thanks heaps all of you for your answers.
I am a bit confused. First of all what do you mean by ANCA?
What l was trying to consider in the difference diagnosis for different diseases in accordance with P-anca and C-ancer, also in relation to MPO and PR3.
Just curious to know the ones who tested positive for P or C Anca, did you also test positive for MPO Or PR3? do they normally go hand in hand? The only reason l am asking, specialist seems to think with only P-Anca, isn't enough to say l have vasculitis. He said other blood work would also show up abnormal, and apart from my ACE levels everything else is normal. Apart from my haemoglobin, which has been on the lowish side all of my life.
Having a biopsy would be great if only they knew where to biopsy from.
My symptoms are pretty vague and they wouldn't even know where to start with me. Initially they were going to take it from the skin, but the doctor said he didn't think it would show anything. As l just got bitten by sand flies and it was hard to know if it was anything that could help in the diagnosis. He then said, he would take a sample of my stools for Amyloids. But he also doesn't think l have that, as my tongue is very normal looking. Sarcoidosis it could very well be, but that also will need a biopsy. I just want to get diagnosed, l am sick of waiting.
walking on cotton wool
buzzing in head
left ear cartilage sore
lately, arm feeling numb during sleep at times
sore knuckle and ankles
numbness in left toes
burning hands and feet and kind of buzzing in legs, which have now gone, as a result l have been diagnosed as having Sensory Polyneuropathy.
All of these symptoms come and go. The worst out of all these is the floaty feeling. Like l am disconnected to the world, like l am not really present. This gets me so down and l get so depressed and anxious and cry all the time.
It usually lasts for 3 weeks at a time,and then l go be back to normal for months. Thankfully l haven't had this floaty feeling since Aug last year, but other symptoms have come around to bother me. Anything but the floaty feelings l can handle. I actually thought l was going mad. Having the Neuro say it was just anxiety made me feel very frustrated.
I feel great at the moment, but l know how quickly that can change. Since taking my turmeric pills l feel so much better, no more painful fingers or ankle or back. Yeah!
Had X-ray of chest and spine. Had ultra sound of pelvis and upper tummy,and had an MRI of brain in Dec, and all came back normal.
Thanks of reading and taking the time to answer my questions. Your help is greatly appreciated, and its nice to have somewhere to express yourself.