Suspected Wegener's granulomatosis

[Wendyje]

I'm currently awaiting a Nasal biopsy as I have several symptoms and blood test showed reduced kidney function and very high inflammatory markers. Can anyone in the UK give me a rough guide of how long I'm likely to be waiting? I feel that no one is treating me seriously.

[Suzym2u Moderator Vasculitis UK]

Have you checked with your GP, your referral has been sent?

Which hospital are you waiting for an appointment?

[PMRpro]

Waiting times depend on the hospital - some are shorter than others. They do tend to be longer during the winter because demand for everything is high. The bottom line is that emergencies have to take priority over urgent cases.

As Suzy says. your GP may be able to tell you more. But if you are on the waiting list for a biopsy - you are being taken seriously.

[Hidden]

Hi Wendy,

I they suspect Wegners then you should be treated as a matter of urgency. I am slightly dismayed that they plan to do a nasal biopsy as it has very low yield for confirming Vasculitis, if they think it has affected your kidneys then a kidney biopsy is better although it carries slightly higher risk.

The most important thing is to get a referral to a specialist Vasculitis multi disciplinary clinic, there are a number dotted around the UK. If you let us know where you stay then we can point you in the right direction. You are also welcome to phone or e mail the VUK helpline for advice.

I would trust your instincts, if you feel no one is taking you seriously then they probably aren't. In my experience inexperienced Dr's tend not to take Vasculitis seriously as they don't realise the implications of it.