We, at Vasculitis UK would like some help please THIS IS VERY IMPORTANT

[John_Mills]

.. if you have received treatment with Rituximab, please could you contact John Mills either by email [e-mail] or telephone [phone] He will explain why and what he would like you to do.."This is very important, it could help with all future use of using RTX...."

[wooddustaffected]

Hi John sounds urgent and veryworrying that if you can't put it on here. I hope there's not a problem with it. You hear about these things don't you. Can you let me know please as both me and my husband have had it/are still having it for our WG. I have emailed you as you asked. Can you let me know if my email gets through to you?

[John_Mills Volunteer in reply to wooddustaffected]

Don't worry it is a positive thing we are doing all in the interest of Rituximab becoming more readily available for everyone. I will answer you email

all the best

John

[wooddustaffected]

That's good to hear.

[John_Mills Volunteer]

We have received about 50 responses to this appeal, which is amazing!! John has now received instructions on what to do next so will be in touch. If there is anyone else out there who is taking Rituximab or has had RTX please get in touch, it really will benefit everyone who has vasculitis in the future for having access to Rituximab. thank you

[kleeny in reply to John_Mills]

my wife ,kathleen has been on rituximab for 7 months for WG,brilliant compared to methotrexate and cyclophos.,both of which did nothing but give horrendous side effects.