Vasculitis UK Spring Newsletter 2019 - Vasculitis UK

Vasculitis UK

7,774 members6,747 posts

Vasculitis UK Spring Newsletter 2019

Suzym2u profile image
Suzym2uModeratorVasculitis UK
8 Replies

The Spring newsletter will be dropping on door mats this week.

If you wish to continue receiving the hard copy VUK newsletter it is ESSENTIAL you complete the enclosed form and return it to us if you still want to continue receiving the hard copy newsletter. This is because of the new rules and regulations regarding holding peoples personal information. (General Data Protection Regulation (GDPR) has now came into effect we now have to have your written permission to do so.)

The pdf version is always available a few days after the hard copy has been published, on the website for those who do not wish to receive the hard copy version. vasculitis.org.uk/about/new...

If you do receive the hard copy version please do share it with your GP, Consultant, specialist nurse etc. We always leave a copy in the waiting room at our local hospital. 😊

Written by
Suzym2u profile image
Suzym2u
Moderator
To view profiles and participate in discussions please or .
8 Replies

I love the nwsletter and always leave my copy in the rheumatology clinic at the QMC.

AndrewT profile image
AndrewT

Dear Susan,

Didn't I just Get this, in an Email, Susan? I certainly Printed Something, from NKF. Is this Newsletter different, if so can this be Emailed also? Sorry for all the Questions.

Love to you and John...and you Grandchildren, how old are they now?

AndrewT

Sima1952 profile image
Sima1952

E-mail version is fine by me. Do you send one to Stella at Addenbrookes, she's the Specialist Nurse in the Vas Clinic; if you don't l'll send her my copy, if that's o.k.

Sallysima

Lone-wolf profile image
Lone-wolf

Susan, can you send me 5 hard copies of the newsletter which I will distribute in the Royal Free Hospital and my GP's surgery, also as a reminder, I still need that Teeshirt for next month.

Suzym2u profile image
Suzym2uModeratorVasculitis UK

It is on order but we have had Easter in between 😊

Pollie profile image
Pollie

Just to say I have not received my paper copy. I didn't get the last one either...and phoned to discuss this. Hope I receive it soon? Yours "Pollie"

Suzym2u profile image
Suzym2uModeratorVasculitis UK in reply to Pollie

I have no idea why you have not received your hard copies of the newsletter but if you write to John at john.mills@vasculitis.org.uk he maybe able to help.

Pollie profile image
Pollie

Thanks Suzym...I have contacted john Mills and he sent me the mag. Sorry this is so late...I've just got back from holiday!...yours pollie

You may also like...

Vasculitis U.K. Spring Newsletter 2019

Our copy arrived this morning , has anyone else on the VUK mailing list received their copy? We have

Problems downloading the Spring Newsletter?

Go to the Newsletter page of the website http://www.vasculitis.org.uk/about/newsletter and...

Consultation Response for Rare Diseases (Vasculitis UK)

anyone would like a copy please pm me and John should be able to email you a copy. thank you Susan...

Hi all UK vasculitis sufferers/ Rituximab

If you are on Rituximab could you tell me how many doses/infusions you have and at what intervals,...

UK Ghostbusters are fundraising for Vasculitis UK in January

have their usual proton packs for you to try and so much more for your enjoyment. Follow the link...