New "Understanding Vasculitis" information leaflet now available

[John_Mills]

A simple vasculitis information leaflet to share with friends family and work colleagues to help them understand all about Vasculitis.

[deniseann]

I would like a copy ,were can i get one please

[Ziggy]

Do not seem to be able to find the leaflet?

[JimL]

Ditto to the two replies.

[John_Mills Volunteer]

if you send me an email I can post you the leaflet... [e-mail] if you would like more than one please tell me how many. Hopefully soon it will also be available on the new website as a pdf document.

Susan

[JontyW]

Re .. "Hopefully soon it will also be available on the new website as a pdf document."

I have been trying to access an online version of "Understanding Vasculitis" leaflet .. but to no avail. I cannot find it either on the V-UK website or HealthUnlocked site.

Please would someone send me the link .. thank you.

[Suzym2u Moderator Vasculitis UK in reply to JontyW]

I hope it will soon be available on the website too as a pdf document JontyW... it would make it so much more accessible for so many people with Vasculitis and their families.

[PatriciaAnn in reply to JontyW]

Hi Jonty

Sorry I thought I'd replied before about this when the subject was raised before, but possibly I just thought I had. The current Understanding Vasculitis leaflet is not on any website. In its current format it does not lend itself to PDF-ing for downloading. You can obtain a copy/copies by e-mailing John Mills and he will post as many copies as you request.

PatriciaAnn

[JontyW]

This document is all you need to give to your work colleagues. Just email them this link ...

google.co.uk/url?sa=t&rct=j...

[John_Mills Volunteer in reply to JontyW]

Thanks Jonty, ARUK asked me to review this booklet some time ago, before it was published. I thought it has several good features and gave it the OK. But it is not intended for the same "market" at all. The ARUK booklet is really aimed at newly diagnosed people who want a basic understanding. Our Understanding Vasculitis leaflet is a much cheaper double fold A4 leaflet intended to give those with no knowledge of vasculitis some concept of what the disease is about and how it affects people. It is very popular for showing to friends, family, work, colleagues, employers and for fund raising events and funerals. It is not readily downloadable due to the graphics.

ARUK is a large organisation with a large budget, a large office and quite a few employees. We are small, with no office and no employees. We don't pretend to compete.

[cedric in reply to John_Mills]

hi john can you please send me a copy

[mickt]

Hi John is it possible to get the understanding vasculitis booklet please ,I think you still have my details ,much appreciated.

[John_Mills Volunteer]

Hi Mick - I probably have your details but I don't know how to identify them. Just send me your postal address to [e-mail] and I will stick some in the post for you.