscar294

•1 month ago

5 Replies

Selbourn

I am now having periods of dizziness and vertigo, I think this is caused by my Vasulitis is this possible? David

I am now having periods of dizziness and vertigo, I think this is caused by my V...

Selbourn

•1 month ago

7 Replies

cutaneous vassculitis

good morning everyone. I have had a very painful flare since April last year. My rheumy has started me on asathioprine 50mg again and 10mg prednisolone. It...

good morning everyone. I have had a very painful flare since April last year. My...

Lovsterlover

•1 month ago

3 Replies

Inspiring the Scientists of Tomorrow

Inspiring the Scientists of tomorrow! Vasculitis UK is so pleased to announce that we have co-sponsored the 4th Annual "Science in Medicine School Teams...

Inspiring the Scientists of tomorrow! Vasculitis UK is so pleased to announc...

thankyou for your reply . I was afraid it was caused by the infusion . It is the only medication that had worked for me , so I’m really upset . I should be...

Administrator•1 month ago

2 Replies

white blood cell

thankyou for your reply . I was afraid it was caused by the infusion . It is the...

artists

•2 months ago

l have a low neutrophil count l know this can be caused by the immune system , but what does it mean ? How common is it ? Can l still have rituximub treatment...

white blood cells

l have a low neutrophil count l know this can be caused by the immune system , b...

artists

•2 months ago

2 Replies

Selbourn

Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituximab and of course 125mg of prednisone first. All good apart from little sleep...

Two weeks ago I was given, what the Rummy called a maintenance dose, of Rituxima...

Selbourn

•2 months ago

4 Replies

Rare Disease Day

On the rarest day of this year we celebrate #RareDiseaseDay Spread the word in support of the #raredisease patients, the people who support them and the...

On the rarest day of this year we celebrate #RareDiseaseDay Spread the word in ...

Administrator•2 months ago

I've been on prednisolone for 10 years. Can't get off it. Even with nucala injections every 4 weeks. I had churg Strauss syndrome. And still on 11 drugs to...

Robstevens

I've been on prednisolone for 10 years. Can't get off it. Even with nucala inje...

Guccibee

•2 months ago

8 Replies

Avacopan side effects

Hi All, Could anyone please tell me if they are suffering from any Avacopan side effects, I’m off prednisone now and purely on Avacopan but getting lots of...

Hi All, Could anyone please tell me if they are suffering from any Avacopan sid...

Robstevens1970

•2 months ago

12 Replies

Covid Vaccines - Update

Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also due another dose of rituximab and was hoping to get it done first. Just seen...

Hi All I’ve been trying to find out when we’re next due a vaccine as I’m also d...

Galaxy2

•2 months ago

I have GPA and recently noticed that one half of my scalp is sore to the touch but the other side isn't. I am in remission and not on any meds for my GPA...

Scalp nerve pain

I have GPA and recently noticed that one half of my scalp is sore to the touch ...

Red-head44

•2 months ago

7 Replies

Patient awareness evening

Members of Renal team at Preston Royal are running an patient awareness evening March 12 at Lancaster University Innovation Centre Living with vasculitis is...

Members of Renal team at Preston Royal are running an patient awareness evening...

Administrator•2 months ago