Back pain and hip "lumps" or swellings on bo... - Vasculitis UK

Vasculitis UK

7,759 members6,736 posts

Back pain and hip "lumps" or swellings on both sides anyone?

Ta2018 profile image
2 Replies

Hi everyone, I was dx'd with Churg Strauss 15 years ago. Considered a "mild" case as even lose dose prednisone usually does the trick for me and my main symptoms are sinus related. I have had a few months of hell, catching a lot of colds and bugs. In October, my neck lymph nodes came up accompanied by a cold and have more or less stayed up since. They aren't huge but tender and ache. In december, more came up in my groin. I have also been dx'd with endometriosis a couple years ago but in recent months I feel like something is not right at all and I am being passed from GP to ENT to lung specialist ect. I have had increasing back pain, groin pain - possibly from the nodes, and now in the last 10 days developed tender hips. I noticed tender lumps more or less on both sides on the outside of my hips. I had an MRI mid December which didn't mention anything other than possible adenomyosis and a simple ovarian cyst. This seems to have progressed very quickly so wondering if anyone had experienced similar as i have no idea whether i am looking at a flare up or something completely different. Also, recently had bloods that shows high levels of B12 and slightly elevated inflammation markers. Any advice for my next rheumatology appointment this week? thanks!

Written by
Ta2018 profile image
Ta2018
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Mooka profile image
Mooka

So sorry you are having such an awful time. I don’t have answers for you except to say for years I thought my back pain was part of my Vasculitis but it turned out to be spinal stenosis and my hip pain is west and tear. I hope your rheumatologist can give you some answers.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

How did your appointment go ? EGPA is extremely rare and it’s important you are seen by doctors who have experience, knowledge and understanding of EGPA.

You may also like...

Hip pain and shaking limbs!

woke up with a pain in my hip. Seems to be right in the joint then into my groin. Now it seems my...

Anyone suffer facial pain?

October he said I have vasculitis and he believed I had GPA (Wegeners. I now have pain in my face -

Does anyone have experience of a rash ( and some swelling) on their ankle?

30/25 mg of prednisolone a day. In the past I have had reactions to various drugs, but the rash has...

Does anyone get pain in the ball joints of their feet making it difficult to walk?

Recently, more so after stopping my steroids (3 months ago), I have experienced excruciating pain in

My WG journey continues

suspect a possible funding issue here! My hip has now become much more painful than usual,...